Hi everyone, I am so glad that I found this site...but now that I'm here, I'm not really sure where I belong...because I'm not yet diagnosed with anything.

Although my GP was initially concerned I may have MS, so far my MRI's have been basically negative. Perhaps it's something else?

I am currently under the care of a GP, an ophthamologist, and a neurologist. All have mentioned the possiblility of MS, but they don't have real "proof" of anything...and I'm not sure that much else has been ruled out, either. I've had two (relatively) clear MRIs in the past two years, but I have Babinski's sign in both feet, and a few other obvious signs and symptoms. I'm scheduled for two types of evoked potentials tests on July 13th, 2009. I hope that something helpful shows up.

...in order to share why I'm here, I've included (below) the general info that I used in order to introduce myself on the main "welcome" forum (and the MS forum) a couple of days ago:

I don't have a diagnosis yet, but have several symptoms that are neuropathic. In the fall of 2007 I developed double vision. I've also been having muscle twitches for more than 3 months now...every day, all day. I get sharp 'electric' type pain sometimes down a limb. Sometimes my feet go numb, sometimes my hands tingle. I have had a rash on my face for about 10 years now. I was told it was rosacea though. I have some hair loss too. There's more, but I think those are my main symptoms.

My mom has primary progressive multiple sclerosis. She is 56 years old and has lived in a nursing home for 10 years already. I have two aunts that were diagnosed with SLE (Lupus)...both on my dad's side of the family. One is struggling with lung problems mostly, and the younger aunt (58 years old) passed away due to Lupus in April 2009.

I don't know what I have, but it would be good to find out. I'm hoping to learn from those on this forum...about their lives and the roads to (and beyond) their diagnosis.

...please let me know your suggestions, in terms of asking for certain tests and also just general medical info that I should know about. What symptoms did you present with...and how long did it take to get a diagnosis? Should I be seeing a rheumatologist...or just stick with the professionals already involved in my care?

Thank you for taking the time to read my long post.

Kind regards,

Jayne