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Old 05-01-2009, 02:50 AM #1
ALASKA MIKE ALASKA MIKE is offline
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ALASKA MIKE ALASKA MIKE is offline
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Default mrsD----vitamin d? and testosterone?

i saw in another thread that inactive D2 ergocalciferol is not that good and D3 is better. when i was taking 50,000 a week my vitamin d was (28). now its (53) i take 100,000 a week of ergocalciferol.. the chart says between 32 and a 100 is what you want. since i am in constant pain with crps/rsd i have to take more than others do. if i switch to d3, would i have to take 100,000 still? what number( ) should i be looking for with my condition? since i am at 53 my doc says i am ok but would it be ok to be closer to 100. i ask because i read the mayo clinic study you posted on another thread that says the higher the vit d the lower the pain meds needed?

what benifit do i get with testosterone. mine is extremly low. i was put on the highest patch for a few months and it brought me up to 61 so it did not work, so they switched to injections twice a month and it barely got me into the zone. but i stopped all injections 2 months ago. including my b12 injections twice a month(2000cc)each. today my b12 was 845 and testosterone is 214. chart says 241 to 847 is where i should be.
i dont want to go back to injections unless my body needs testosterone for something. do i need it???
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Old 05-01-2009, 07:23 AM #2
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mrsD mrsD is offline
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I think you can try the B12 oral tablets. A reading in the 800's is okay. But you don't know at this time if you are coming down, or stable at it.

I have a B12 thread in the stickies now at PN board. Please read that:
http://neurotalk.psychcentral.com/thread85103.html

New studies show oral works just as well as injectable.
Most of us get our B12 online and use the active form methylcobalamin.

I'd try taking D3 4000 to 5000IU daily. This is what they are doing in Australia today:
http://neurotalk.psychcentral.com/thread81900.html
Lara put that video up, and it is very interesting and helpful.

The Vit D info is pretty new. All the doctors are getting CME on it, and still there is confusion about D2 vs D3.

This link has most of the info on it...and there is alot.
http://www.vitamindcouncil.org/

RSD has associated with it, a calcium metabolic problem.
You know the papers I've found about treating early RSD that have calcium channel antagonists as treatments reflect the
actions of calcium that are abnormal during RSD. I have not been able to figure out how this calcium thing is related to RSD to the extent that I am comfortable with the very high dose Vit D
research. But since your own doctor advises raising it for you, I'd go ahead with the D3. Just keep an eye on your pain levels etc while doing it.

The testosterone effects...are you on opiates? This effect is pretty much standard for males on high dose long term opiate treatments for chronic pain. It has to do with opiates/receptors in the pituitary/hypothalmus area. Those testosterone injections have to be painful. They are depot shots.
Testosterone works in males to keep bones strong (like estrogen for females). Also important for muscle mass maintenance, and strength. Sexual functioning is obvious.
If you don't want the shots, I'd still use the topical gel forms to keep it at some level, even if you can't get optimum levels with it. This will protect your spine, and hips etc from osteoporosis.

Do the best you can at this point. The new studies are NEW, and suggestive. I myself am using 4000IU of D3 daily, during the winter, and not during the summer. I have found it to be useful for myself. You can maintain B12 with oral tablets, and they don't cost much.
So far looks like you are doing an adequate job of it.
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Old 05-01-2009, 04:26 PM #3
ALASKA MIKE ALASKA MIKE is offline
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thanks for taking the time mrsD....


yes i am on high dose of opiates for cronic pain. but i think i might wait on getting more testosterone injections because of my full body rsd/crps and injections flare me up....i will ask about the gel next time i see my doc..

i will look into the D3 and take b12 orally.

thanks again

mike
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