[Catch]

I've got ATN. Its been acting up fairly severely in my first year since being Dx'd w/MS, gets better when I'm on steroids, etc. However, here's something new: The same type of severe burning ice pain I get in my ear is now occurring at the corners of my mouth. Its not too bad, unless I open my mouth, sometimes ear pain accompanies, sometimes not. One time it felt like there was a knife from one ear straight through my head to the other ear, and passing through the corners of my mouth.

Related? Or is this an MS thing? Or something else? Just trying to gauge whether I need to see my neuro or not.

Appreciate any input.

[dmplaura]

I'm going to reply to this one here Catch.

I decided I wanted to drop from 1mg of Clonazepam (only thing I can take for my ATN) to .75mg. At one point I had been up to 1.5mg daily.

Saturday and Sunday I took .75mg of Clonazepam. All was well. I took a half pill in the evening, then a full pill at bedtime.

Today, I went to work and about 12:30pm, burning mouth came back, FIERCE. I had suffered with burning mouth (unexplained... outside of the MS or TN) since June/July 2007 (before my MS diagnosis). Well, here it was back and biting, hard.

I took .25mg of Clonazepam about half an hour later, when I realized the burning was moving from my mouth into my cheeks/below the eyes and into my temples.

At least the Clonazepam shut the burning down, not completely, but it did help drastically to reduce the severity. Enough that I got through the rest of my work day without issue.

Now I'm thinking if I want to taper off, I'm going to have to do .25mg of it 3 times a day (so it's continuous).

Not exactly the same pain pattern you describe Catch. Mines the roof of my mouth, my tongue (more on the right side) and the insides of my cheeks/top row of gums on both sides. Feels like someone poured scalding hot coffee in my mouth. Dreadful!