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Old 04-10-2009, 12:45 PM #1
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Thumbs up Ten year break from T.N.

Andy219. I know it seems like a circus at first, This med or that med? This Doc or that Doc? whew.........
I was taking a drink of something when I felt that first jolt across The L side of my face. It scared me so bad I didn't want to even move. Anyway, after being diagnosed with T.N. I was put on 30mg. of amitriptyline and 100mg of Dilantin Both at
bedtime. That was it, no more jolts. I figured that I could take my little meds.
and that was that. Life seemed beautiful again.
Life stayed beautiful for TEN years. I got married, went on vacation, went to my job etc. I had no idea my life was about to take a very different turn.
After TEN years it came back. So I can certainly see that it can return.
You're going to get this all under control and be sure and read as much as you can. Knowledge is a very big tool.
Blessings, Doodle bug7
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Burntmarshmallow (04-10-2009)
Old 04-14-2009, 12:04 AM #2
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Welcome Andy,
I'm also fairly new to this site and to Trigeminal Neuralgia. Well, I guess I've had it for about 1½ years, but didn't have it diagnosed correctly till January of this year. My pain radiates out from the left cheek area and by early January it had become excruciating all the time. I was first put on carbamazepine 200mg by my family doctor, but after just a few days we knew it wasn't gonna work....very dizzy, drowziness, headaches, nausea. He then put me on Trileptal (oxcarbazepine 150mg...2x/day), but it had no effect at that time. We then went to Neurontin....same side effects as the carbamazepine. So about 6 weeks ago, we went back to the Trileptal and gradually it began to have an effect on the pain without any noticeable side effects. In fact, Easter morning was the first day in about 18 months that I've had no face pain. I even tried to make it hurt by being very aggressive in brushing my teeth....still no pain! And today I'm still pain-free. (Of course that's gonna change on Friday when I have my hernia surgery, but at least the pain won't be in my face...lol.)

I eventually did see a neurologist about my present TG about 4 weeks ago and he advised sticking with the Trileptal. I also just had a brain MRI this past Friday, but haven't heard anything on that.

I remember back in the early 90's I would get real sharp pains in my right temple area. It would literally drive me to my knees. They didn't last long and eventually went away, but I wonder if that may have also been TG.

Anyway, I hope you have good success with the carbamazepine and yes, I would definitely follow up with a doctor. I think they have to do periodic blood tests while you're on these meds to make sure they're not doing any damage to liver, etc... as I understand it.
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Old 04-14-2009, 09:29 AM #3
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P.S. Andy........ I lived in NW Indiana for 12 years ....Crown Point, Cedar Lake, Dyer, Hammond area. There are certain things I miss, like being able to visit all the places of interest in Chicago.....and I miss White Castle!
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