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Old 02-25-2008, 03:48 AM #4
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crytears crytears is offline
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Join Date: Sep 2006
Location: eagle creek oregon
Posts: 165
15 yr Member
crytears crytears is offline
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Join Date: Sep 2006
Location: eagle creek oregon
Posts: 165
15 yr Member
Default My experiences...

I was near death...least thats what is my opinion...back in 2004.
I'd been bedridden 100% for half year, had shooting electric shock down my spine anytime I moved my chin to chest...
Sock glove pattern of Peripheral Neuropathy...EMG and NC test proved moderate sock glove patter.
If I walked to the toilet, had to use a walker...my balance was also way off.
I usually just wore a diaper during the night.
I was so fatigued I could hardly sit up in bed...had hard time chewing and swallowing...
and so fatigued I couldn't even take care of my own personal grooming...
my husband works from our home and took care of me...
when he had to leave out of town he hired full time in home care for me.
I didn't drive for over 6 months, I was THAT fatigued.
I needed assistance just to take a shower or brush my hair or teeth.
I'd often just beg them to just leave me alone, let me rot I was so fatigued.
Long story...but I'd had years of severe anemia, had 2 bowel resections.
I also had an AVM...is an anuerism like mass, but mine was intestinal...usually is found in the brain or spine...lucky me!
I begged God to just allow me to die then as I was suffering.
I did have some bouts of "energy" if you can call being able to flush your own toilet energy!
Between naps I'd use my lap top to research why I had Neuropathy so bad...
thats when I found Brain/Neuro Talk Rose and Mrs D who helped urge me to take Methyl B12f....
I was told my level of 232 was normal....what????
They claimed my fatigue was just Fibromylagia (Ive had that for years and this was differnt!)
They also suggested was depression or lazyness...one doc said I just needed to put on some lipstick and perhaps I'd feel better!
A Rhruematologist up at the med school honest to God, said this to me...what an idiot!
I didn't have the muscle strenght, energy to brush my hair let alone put on lipstick!
Whats that joke...can put lipstick on a pig...its still a pig!...LoL!...oink!
I'd been drinking a suppliemnt loaded with B12 the day I had my blood drawn,
so probably was a big fat zero....so who knows!
I began taking Methyl B12, Jarrow brand Sept 3, 2004.
Within 10 days I was able to get out of bed and help my helper wash a load of clothing.
I don't recall any type "feelings" when taking the B12....just was 10 days later I felt like I was back to being a human being again.
That was the beging of a new journey and I'm no longer bed bound.
By Thanksgiving time I had enough energy to decorate a Christmas tree for Providence Hosp Festival of trees...my tree auctioned off for $7,100, money going to help disadvantaged peoples medical treatments. Of course I had help, but least I did it!
Its not been easy...the repairs my body keeps making.
I've also gone Gluten free and all my diarreah and bowel symptoms majically disappeared! After 25+ years of diarreah...being told it was Crohns disease. Wow!...but I still struggle with other issues...recent DX of Polymyosisits...but I'm wondering how vit, mins deficiencys play into what I'm feeling.
I had my doctor do vit D test...sure enough....came back low! And I'm suppliemnting with it!
Also taking MSN too...gosh, what else do I need to take?
Anyway...Matthew...keep taking the Methyl B....shots aren't as effective!
My EMG went back to normal JUST with Methyl B12 in less than 2 months!
And I didn't have b12 shot for very long time...I have the shots now, because I'm lazy and forget to take the Methyl...
I try to do both....ouch!...I dont' know why I'm so lazy about taking the suppliments...but is easy to give myself the shots...cheep too!
Blessings
A pictures worht a bazzilion words...here's a few that describe my fatigue!
Attached Images
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__________________
No well behaved woman ever made history!
I am forced to take one day at a time....God won't let me fast foward through the bad times
.
Still life is worth living no matter how bad my pain is....there will be a better day....I tell myself this often, and the sun breaks through the clouds...and I smile!
.

Last edited by crytears; 02-25-2008 at 04:07 AM.
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