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Vitamins, Nutrients, Herbs and Supplements For discussion about vitamins, vitamin deficiency, herbal remedies and other supplements. |
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08-02-2007, 09:27 PM | #21 | |||
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Wow, your story is very inspiring. Your wife's improvement ... it's wonderful. And I know that it's not uncommon for B12 to be able to aid in recovery like that. I just wish I could convince more people. I agree with you that a daily shot, had it been continued, would have been helpful. I know that for me, I need a lot more B12 than many other people. If your wife was so very depleted, then it's not easy to get enough B12 back into all the tissue. It might be if you lived on a desert isle with free food and drinks and no worries... but in a life with any stress, well, in my experience the stress eats b12 up nearly as fast as I can take it. And for me, even 6 of the 5mg Methylcobalamin a day do not equal a shot a day. And on the worst days I have to have two shots to keep the peripheral neuropathy from coming back. So I very much agree with you, from my experience. I wish that doctors didn't get into these hard and fast rules about how to treat things. One treatment does not fit everyone. But that's what doctors tend to do. Darn it. (((((((((Matty and your wife))))))))))
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08-02-2007, 09:29 PM | #22 | |||
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Matty, you know what, I just LOVE your SORRY to rant paragraph toward the end. It says it sooooo well.
I had to come back and add that!!!!! (((((((Matty)))))))))
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08-02-2007, 09:33 PM | #23 | |||
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I've read your post twice.. and I can't see where you say how many shots a month you give to yourself. I know you may well have written it, and I just keep failing to see it. If you are having a shot a month or a week, I'm not surprised that you aren't feeling an improvement. I didn't feel much of an improvement, I mean a really significant improvement where my peripheral neuropathy went away, until I had tetanus and was giving myself one or two shots a day.
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08-02-2007, 09:38 PM | #24 | |||
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Oh Matty, I so know how the bumping into door frames thing goes. I used to have black and blue marks, and I was always breaking things when I tried to carry them through a door way.
But now I can walk without falling in a room that's not totally brilliant with light. so that's a huge improvement. I sure wish you could have more shots for your wife... I'm sure it would help. And remember just being more sick is more stressful. Today I was bent over before noon.... that's nerve damage from the tetanus. But it's stress that activates it. I don't know how it works, but stress just does me in. Still, a year ago it took me months to recover, now it's taking weeks. (((((((Matty)))))))) And yes, re family links. My mom had pernicious anemia. ((((((((Matty)))))))))
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08-03-2007, 10:30 AM | #25 | ||
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There are unusual individual conditions that apparently cause a very few to need B12 treatment constantly. That is not the norm, and in fact it is extremely unusual for a person to require shots nearly that frequently or to have rapid depletion from stress. But because of varying abilities to transport the B12 once it is absorbed, store the B12, and use it normall once it is absorbed and stored, there are unusual cases.
For most people the daily oral dose is best in the long run, and especially when they are able to obtain methylcobalamin. If not, cyanocobalamin or hydroxocobalamin will work for most who need B12. rose
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I will be adding much more to my B12 website, but it can help you with the basics already. Check it out. . |
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08-03-2007, 10:46 AM | #26 | |||
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My feeling, and my observations since I've had a central nervous system disease, is that people who are basically healthy and those who are not have entirely different b12 needs.
While B12 may not be able to cure nerve diseases and conditions, it does have benefits... but for them to be felt in very bad cases it has to be a lot more B12 than that needed by a relatively healthy individual. Most people are reluctant to try the higher amounts, though. I feel that if people tried, kept notes, and then decided for themselves if they had benefitted that it would be a lot better than just taking anyone's word for what they should do.
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08-03-2007, 03:18 PM | #27 | ||
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Of course everyone will decide for himself or herself.
There are, however, some very important principles they should know in order to make the best decision for themselves. One size does not fit all. The severity of damage does not dictate the amount necessary. It is important for everyone with damage to fill their stores to overflowing and keep them full. In addition to that, if a person's liver has been affected or some other damage has affected the ability to transport or store B12, more must be taken more frequently. The degree of malabsorption and ability to transport dictate how much B12 should be taken at a time. Orally that amount should be 1000 mcg at the very least, in order to make sure of getting any in case of severe malabsorption. Methylcobalamin can also be taken in huge amounts. Dozens of times that 1000 mcg dose has been shown to act in a different way in some, allowing objective improvement even if there was no B12 deficiency. That has also be shown safe. As I have encouraged in the past, I believe it is very important for someone to keep notes. At least a few words written on a calendar date can be very helpful--not for days or weeks, but for as long as symptoms continue. Repairs can take place over many months or even years, and it is human nature to adapt and fail to notice progress that comes slowly, or sporadically along with strange symptoms of repairs. rose
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I will be adding much more to my B12 website, but it can help you with the basics already. Check it out. . |
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08-03-2007, 03:53 PM | #28 | |||
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Yes, I very much agree, Rose.
You reminded me that I used to be very worried about the amount of "cyano" I was getting because I was (and am) having cyanacobalamin injections. I feel certain that now that I'm taking Milk Thistle regularly as a liver cleanse, that it's helping... I can't be sure, but my feeling is that the brown spot I used to have in my field of vision has grown many times smaller (nearly invisible) as a result of ... see, I'm not sure... but maybe the Milk Thistle removing toxins...
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08-03-2007, 03:58 PM | #29 | ||
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The cyanide in cyanocobalamin is very little, but I would not want to take it in huge quantities like methylcobalamin is sometimes taken.
And, yes, it sounds like milk thistle would be very important for you. rose
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I will be adding much more to my B12 website, but it can help you with the basics already. Check it out. . Last edited by rose; 08-03-2007 at 04:27 PM. |
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08-03-2007, 04:14 PM | #30 | |||
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The prescription I had that was so much help to me, such unexpected help, was for a shot a day.
That would be equal to about 6 of the 5mg Methylcobalamin lozenges a day... and sometimes I had and have two shots a day, which would be 12 of the 5mg lozenges a day... I forget, are there 60 in a bottle? If so, then a bottle would only last 5 days, which would be vastly more costly than Cyanacobalamin shots. (even including the cost of the needles.) basically, I'm glad I learned about Milk Thistle. .
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