Originally Posted by EE03

I have both the classic type of TN(aka: TN1) and the atypical form(aka: TN2). Sadly, mine is bilateral and affects both sides with all three branches of the nerve. One side is more active than the other, so at least that is good, but I experience pain daily. I haven't had a remission in three years or so and I don't have any plans of going off my meds. I had this condition for a long time before I knew what I had, and early on, I would get months of remission between attacks, but those times are long gone. Maybe thats why I'm so firm about not taking a med holiday. After having so many teeth pulled, I've learned to look for swelling and inflamation in the gums around the suspect tooth, and I always follow up with my current dentist who is very aware of my condition. He has sent me to other dental professionals to verify his findings before anything is ever done and he approachs me with caution and puts up with my never ending anxiety over anything dental related.

Some doctors and TN'ers do recommend that their patients take med holidays, but there are risks involved concerning getting the same pain relief from previously used meds. I've read that you sometimes get the rebound effect and have to increase the med to get the same relief as before, but since you work in the medical field, you probably know more about that than I and you're better equipped to articulate it. I haven't taken one since I started treating with meds. I've had to change meds more times than I can count, but I haven't been med free since I discovered what I was dealing with and finally got treatment for it.

The last tooth that I had a root canal on is still an active trigger for me, even though it has been capped and is dead. I deal with a lot of pain around that tooth, sometimes the electrical type, and others the nonstop boring pain thats associated with this condition.

Sorry for the long response. I get on a roll at times. Hopefully, I've answered your questions.

Take care, EE

Originally Posted by Donald 2

EE, That.... was very helpful. Although Im in the medical field, this is totally out of my realm. As I havent yet seen a neurologist etc., the experience of those in this forum is very valuable to me. Im sure you folks trump the doctors as a cumulative base of painful experience, with all due respect to the docs of course. I guess Im sadly coming to the realization now, that this is probably not going away. I thank you for your thoughts on tooth pain and med discontinuation or not. I must admit the thought of going off the neurontin is scary because I still have pain with it, but not close to the pain I had without it. Im curious if the situation of many in this forum, ie continually increasing and changing meds secondary to increasing pain, is typical for TN or, are the folks in this forum just hurting more than most with this disease? Any thoughts out there? Im very sure I will brief my dentist. Its unfortunate that so many people have so many teeth pulled only to have the same pain anyway. Im sure, undiagnosed with TN, I would be begging my dentist for relief. Thanks again EE. Don

Originally Posted by Donald 2

P.S. Its now a day later and that tooth is absolutely fine. hhhmmm..strange