I am sorry for the many diffrent types of pain you are having!
I cant help much with botox or any suggestions. I can say what has helped me most and given me back some quilty of life is my Neuro stimulator.
It is last resort after meds and surgeries dont help and still not yet approved by the gov. as far as I know.
I can send a hug and low pain wishes and wish I could help you more .
If you ever want to talk or vent we are all here for you Pono.
PEACE
BMW

p.s. dont give up keep searching and praying for that miracle!!!!!!

much thanks ...

would you share more about Neuro Stimulator??

I have a neuro stimulator. I got a trail before I decided I would have it for good. I had it for a week. Then the surgery was Simple Simon. Same day went in morning was awake threw most of it. They put the battery under skin under my left arm by bra line. Then they ran wires across my back to neck then the leads back of head and lower right side of jaw. I will need to get new battery in a few years. My type of battery good 7-10 years it is like a pace maker battery. I went home that afternoon. Waited like a week I think maybe a few more days then that. To heal some and stuff. Then I went and had it turned on. There is a link in the helpful websites I put at top of forum here all about neuro stimulators. I don’t have motor cortex or deep brain stimulator. I would say mine is very much like a spinal cord stimulator but it is not exactly a spine cords stim as it isnt for spine.

Sorry dont feel well and not much into posting but wanted to get a bit of info to you before i go chill more. Post back any questons and I will get back to them soon.
I feel yulk sorry Pono.
Hugs and;OW pain at you.
Peace
bmw