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Originally Posted by heb1212
Hi, Susanne... If you monitor your posts, I wonder what your experience with bone and muscle pain has been. I've had body wide neuropathy for two years now, and the muscle pain is crazy bad. At least I think it's muscle pain. It's definitely different than the nerve pain and seems to be the muscles, though it's not a normal muscle pain like from over working or pulling a muscle. It's crazy pain in the major muscle groups. I thought the neuropathy was bad enough, then this kicked in big time a year ago. Has your neuropathy been determined to be length dependent or not? Gosh, so sorry you're a member of this most unfortunate "club". The info from here and kind responses of others helps keep me sane.
Cathy
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I understand what you mean about the muscle pain when I just quit taking Gabapentin 300 x 4 times a day. I would not suggest that anybody try this at all but I can only tell you I took it for a few years and it started to make my urine smell very sweet and my pain was so bad I just quit cold turkey and I felt better in about a week. I don't think it helped me much at that high dose like it does some people because of it did not help my pain. But after a month or so I started taking 1 300 mg a day and maybe it did help with the spasms and I wonder now if I messed up by starting it again because my urine smells sweet again even after 1 a day for a few weeks. I am not a diabetic, but I have concerns what long term use can have on the liver and kidneys. For me it has been very hard to figure out . Some days the pain gets me and somedays I can can beat the pain. When the flare ups hit its bad but I'm still here thanks to God! You hang in there it can and will get better! Peace!