Vitamins, Nutrients, Herbs and Supplements For discussion about vitamins, vitamin deficiency, herbal remedies and other supplements.


advertisement
Reply
 
Thread Tools Display Modes
Old 08-24-2007, 05:53 PM #41
cat265 cat265 is offline
Member
 
Join Date: Aug 2007
Location: New York
Posts: 143
15 yr Member
cat265 cat265 is offline
Member
 
Join Date: Aug 2007
Location: New York
Posts: 143
15 yr Member
Default

This is just how it is written on the test:

INTRINISIC FACTOR AB. (3) see below


**INTRINSIC FACTOR BLOCKING AUTOANTIBODIES

Intrinsic Factor Blocking Auto Not detected not detectd


What is immunofixation serum?
cat265 is offline   Reply With QuoteReply With Quote

advertisement
Old 08-25-2007, 01:07 AM #42
rose rose is offline
Member
 
Join Date: Aug 2006
Location: Northern California
Posts: 732
15 yr Member
rose rose is offline
Member
 
Join Date: Aug 2006
Location: Northern California
Posts: 732
15 yr Member
Default

They didn't find any antibodies to IF. That doesn't rule out the possibility that you are losing it, but it makes it less likely that you lack IF.

I understand that to mean immunofixation (the process) used to test serum (blood).

rose
__________________
I will be adding much more to my B12 website, but it can help you with the basics already. Check it out.

.
rose is offline   Reply With QuoteReply With Quote
Old 08-27-2007, 11:09 AM #43
cat265 cat265 is offline
Member
 
Join Date: Aug 2007
Location: New York
Posts: 143
15 yr Member
cat265 cat265 is offline
Member
 
Join Date: Aug 2007
Location: New York
Posts: 143
15 yr Member
Default

Rose,
Could I build up my b12 levels just by taking sublingal methly b12??
I had my follow up visit with the hematologist today and she said Iam fine. I show no signs of b12 or any other vitamin deficiency. My level moved up it is now 310 (from 293, originally 209). I asked her even if my level was under 500 would that be the reason that Iam so tiered (plus other symptoms) She just pushed me out of the office "no, no, your fine, it's a good thing" So I don't even no what to think right now. I guess I will continue to take the methyl b12 and I guess search for another dr. I have to tell you when dr. after dr. says your fine.......I don't feel so fine.
cat265 is offline   Reply With QuoteReply With Quote
Old 08-27-2007, 01:57 PM #44
rose rose is offline
Member
 
Join Date: Aug 2006
Location: Northern California
Posts: 732
15 yr Member
rose rose is offline
Member
 
Join Date: Aug 2006
Location: Northern California
Posts: 732
15 yr Member
Default

Yes!

In fact, most people, even with severe malabsorption, can build up their stores with 1000 - 2000 mcg per day cyanocobalamin. Methylcobalamin is better, as more usable B12 gets through, and the body does not have to be able to convert it.

Unfortunately, you could go to dozens of doctors (even specialists) without finding one within decades of being up on B12 issues.

Doctors told me I was fine, while my central nervous system deteriorated due to B12 deficiency. Eventually I was "lucky" to get to a neurologist (a rare one) who knew something about the last 40 years of B12 research. He diagnosed me and set me on the long and difficult road to many repairs. Unfortunately, because of the long delay, some things will almost surely not repair.

Take care of yourself, and YES, keep up the methylcobalamin. Also look through this forum for information on other nutrients that might help your body. At minimum, a good B complex and fish oil (sorry if we've already discussed that.

rose
__________________
I will be adding much more to my B12 website, but it can help you with the basics already. Check it out.

.
rose is offline   Reply With QuoteReply With Quote
Old 08-28-2007, 01:26 PM #45
cat265 cat265 is offline
Member
 
Join Date: Aug 2007
Location: New York
Posts: 143
15 yr Member
cat265 cat265 is offline
Member
 
Join Date: Aug 2007
Location: New York
Posts: 143
15 yr Member
Default

Hi rose, thank you for all your valuable info. I have one more question. I have been noticing that alot of people who are getting shots of b12, that there level seem to be moving up rather slowely. I had blood drawn on 8/16/07 started taking the b12 sublingal the next day. (took them almost everday, may have missed a few) At that time my level was said to be 293 on 8/27/07 I was told my level went up to 346. This seems like a big jump. But I don't feel anybetter. Is it normal to have the number go up so quickly just by taking the sublingal?
cat265 is offline   Reply With QuoteReply With Quote
Old 08-29-2007, 01:15 PM #46
rose rose is offline
Member
 
Join Date: Aug 2006
Location: Northern California
Posts: 732
15 yr Member
rose rose is offline
Member
 
Join Date: Aug 2006
Location: Northern California
Posts: 732
15 yr Member
Default

People increase their B12 result at different rates, depending on degree of malabsorption (apparently yours in not severe); whether the first B12 result did not accurately show the level of deficiency (which frequently is the case; how efficiently a person transports, stores and uses the B12.

