Sorry you are here for such an ugly pain as a.d. But I wanna welcome you to Neuro GandBarrieand say there are many many great caring supportive understanding folks here...in all the forums.

I have A.D. and I found my pain management doctor helped me a zillion times more then any of the different neuros I seen.
I got No help from the many meds and was first in U.S.A. to have a neuro stimulator also called a P.E.N.S. implanted for my pain. having the implant also involved a neuro but it was my pain doctor who came up with idea and went to great lengths ,never gave up on me. Today I am ALIVE thanks to him and have part of my life back am able to knock the ugly pain monster down to a bearable level when it gets wicked.
I am in Daytona Florida .If you wanna talk ,have questions or anything you can think of that I can do to help let me know...can post here or message me by clicking on my name and sending a message. I know others will come along and you will find you are not alone and you will find great info and support here. This site is filled with the greatest people I know!
Sending low pain wishes and blessings to you GandBarrie. Hope to hear from you soon again welcome to Neuro Talk
PEACE
BMW

P.S. wanted to add..do you know what your triggers are? Like moving air or cold? try to avoid them . I wear a bandanna when it is breezy, I sleep in recline chair so I dont roll on that side of face drink with straw etc.... stuff like that to help not wake up the pain monster. hot and or warm baths help me allot too. hope this helps you

It makes me so sad that you are dealing with A.D. I have been trying to cope with my A.D. and as you said, every minute, every day. My pain seems to go up in the evening although it is with me 24/7. I had a failed microvascular
decompression in K.C. the first time followed by two balloon compressions.
Nothing helped me. Out of sheer desperation, we went to Mayo clinic in Minnesota. I was there for three weeks. By that time I weighted ninety eight pounds. I wouldn't eat or talk. I was dehydrated and very weak. The T.N.
wore me down to a shell, as it intended to do. Three days from when we arrived
I had surgery to partially cut the nerve. It was done and it threw me into a spin of torcherous pain and I wanted to die. I was sent to the pain unit where one nurse has only two patients to take care of. The Doctor told my husband that I would need to go back in surgery where they severed the nerve. I am numb on one side but always feel the nerves moving around. The pain can shoot up anywhere, any place. I tried the pain management Docs. One got me addicted to Oxycontin and the other one got me addicted to methodone. My family Doc. now handles my meds with no narchotics.
I found a great Doctor in Kansas city that used to work at Mayo. Dr. Lemons
is a psychologist that works with those who are dealing with cronic pain.
It is actually a self hypnosis for relaxation. It isn't narchotics, it isn't pain blocks that don't work, it is within yourself. I'm not saying that it is some magic trick but it can teach you how to cope with the pain a little easier.
Believe me, I have been where you are from A---Z. Blessings, Doodle bug