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Old 12-04-2009, 12:09 AM #1
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Default just rambling

I've been trying to pick myself up and keep going but I have had zero luck...

I'm so tired all the time and have no energy.
My mind is racing but not much makes sense.
I don't get out of bed unless I have too and then I go right back....
I am hardly eating... maybe a sandwich a day...


This has nothing to do with me being sick lately... I've felt this way for the past couple of months... with the holidays arriving I just feel like crawling deeper into my hole.

Thanks for letting me ramble...

Abbie
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Old 12-04-2009, 12:14 AM #2
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Dear Abbie,
Oh how I hear you....
The depression monster has his gripes on you.
staying in bed all of the time is jsut awful.
I understand that your bed is a comfort when you are in so much pain all of the time....
I wish that I could give you a real hug and we could be neighbors....maybe I could distract you from your pain.
aren't there non narcotic pain relievers out there?
((((((GENTLE HUGS ))))))
bizi
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Hattie the black and white one wrestling with hazel, calico. lost hattie to cancer.....
Happiness is a decision....

150mg of lamictal 2x a day
haldol 5mg 2x a day
1mg of cogentin 2x a day
klonipin , 1mg at night


I will not give up in this weight loss journey, nor this need to be AF. 3-19-13=156, 6-7-13=139, 8-19-13=149, 11-12-13=140, 6-28-14=157, 7-24-14=149, 9-24-14=144, 1-12-15=164, 2-28-15=149, 4-21-15=143, 6-26-15=138.5, 7-22-15=146, 8-24-15=151, 9-15-15=145, 11-1-15=137, 11-29-15=143, 1-4-16=152, 1-26-16=144, 2-24-16=150, 8-15-16=163, 1-4-17=169, 9-20-17=174, 11-17-17=185.6, 3-22-18=167.9, 8-31-18= 176.3, 3-6-19=190.8 5-30-20=176, 1-4-21=202, 10-4-21= 200.8,12-10-21=186, 3-26-22=180.3, 7-30-22=188, 10-15-22=180.9,
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Old 12-04-2009, 12:17 AM #3
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I am in chat if you feel like it.....
bizi
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.
Hattie the black and white one wrestling with hazel, calico. lost hattie to cancer.....
Happiness is a decision....

150mg of lamictal 2x a day
haldol 5mg 2x a day
1mg of cogentin 2x a day
klonipin , 1mg at night


I will not give up in this weight loss journey, nor this need to be AF. 3-19-13=156, 6-7-13=139, 8-19-13=149, 11-12-13=140, 6-28-14=157, 7-24-14=149, 9-24-14=144, 1-12-15=164, 2-28-15=149, 4-21-15=143, 6-26-15=138.5, 7-22-15=146, 8-24-15=151, 9-15-15=145, 11-1-15=137, 11-29-15=143, 1-4-16=152, 1-26-16=144, 2-24-16=150, 8-15-16=163, 1-4-17=169, 9-20-17=174, 11-17-17=185.6, 3-22-18=167.9, 8-31-18= 176.3, 3-6-19=190.8 5-30-20=176, 1-4-21=202, 10-4-21= 200.8,12-10-21=186, 3-26-22=180.3, 7-30-22=188, 10-15-22=180.9,
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Old 12-04-2009, 12:46 AM #4
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Dear Abbie,
I am so sorry.
Are there things you can do that comfort you?
I don't know where you live, but do you get some sun?
Have you ever tried to sit out in the sunlight?
If not then having yellow light with a 100 watt bulb on the bed side lamp also helps when you are in bed.
And if it is cold then an actual archaic hot water bottle feels good.

These episodes are terrible. Just the thought of maybe having to go through a time like that again scares me.

Take care Abbie, and write to us as often as you can.
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My blog:

I started to write so I could keep a track on my thoughts. This particular Lupus flare has turned my life on its head. Although I am pretty content with this enforced solitude, I have a constant dialogue going on within myself. So I thought I'd write it all down.


.


I hope you enjoy reading it when you can.
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Old 12-04-2009, 12:52 AM #5
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I know what you mean abbie. It's a difficult thing to endure. This time of the year seems to make those feelings worse. BF
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Old 12-04-2009, 03:15 PM #6
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Quote:
Originally Posted by bizi View Post
aren't there non narcotic pain relievers out there?
bizi
I've tried Tramadol but it does NOTHING for the pain.... I know I've tried a couple of others but can't remember the names but they didn't work either. If there is anything new I haven't found it yet.



