Hi Sue! I had TN on the right side of my face for over 10 years and in the last year it has moved to the other side. I found a great book called Striking Back by Weigel and Casey ISBN 9780967239323. It really is a Bible for anybody suffering from facial pain. I have TN type 2 which means that I can be in constant pain for days. It hits me like a severe tooth ache. I had several unnecessary dental procedures before I was diagnosed properly. Does anybody know whether TN could be caused by damage in the brain stem or neck??

I am sorry for your pain.I am having a tough time of things right now too. But I offer you low pain wishes and some hugs
The t.n. nerve starts at the base of the brain stem. and it most surely can come from an injury to head or neck.I know of other who had injuries to head and or neck and got t.n. from injury. also other who got t.n. or worse from brain surgery. hope this helps you. and I hope others come and lend their info to you.
Low pain at you
PEACE
BMW