I am not at all surprised that yours rose that much. It looks like you malabsorb but not severely (yet?). In fact, that wouldn't shock me if you were swallowing 1000 mcg cyanocobalamin daily.

Most people do better on the daily oral regimen of at least 1000 mcg than with the usual shots regimen. In fact, many people dip down into a questionable range before their next shot. The constant daily building is usually better.

Just because your body is getting some of the B12 it needed/needs does not mean you necessarily feel different yet. Sometimes it takes quite a while, and it is not at all uncommon for it to take weeks to feel the first difference. The damage is not repaired instantly--generally it took quite a while to occur and will take months to years to repair as much as possible. Your not seeing the results of work your body is doing does not mean your body isn't making progress. Even after your stores have been replaced to overflowing, the body still has to heal.

rose
__________________
I will be adding much more to my B12 website, but it can help you with the basics already. Check it out.

.
rose is offline   Reply With QuoteReply With Quote
Old 08-30-2007, 07:51 AM #47
cat265 cat265 is offline
Member
 
Join Date: Aug 2007
Location: New York
Posts: 143
15 yr Member
cat265 cat265 is offline
Member
 
Join Date: Aug 2007
Location: New York
Posts: 143
15 yr Member
Default

You seem to know as much as Sally Pacholok, the auther of Could it be B12? But just in case your interested she has a new blog, I just found it yesterday.

www.fightB12deficiency.blogspot.com

Iam making one more attempt at getting the shots, I have an appointment today with a DO who gives b12 shots in his office. Although my level seems to be rising, I guess I am to impatient to wait. If he dose not see a reason the give them go me than so be it. I will just do as you say, continue with the methly b12 and add other b's and suppliments.
cat265 is offline   Reply With QuoteReply With Quote
Old 08-30-2007, 11:59 AM #48
rose rose is offline
Member
 
Join Date: Aug 2006
Location: Northern California
Posts: 732
15 yr Member
rose rose is offline
Member
 
Join Date: Aug 2006
Location: Northern California
Posts: 732
15 yr Member
Default

Thank you. I'm very happy to see them working on this issue. I wish, however, that they would say "it can cause" instead of "it causes dizziness, weakness, and problems with balance," because this wording will cause at least some to believe they don't have the problem if they don't have one or more of those symptoms.

By the time I experienced problems with balance I had been deficient a long time. And dizziness and weakness is definitely not a complaint of many prior to serious damage.

The emphasis on elderly people in many places is very sad. As bad as it is that elderly people are allowed to deteriorate unnecessarily, it is even more tragic that the emphasis on older people causes young and middle aged people to be even more likely to go untreated.

B12 deficiency can happen to anyone, at any age. Please help spread that message.

Good work!!! Gives me hope that there are more of us working on this long enough and we will get the message through someday.

Good. Hang in there.

rose
__________________
I will be adding much more to my B12 website, but it can help you with the basics already. Check it out.

.

Last edited by rose; 08-30-2007 at 12:33 PM.
rose is offline   Reply With QuoteReply With Quote
Old 08-30-2007, 12:34 PM #49
rose rose is offline
Member
 
Join Date: Aug 2006
Location: Northern California
Posts: 732
15 yr Member
rose rose is offline
Member
 
Join Date: Aug 2006
Location: Northern California
Posts: 732
15 yr Member
Default

I have edited the above post. Haste makes waste, and I shouldn't have posted without enough time to do it right!

rose
__________________
I will be adding much more to my B12 website, but it can help you with the basics already. Check it out.

.
rose is offline   Reply With QuoteReply With Quote
Old 08-31-2007, 04:45 PM #50
cat265 cat265 is offline
Member
 
Join Date: Aug 2007
Location: New York
Posts: 143
15 yr Member
cat265 cat265 is offline
Member
 
Join Date: Aug 2007
Location: New York
Posts: 143
15 yr Member
Default

Well I saw a DO the other day. He was very nice and so far the most knowledgabe dr. I have seen for B12. He did agree to give me shots every 2 weeks. I know that is not enough. I seemed to have ****** off all the other dr's so I held off saying anything until next visit. He also took blood and wants to check for celiac and lupus. I think he really thinks I have celiac. In the mean time Iam taking my b12 everyday and other suppliments. I will post back after my next visit.
cat265 is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Vitamins & Supplements Opinions Please ann-elizabeth Peripheral Neuropathy 15 07-03-2007 10:51 AM
K-9 immunity vitamins snoozie Pets & Wildlife 1 06-17-2007 10:16 AM
Vitamins better at night? nursegirl Peripheral Neuropathy 5 05-11-2007 04:12 PM
vitamins and rashes be careful cybil_who Vitamins, Nutrients, Herbs and Supplements 15 10-11-2006 08:19 PM


All times are GMT -5. The time now is 03:11 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.