Quote:
Originally Posted by Isis View Post
Dear Abbie,
I am so sorry.
Are there things you can do that comfort you?
I don't know where you live, but do you get some sun?
Have you ever tried to sit out in the sunlight?
If not then having yellow light with a 100 watt bulb on the bed side lamp also helps when you are in bed.
And if it is cold then an actual archaic hot water bottle feels good.

These episodes are terrible. Just the thought of maybe having to go through a time like that again scares me.

Take care Abbie, and write to us as often as you can.
I really don't find comfort in anything any more....
It's mostly cloudy, gray, and cold here this time of year. I've tried the sunlamps but can't stand them...they put off too much heat.
Unfortunately for me both cold and hot hurt!!

I hope I don't come off as whining... I'm not... my reality just bites.
__________________
My avatar pic is my beautiful
niece Ashley!

.
Rest in Peace
3/8/90 ~~ 4/2/12
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Old 12-04-2009, 06:37 PM #7
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Sending some gentle hugs.

Donna
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Old 12-04-2009, 07:05 PM #8
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dear abbie,
do you post on the chronic pain forum?
they may have some different ideaswhat about the pain patch fentynl duragesic, not use if that is a narcotic or not.
(((((HUGS)))))
bizi



it is an opiod.....
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.
Hattie the black and white one wrestling with hazel, calico. lost hattie to cancer.....
Happiness is a decision....

150mg of lamictal 2x a day
haldol 5mg 2x a day
1mg of cogentin 2x a day
klonipin , 1mg at night


I will not give up in this weight loss journey, nor this need to be AF. 3-19-13=156, 6-7-13=139, 8-19-13=149, 11-12-13=140, 6-28-14=157, 7-24-14=149, 9-24-14=144, 1-12-15=164, 2-28-15=149, 4-21-15=143, 6-26-15=138.5, 7-22-15=146, 8-24-15=151, 9-15-15=145, 11-1-15=137, 11-29-15=143, 1-4-16=152, 1-26-16=144, 2-24-16=150, 8-15-16=163, 1-4-17=169, 9-20-17=174, 11-17-17=185.6, 3-22-18=167.9, 8-31-18= 176.3, 3-6-19=190.8 5-30-20=176, 1-4-21=202, 10-4-21= 200.8,12-10-21=186, 3-26-22=180.3, 7-30-22=188, 10-15-22=180.9,
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Old 12-04-2009, 07:41 PM #9
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Abby,

I hear ya, understand what you are saying. A hug can share what I can not express. You sum up a lot of my life. I try to keep busy, it coverups the deep emotions and drain on the spirit. Gets overwhelming too.
I really would so like to crawl under a rock lately. This getting dark just after 4 pm really takes a huge blow.

Family doc says the chronic fatique syndrome is from years of pain takes the toll on they body and no answer for that. Not a good enough answer, takes too much away from life. Like you say only getting out of bed, or for me getting off the recliner when I need to. So hard with all I have going on. The mind is willing it is they body that fails me, which makes the mind said, stressed and cluttered.

I have a lamp from Home depot, or was it Boscov's. I do notice that I "like" it. There is no heat, not a lightbulb, one of those that are said to simulate sunlight. It is on a base with the arm that comes over my work area. My recliner. I do not have it on me directly, it is near my feet....I live in my recliner. It is broke.....I have slept in it for several years now.
di
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Last edited by DiMarie; 12-04-2009 at 08:10 PM.
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Old 12-04-2009, 10:51 PM #10
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hugs to you too di
((((((HUGS)))))
bizi
__________________

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Hattie the black and white one wrestling with hazel, calico. lost hattie to cancer.....
Happiness is a decision....

150mg of lamictal 2x a day
haldol 5mg 2x a day
1mg of cogentin 2x a day
klonipin , 1mg at night


I will not give up in this weight loss journey, nor this need to be AF. 3-19-13=156, 6-7-13=139, 8-19-13=149, 11-12-13=140, 6-28-14=157, 7-24-14=149, 9-24-14=144, 1-12-15=164, 2-28-15=149, 4-21-15=143, 6-26-15=138.5, 7-22-15=146, 8-24-15=151, 9-15-15=145, 11-1-15=137, 11-29-15=143, 1-4-16=152, 1-26-16=144, 2-24-16=150, 8-15-16=163, 1-4-17=169, 9-20-17=174, 11-17-17=185.6, 3-22-18=167.9, 8-31-18= 176.3, 3-6-19=190.8 5-30-20=176, 1-4-21=202, 10-4-21= 200.8,12-10-21=186, 3-26-22=180.3, 7-30-22=188, 10-15-22=180.9,
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