[MuonOne]

This post is to suggest patients with Amyotrophic Lateral Sclerosis may be able to obtain official copies of relevant journal papers with their insurance company paying for, or reimbursing the costs for official copies. In most situations, Stand of Care provides the patient with an outright cure for their medical issue. When there is no cure however, patients are Research Medicine patients rather than Standard of Care patients and need to 'wise up' about medical practices and frontier characteristics in order to decide whether to participate in clinical studies and improve the value of their participation in research proceedings, which may only be possible through review of official journal papers. Try to get a real hardcopy of papers or journal editions rather than electronic ones. After you have mastered them you could donate them to hospital or academic libraries, increasing the chance academicians and medical staff will read them. Since Amyotrophic Lateral Sclerosis is a rare disease many such libraries have very 'real time' information about actual ongoing research. Standard of care covers everything a patient needs to know but not everything is known for research patients (such is the reason for the research).