Yes EE03 I am not sure on area.. forehead... I know trigeminal nerve has upper and lower but upper I always thought upper was eye , ear. front back of of ear area. the nose sometimes.I usualy dont think about upper because I have lower one side but I do chat with lots of others some with both side some with upper. usualy I hear of eye /ear pain with upper. also have heard of creepy crawly feeling some have said on top of head like feeling of bug crawling in hair.
I would call doc/neuro AND /or write this down for next visit and so you can make sure its t.n. and not o.n. or another issues all together.
I Hope others come by and share cus any info is going to be helpful to all of us. MELINA I hope you keep us posted and let us know how you are feeling today and I pray your feeling low pain and this new pain has left you for the time being.
Holding you in my thoughts.
PEACE
BMW

i think my tn is progressing i have both sides in chronic pain and now my forehead and top of my head are starting! i think i need to go back to the neuro! the pins and needles has been happening for about a week now the pain at the top of my head started abouta month ago i just ignored it thinking it was just my head playing up! this really sucks im not having a good time at the moment!!!!

low pain wishes to all of you

I think that what I'm finding is where the pain is being triggered from in that the forehead pain that comes with neck pain and pain at the base of my skull. I have no doubt of the TN dx I have and the pain I have. Just trying to sort through the ON stuff and find a way to tell TN from ON in the overlapping area is confusing.

Now, as to creepy crawly feelings, those are also present more than not. I have noticed that they have progressed along with the condition. It does feel as though something is on my skin. It can also feel as though my muscles are cramping, and the pain takes on a boring quality to it. It is really annoying, distracting, and distressing. The one constant, regardless of the origin of the pain, is that it doesn't cross the centerline of my face or scalp.

Hopefully, I've written this a bit clearer today
Ellena

Hi Bmw,
Thankyou for your kind advice once again! i am unfortunately not feeling much better today! i was thinking it has been extra cold here the last week i am wondering whether this is triggering off the new pain as well as the normal pain in both sides of my head behind the ears and on my jaw lines! i have been taking it very easy the last few days just watching movies in bed because that is all i seem to be able to do with this pain! i hate it!!!!! i booked in to see my gp tommorow to see if i can up my dose again or ask her what i can do for the pins and needles! i will let you know what happens!

low pain wishes to all!!!
Melina

cant sleep and I know its your GP apt so wanted you I know I am thinking about you and pray things go very good and you find some pain relief and some possible answers at apt. . would be nice for you to be able to enjoy weekend for a change! warm
wishes at you Melina
PEACE
BMW

Hi Bmw,
I went to the doc today and she said to me that i wasn't on the slow release tegretol so now she has put me on the slow release and is hoping that they will work better! so i guess i will be really tired now for a few days the dose is still the same just different tablet! well here goes lets see what happens now!

HI Melina,

Sorry to hear of all you pain. I am not sure if it will help you... I also have bilateral TN and ON. I do get the pins and needles feeling all over the back of my head, and forehead.. along with all the more painful things with my ON. Though I do have TN in all 3 major branches. But for me I can tell them apart, as my TN is classic, in that it is electric bolt type pains, and the ON isn't. Hope that helped a little. Best of luck on your new med!!! Nikki

Hi Nikki,
Thankyou, it does help knowing that someone else has bilateral tn and on as well at least i know this is normal but it still isn't very friendly!! i dont like the new pins and needles feeling! the pain is awful too but it scares me when i get a new symptom! its not fair on any of us to have to suffer with this horrible pain!

low pain wishes all
Melina