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Old 12-11-2008, 07:18 AM #11
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No problem. It gives you a lot of information about TN and the meds and other options available for treatment. I think its the only book out there dedicated to TN. The TNA(Trigeminal Neuralgia Assoc.) carries it and there is a link in the stickies above if you don't find it elsewhere. Take care!
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Old 12-14-2008, 05:35 AM #12
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I did find it on Amazon, and it's VERY expensive.

I may wait for the new year to order it, price may come down a bit, hopefully!
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2004 to present - Trigeminal Neuralgia
2007 to present - Burning Mouth Syndrome
March 2008 - Multiple Sclerosis DX
05/2008 - Relapse
05/2008 to 02/2009 - Copaxone
10/2011 - Relapse - Optic Neuritis developed
9/2012 - Relapse - Balance issues 1 sided
8/2012 - Erythema Nodosum - diagnosed 10/2012, reaction to Topiramate (Topamax)
April 7/14 - Raynaud's Syndrome DX
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Old 12-14-2008, 11:04 PM #13
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I am on neurontin....300mg three times a day!! few months back not long after starting it..I did have a few times where I felt different..moody or sad...like I had never felt before...some of me thought my sisters funeral stuff..lingering...some of me wondered about the meds....so at time talked to dr and cut back to just one 300mg a day..which still helped somewhat on the tingling pain it helps. I am doing fine....

but I did talk to hubby about hey, watching me as I am never moody..so to tell me right away if I act wierd moody like...and we can talk about if I shoudl get off meds...

hugsss,sarah
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Old 06-19-2009, 10:15 PM #14
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I've been inthe house for two weeks tryna get this under control. I went out for the first time today and couldn't stand to be around anyone. i am so angry right now and agiated. I've been on Trileptal for 2 weeks. I dunno don't think it's doin me right.
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