As KD said: I also feel for you, Lynda.

I've not tried Topamax. The (most recent) medication my neurologist Rx'd is Relpax; at the time she prescribed it (2005), I'd come across one lone site on the Net where someone else's neurologist also Rx'd it for TN. (I wonder if maybe more neurologists might be Rx'ing these days.)

For dentistry, my neurosurgeon suggested seeing a dentist who uses conscious sedation. For any prolonged procedures, he said that it should be done via hospitalization. Uhhh, I'm not to fond of that idea, and I've been procrastinating finding a new dentist.

Have you heard similarly?

A great friend and part of the braintalk family, Tracy, has bilateral tn and has had for quite a while. I hope she'll be posting here soon, and maybe you can compare notes. One side is tough enough, my heart goes out to those of you with double the trouble. Especially since I try to distract myself once in a while by scratching the non-existent itch on the good side when I know that I don't dare scratch the real itch on the bad side. What a bummer. Nancy

I have been questioning that possibility for myself as well. Mine was originally only on my right side (which happens to be the side my seizures fancy, too). Last week, I started to have the same issues on my left side and it worries me.

I really hope you do find comfort, it is the worst pain I've ever felt in my life. No matter how instant it is, it is horrible to experience it.

I wish you the best. (All of you!)