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Vitamins, Nutrients, Herbs and Supplements For discussion about vitamins, vitamin deficiency, herbal remedies and other supplements. |
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01-20-2007, 03:10 PM | #6 | ||||
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Legendary
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Sorry if this is all confusing to you, 3beansforme. I really do apologize for adding all this information on this thread, but I felt it necessary.
_______________ As Chemar has said, "I would highly recommend finding a doctor who is knowledgable about PANDAS and who will run the comprehensive tests". This is easier said than done in some places so I will suggest that if PANDAS is ever suspected then please contact NIH (sites listed above) and they can either refer on or give other suggestions. It is vitally important that treatment or diagnosis is not given by a practitioner who is not aware of current findings on the PANDAS research... it changes all the time and there is even disagreement in medical circles as to criteria and treatment still to this day. It's still evolving. Not many people on these forums these days probably know this, but my son had been (mis)diagnosed from age of 5 to 10 with a Strep. related movement disorder called Sydenhams Chorea. His treatment initially was an antibiotic and Clonidine. The antibiotic was to be given until approx. age of 21 as a preventative. This was pretty normal practice back then. Sydenham's Chorea is a condition that can occur in *some* people, not all people, who have had Rheumatic Fever after a Strep. infection. This of course was ceased when his diagnosis was later changed. PANDAS of course doesn't occur after Rheumatic Fever, but the autoimmune process involved is somewhat similar. Anyway, I just wanted to post this somewhere in the hope that people searching out PANDAS information will realize that there is a real need for caution in both diagnosing and treating at this point in time until more clarification is forthcoming from the PANDAS studies. If anyone is seeking evaluation, please contact the Research centres such as NIMH, [or doctors outside of NIMH like Tanya Murphy or Barbara Coffey of course] because they will know what to do. http://www.medscape.com/viewarticle/547096?src=mp PANDAS May Be Overdiagnosed, Contributing to Overuse of Antibiotics Paula Moyer, MA November 2, 2006 AACAP 53rd Annual Meeting: Abstract C21. Presented October 26, 2006. Quote:
Quote:
The pediatric autoimmune neuropsychiatric disorders associated with streptococcal infection (PANDAS) etiology for tics and obsessive-compulsive symptoms: hypothesis or entity? Practical considerations for the clinician. Kurlan R, Kaplan EL. Cognitive and Behavioral Neurology Unit, Department of Neurology, University of Rochester School of Medicine, Rochester, New York Quote:
http://pediatrics.aappublications.or...full/113/4/883 PEDIATRICS Vol. 113 No. 4 April 2004, pp. 883-886 SPECIAL ARTICLE The Pediatric Autoimmune Neuropsychiatric Disorders Associated With Streptococcal Infection (PANDAS) Etiology for Tics and Obsessive-Compulsive Symptoms: Hypothesis or Entity? Practical Considerations for the Clinician Roger Kurlan, MD and Edward L. Kaplan, MD From the the source... PEDIATRICS Vol. 113 No. 4 April 2004, pp. 907-911 http://pediatrics.aappublications.or...full/113/4/907 COMMENTARY The Pediatric Autoimmune Neuropsychiatric Disorders Associated With Streptococcal Infection (PANDAS) Subgroup: Separating Fact From Fiction Susan E. Swedo, MD, Henrietta L. Leonard, MD and Judith L. Rapoport, MD Quote:
Last edited by Lara; 01-20-2007 at 03:56 PM. |
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