Hi Deb! I've had ATN/TNP for 7+ years. One of my first symptoms was an itchy spot on my scalp and another on my face near my temple. The feeling could go from itching to itching/burning, creepy crawly.

I also had bad eye pain, I would wake up in the middle of the night and it would feel as if I was being stabbed in my eye.

I also had ear pain, and after dental work in 2002, I now have constant pain in the whole right front upper quadrant of my face, along with any of the above sensations and with added crushing, boring, tearing stabbing, and occasional electric pain.

The nerves in our body can act up in so many ways...I am suprised your Neuro had the reaction he/she had. I was told by mine that all these are symptoms of Trigeminal nerve pain.

I believe you are going in the right direction.

One thing I found helpful was to write things down, from my symptoms, to the intensity of my pain if any thing added to or started my pain, etc.

This is something that my Dr.s found helpful also. We can't be expected to remember everything so I also found that having either my husband or daughter present with me at appointments, so they could ask things I may have forgotten or to remember things that the Dr. said. It was also great moral support as my family has seen me go through all of this so they are a great asset to me at these appointments.

I wish you the best and hope you find a place of peace and comfort soon. It is possible even with this terrible disorder.

Mar