Quote:
Originally Posted by heb1212
Hi, Susanne... If you monitor your posts, I wonder what your experience with bone and muscle pain has been. I've had body wide neuropathy for two years now, and the muscle pain is crazy bad. At least I think it's muscle pain. It's definitely different than the nerve pain and seems to be the muscles, though it's not a normal muscle pain like from over working or pulling a muscle. It's crazy pain in the major muscle groups. I thought the neuropathy was bad enough, then this kicked in big time a year ago. Has your neuropathy been determined to be length dependent or not? Gosh, so sorry you're a member of this most unfortunate "club". The info from here and kind responses of others helps keep me sane.
Cathy
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I understand what you mean about the muscle pain when I just quit taking Gabapentin 300 x 4 times a day. I would not suggest that anybody try this at all but I can only tell you I took it for a few years and it started to make my urine smell very sweet and my pain was so bad I just quit cold turkey and I felt better in about a week. I don't think it helped me much at that high dose like it does some people because of it did not help my pain. But after a month or so I started taking 1 300 mg a day and maybe it did help with the spasms and I wonder now if I messed up by starting it again because my urine smells sweet again even after 1 a day for a few weeks. I am not a diabetic, but I have concerns what long term use can have on the liver and kidneys. For me it has been very hard to figure out . Some days the pain gets me and somedays I can can beat the pain. When the flare ups hit its bad but I'm still here thanks to God! You hang in there it can and will get better! Peace!
08-25-2013, 04:41 AM
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