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Old 07-19-2008, 04:10 AM #1
Cithmore Cithmore is offline
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Cithmore Cithmore is offline
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Sorry I did not give enough information, I have tried tegratol and neurontin and it seems that dilantin is the drug that works best for me however the side effects are to severe and the drug is less and less effective as time goes on.
As for my nero he is one of the leading neurosurgeons in the country and has done many MVD's and PSR's. I have had a MRI and it looks like another MVD would be pointless and the PSR is about the only real option I have besides trying the Dilantin long term.
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Burntmarshmallow (07-19-2008)
Old 07-31-2008, 08:56 AM #2
Cithmore Cithmore is offline
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Quote:
Originally Posted by Cithmore View Post
Sorry I did not give enough information, I have tried tegratol and neurontin and it seems that dilantin is the drug that works best for me however the side effects are to severe and the drug is less and less effective as time goes on.
As for my nero he is one of the leading neurosurgeons in the country and has done many MVD's and PSR's. I have had a MRI and it looks like another MVD would be pointless and the PSR is about the only real option I have besides trying the Dilantin long term.
6 more days until I get the PSR procedure, my TN pain is getting worse because the effectiveness of the Dilantin I'm taking is decreasing. I'm still apprehensive about this surgery because I would love to have the TN pain gone again however the prospect of having the left side of my face numb in some areas for life is kind of scary. Again I would like to ask if anyone has had the procedure or knows anyone who has had it and what the outcome was?
Thanks
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Old 07-31-2008, 10:55 AM #3
EE03 EE03 is offline
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I've not had and I won't consider having it. I saw a Neuro surgeon who strongly warned me against it since I have TN1 and 2. He said that it would only make the pain worse when it returned, which he feels very strongly that it will.
Good luck, Ellena

Last edited by Curious; 07-31-2008 at 12:06 PM. Reason: edit per nt guidlines
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