ALS For support and discussion of Amyotrophic lateral sclerosis (ALS), also referred to as "Lou Gehrig's Disease." In memory of BobbyB.


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Old 02-23-2008, 01:01 PM #1
mindyandy420 mindyandy420 is offline
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Default I have a question

Here are my sx. could you please give me some advice.

Sx started in November:
Tingly, numbness, pins and needles, burning, muscle twitches, cog fog, memory problems, myclonic jerks(sp), internal shaking, vibrating, dizziness.

Sx have been coming and going for months now. I have had an EEG & SSEP & MRI which are all normal. I am having an EMG next week. I was just wondering if my sx match ALS. I'm scared and dont know what is going on with me. I was leaning toward MS but no test point that way.

Thank you for you opinioin.
Mindy
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Old 02-24-2008, 12:09 PM #2
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I’d go to a reputable chiropractor. It might be a pinched nerve.
Bill
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Old 02-24-2008, 02:05 PM #3
mindyandy420 mindyandy420 is offline
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Thank you for your reply. I dont know whats wrong with me. My sx could be anything.
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Old 02-24-2008, 02:37 PM #4
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I would also get a full endocrine work-up. Sometimes thyroid, adrenal or sex hormone deficiencies can manifest similarly. Also make sure to get your iron and b12 and folate checked. B12 can also have similar sumptoms.

Try not to let the fear get the best of you. And don't jump to conclusions. Fear will make anything seem worse. Keep trying to figure it out with a doc's help.
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Old 03-10-2008, 01:09 AM #5
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Default This IS scarey...I know...

I too was terrified when I had symptoms that added up to MND...I struggled for a very long time...muscle weakness, fatigue, muscle twitching, burning, loss of balance, slow mentation, difficulty swallowing, drueling, hoarse voice and more.
It was a multi faceted disease/symptoms, vit/min defieincy, mostly B12 deficiency causing most of these symptoms.
Once I began taking the proper form of it, Methylcobalamin with urging of Rose here on Vit/Min Def forum....
once I began taking the Methyl B12 I began to heal...
its been 4 years now, I guess I wouldn't be around now if it had been a MND...but then I wonder because I still struggle with the same symptoms only not anywhere near as bad.
But there are times I get frightened. Life on Planet earth is never fair, but I'm not the only person suffering. There are many, much much worse than me and there are many children who'se lives are cut short and suffer much worse than many of us.
Life is just too hard and unfair for a lot of people.
I only look to the Lord to hold me till this trial is over or my body laid to rest till He returns for all of us!
I'm sorry you're suffering...I know exactly how you feel. I'm glad I didn't carry thru with my plans for ending my life...I was SO terrified and scared, but is natural way to feel when your life isn't whole as it should be.
Blessings, CryTears
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Old 03-10-2008, 02:36 AM #6
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Quote:
Originally Posted by mindyandy420 View Post
Here are my sx. could you please give me some advice.

Sx started in November:
Tingly, numbness, pins and needles, burning, muscle twitches, cog fog, memory problems, myclonic jerks(sp), internal shaking, vibrating, dizziness.

Sx have been coming and going for months now. I have had an EEG & SSEP & MRI which are all normal. I am having an EMG next week. I was just wondering if my sx match ALS. I'm scared and dont know what is going on with me. I was leaning toward MS but no test point that way.

Thank you for you opinioin.
Mindy
Mindy!
Mindymindymindy!

I don't know much about ALS, but I do have the MS. And your symptoms mirror mine.
A few keys at this point; try to keep stress at bay and be patient. Many people are in the "limbo". Waiting for the docs and science to pin down a diagnosis. Please continue posting because...

You are not alone.
You are one of us.
And we are here to help.
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*I* am the MonSter that MS fears
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Old 03-10-2008, 10:59 AM #7
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These symptoms also sound like RSD/CRPS.... many symptoms mimic other disease and syndromes.... Did you have an injury??? Not that it matters... RSD can start for no known reason.

I wish you the best and hope you find an answer soon!!!

Abbie



Quote:
Originally Posted by MooseasaurusRex View Post
Mindy!
Mindymindymindy!

I don't know much about ALS, but I do have the MS. And your symptoms mirror mine.
A few keys at this point; try to keep stress at bay and be patient. Many people are in the "limbo". Waiting for the docs and science to pin down a diagnosis. Please continue posting because...

You are not alone.
You are one of us.
And we are here to help.
Quote:
Originally Posted by mindyandy420 View Post
Here are my sx. could you please give me some advice.

Sx started in November:
Tingly, numbness, pins and needles, burning, muscle twitches, cog fog, memory problems, myclonic jerks(sp), internal shaking, vibrating, dizziness.

Sx have been coming and going for months now. I have had an EEG & SSEP & MRI which are all normal. I am having an EMG next week. I was just wondering if my sx match ALS. I'm scared and dont know what is going on with me. I was leaning toward MS but no test point that way.

Thank you for you opinioin.
Mindy
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