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12-02-2008, 07:32 AM | #1 | |||
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Grand Magnate
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http://www.healthcentral.com/migrain...5.html?ic=4004
(Thanks Pono I have been there too teg and neurotin ) PLEASE inform your doctor with all and any concerns you have with your medications , risks and side affects!!!!! |
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12-02-2008, 11:55 PM | #2 | |||
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Magnate
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That's scary stuff. In a way, it makes me glad I had such bad side effects I never stayed on an anti convulsant long term. I always read up on medications I take. Some of the side effects can be quite scary.
__________________
2004 to present - Trigeminal Neuralgia 2007 to present - Burning Mouth Syndrome March 2008 - Multiple Sclerosis DX 05/2008 - Relapse 05/2008 to 02/2009 - Copaxone 10/2011 - Relapse - Optic Neuritis developed 9/2012 - Relapse - Balance issues 1 sided 8/2012 - Erythema Nodosum - diagnosed 10/2012, reaction to Topiramate (Topamax) April 7/14 - Raynaud's Syndrome DX |
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"Thanks for this!" says: | Burntmarshmallow (12-04-2008) |
12-03-2008, 08:37 AM | #3 | |||
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Junior Member
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Yeah, that is pretty scary- so now what do we take?? Since I rarely take the tegretol, I of course have not had this side effect, but if I have to start taking it daily I will have to see if there is another drug to replace it.
Is there anything prescribed for TN that is not on the list? |
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"Thanks for this!" says: | Burntmarshmallow (12-04-2008) |
12-03-2008, 09:56 AM | #4 | |||
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Magnate
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Running out to work, but I believe that was a list of commonly used anti convulsant medications specifically.
I actually take Clonazepam (which is a benzodiazepine with anti convulsant properties) 'as needed' for my burning pain, since I can't take the anti convulsants/anti depressants as off label pain relief due to side effects. Clonazepam is highly addictive and habit forming. I'm only taking 1mg a day currently, but as my current flare seems to be calming down, I'm slowly reducing my dose of Clonazepam. Once you're on it for a couple weeks consistently, you can have trouble if you try to stop it immediately.
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2004 to present - Trigeminal Neuralgia 2007 to present - Burning Mouth Syndrome March 2008 - Multiple Sclerosis DX 05/2008 - Relapse 05/2008 to 02/2009 - Copaxone 10/2011 - Relapse - Optic Neuritis developed 9/2012 - Relapse - Balance issues 1 sided 8/2012 - Erythema Nodosum - diagnosed 10/2012, reaction to Topiramate (Topamax) April 7/14 - Raynaud's Syndrome DX |
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"Thanks for this!" says: | Burntmarshmallow (12-04-2008) |
12-03-2008, 01:41 PM | #5 | ||
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Member
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I take a regular dose of baclofen, which is a muscle relaxer and works for my TN. I supplement it with Klonopin/clonazepam as needed when the pain really flares. It does knock down the electrical episodes. My pain occurs daily and I can't be totally off of meds.
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"Thanks for this!" says: | Burntmarshmallow (12-04-2008), dmplaura (12-05-2008) |
12-05-2008, 10:23 AM | #6 | |||
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Magnate
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Quote:
My neuro isn't pleased with the idea of Clonazepam, and neither is my GP. Neuro wants me to look into medical marijuana instead (since as a Canadian, that option is available to me potentially!).
__________________
2004 to present - Trigeminal Neuralgia 2007 to present - Burning Mouth Syndrome March 2008 - Multiple Sclerosis DX 05/2008 - Relapse 05/2008 to 02/2009 - Copaxone 10/2011 - Relapse - Optic Neuritis developed 9/2012 - Relapse - Balance issues 1 sided 8/2012 - Erythema Nodosum - diagnosed 10/2012, reaction to Topiramate (Topamax) April 7/14 - Raynaud's Syndrome DX |
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"Thanks for this!" says: | Burntmarshmallow (12-05-2008) |
12-05-2008, 12:32 PM | #7 | ||
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Member
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I don't use Klonopin every day. If I had to average my use, I'd say 2-3 times a week and only when I can't take the pain anymore. I know this won't last, but its good enough while it does.
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"Thanks for this!" says: | Burntmarshmallow (12-05-2008), dmplaura (12-05-2008) |
12-05-2008, 06:21 PM | #8 | |||
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Magnate
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I actually saw my GP today, and she's prescribed me Clonazepam for my pains long term. I also have TMJ and Multiple Sclerosis playing into the TN/ATN fiasco, and I don't have a secondary medication.
My GP actually said she thought about my situation and that the Clonazepam at 1mg daily (or .5mg if I don't need 1mg) long term may not be a bad idea for me in my situation. I asked about a pain specialist. Sadly, there's 1 available here. Apparently he's excellent. Apparently there is also a waiting list 2-3 years long to see him .
__________________
2004 to present - Trigeminal Neuralgia 2007 to present - Burning Mouth Syndrome March 2008 - Multiple Sclerosis DX 05/2008 - Relapse 05/2008 to 02/2009 - Copaxone 10/2011 - Relapse - Optic Neuritis developed 9/2012 - Relapse - Balance issues 1 sided 8/2012 - Erythema Nodosum - diagnosed 10/2012, reaction to Topiramate (Topamax) April 7/14 - Raynaud's Syndrome DX |
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12-05-2008, 08:43 PM | #9 | ||
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Member
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Its great that you have a good pain doctor available though. I think I'd get on his waiting list, just in case. Baclofen is used a lot for MS patients to treat muscle spasticity, but in trials for TN, studies showed it only helped somewhere around 65-70% of patients, if memory serves me right. I feel really lucky to be one of the ones its helping. Have you got a copy of Striking Back? That book is a must have for anyone with TN.
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"Thanks for this!" says: | dmplaura (12-10-2008) |
12-10-2008, 11:12 PM | #10 | |||
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Magnate
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Nope, but I'll be looking this one up. Thank you very much for the suggestion.
__________________
2004 to present - Trigeminal Neuralgia 2007 to present - Burning Mouth Syndrome March 2008 - Multiple Sclerosis DX 05/2008 - Relapse 05/2008 to 02/2009 - Copaxone 10/2011 - Relapse - Optic Neuritis developed 9/2012 - Relapse - Balance issues 1 sided 8/2012 - Erythema Nodosum - diagnosed 10/2012, reaction to Topiramate (Topamax) April 7/14 - Raynaud's Syndrome DX |
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