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03-09-2013, 01:34 PM | #11 | |||
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Legendary
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Brain,
your insurance should cover a new prescription with new posology, but I agree you should call your pdoc and talk to him about it asap. if he doesn't want you to be taking 2mgs just yet the sooner you know the better - he will advise on the change to make if any, and i'm sure he will provide a new script. the sooner you call him the better though, because if there is an issue with the insurance, hopefully you'll have time to enlist your pdoc's help in resolving it. if, in the worst scenario, your ins will not cover the new script, please do have your mom pay for the script. whatever you do, please do not skip or reduce the med back to 1mg. doing this could cause szs even in someone who doesn't ordinarily have szs - and you do. hang in there and good luck with everything! ~ waves ~ |
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"Thanks for this!" says: |
03-09-2013, 04:05 PM | #12 | |||
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Member
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Yeah, you are right waves. Now that I have upped it I am going to have to stay that way until I talk to him. I just did not know what to do. The seizures are bad and they cause a lot of anxiety. I assume when you guys say p doc you are talking about a psychiatrist? I really need to get myself one of those. The only doctor I have been going to is a pain specialist until recently when I had my first seizure. I went to a neurologist who diagnosed me with post concussive syndrome manifested by cognitive impairment and chronic pain. As well as REM sleep behavior disorder or/and nocturnal frontal lobe epilepsy. This neurologist told me to go get Neuropsychological testing to determine my level of disability for the purposes of being approved for disability as well as to direct me tword the right kind of treatment for me. After the report from the neurologist my pain doctor had me go get an MRI of the brain. I have seen the report and it shows problems. So on Monday I have to go to the Neuropsychological testing for the second time and on Thursday I go to my regular doc who is the pain specialist.
Can you guys dig it? I know this is confusing. I have not been able to figure out how to get myself proper help with my brain injury. Brain
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Brain patch. . Had MVA in 2006 resulting in post concussive syndrome manifested by cognitive impairment, chronic pain/ fatigue. Chronic pain of head, neck, back, left leg. Other problems include REM sleep behavior disorder, nocturnal frontal lobe epilepsy, chronic migraines associated with nausea/vertigo, episodes of passing out, hypoglycemia, liver dysfunction (had accidental overdose of acetaminophen in 2009) had liver and kidney failure, hernia, degenerative disc disease with compression of nerve root, PTSD, and other problems associated with functioning problems from traumatic brain injury (light, sound sensitive, easily overloaded, easily distracted, cannot focus, anxiety problems etc.) |
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03-09-2013, 04:51 PM | #13 | |||
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Wisest Elder Ever
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LIving with your ill father would be stressful alone. Having medical issues yourself is compounding this stress. I hope that you get some answers and assistance...do you post on the disability forums here they may be able to help you sort thru things.
I am sorry that you are having to deal with this. Just so that you know klonipin is very inexpensive. bizi
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. Hattie the black and white one wrestling with hazel, calico. lost hattie to cancer..... Happiness is a decision.... 150mg of lamictal 2x a day haldol 5mg 2x a day 1mg of cogentin 2x a day klonipin , 1mg at night I will not give up in this weight loss journey, nor this need to be AF. 3-19-13=156, 6-7-13=139, 8-19-13=149, 11-12-13=140, 6-28-14=157, 7-24-14=149, 9-24-14=144, 1-12-15=164, 2-28-15=149, 4-21-15=143, 6-26-15=138.5, 7-22-15=146, 8-24-15=151, 9-15-15=145, 11-1-15=137, 11-29-15=143, 1-4-16=152, 1-26-16=144, 2-24-16=150, 8-15-16=163, 1-4-17=169, 9-20-17=174, 11-17-17=185.6, 3-22-18=167.9, 8-31-18= 176.3, 3-6-19=190.8 5-30-20=176, 1-4-21=202, 10-4-21= 200.8,12-10-21=186, 3-26-22=180.3, 7-30-22=188, 10-15-22=180.9, |
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"Thanks for this!" says: |
03-09-2013, 05:29 PM | #14 | |||
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Legendary
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Hi Brain
yes pdoc stands for psychiatrist. you might want to check out the Abbreviation's thread which is posted in the "sticky" section at the top of the (sticky threads are threads that stay at the top of the forum. we use other abbreviations too. not sure if sz is in there come to think of it... it's more an Epilepsy forum abbreviation - stands for seizure. szs plural. oops! Sorry, I think I said pdoc in my last post also, but just meant whomever prescribed your meds. I have actually been assuming you have a neuro as a pdoc would not be the one to dx or treat szs and REM sleep disorder. After you do the neuropsych testing it will be clearer how to proceed, but meanwhile do call your neuro on monday about upping the klonopin. Try to take things step by step. You'll get there. Your neuro sounds like a pretty helpful person. ~ waves ~ |
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"Thanks for this!" says: |
03-09-2013, 07:53 PM | #15 | |||
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Magnate
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Brian
Can you break it in half, for bed time and then when you get awake? I agree call the doc. If he changes your dose that new script will be covered as it is a change even if early. I have Valium for spasms, but I am not given it for anxiety, but for muscle spasms. It is not something that I would be perscribed every day. The Klonopin would, but it does not work in reverse to help spasms. I have no REM sleep.....and I am tired of dreaming about public restrooms. They are always dirty, unusable, or biker men in them. Two nights ago I opened a stall in the dream and it was spotless but no toilet in it. It was in a school and near the teachers lounge was a restroom, but had a frosted window and ill fitting door. Dd googled and it said about clutter in life that needs to be ridden and no privacy. Considered a common dream. Many times my dreams have bathrooms in them? Oh, dang...it was about Klonopin, over the weekend try to break in half to get through. I hope. The increase helps. Maybe he will add at least .5 more in the day time. Di
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. Pocono area, PA . . . |
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03-09-2013, 09:02 PM | #16 | |||
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Member
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Dimarie, that is funny that you have dreams about problem bathrooms. I also dream of that too. It makes sense to me when you looked up the meaning about having no privacy and clutter in life that needs to be addressed. I always dream about wild animals chewing on my leg because I have constant pain going down my left leg. With the REM sleep behavior disorder I act out my dreams and they are violent. This is when I sometimes have seizures. That is a good idea about the Klonopin -breaking them in half, that is what I will do until I see the doc on Thursday. Again, I would call but it would be useless they would say you need to come in and the soonest I can come in is Thursday.
Bizi thanks for telling me Klonopin is inexpensive as that relieves my mind if worse comes to worse. I have talked to the people on the disability forum. I have been denied at the ALJ level but I just started a new claim and I have evidence and new diagnosis and letters from specialist plus I will have the Neuropsychological Evaluation that I can turn in when I get done and I gave them a copy of my MRI which shows problems so I am hoping to get approved on the new claim. You are so right about it being stressful living with my father being so sick. I try not to be an additional problem but have not got the help I needed until just recently. I am just going to hope and pray for the disability because I am so stuck without any money. Pray for me you guys. Pray that I get approved on this claim. Thanks Waves your input is always great and you are a comfort to me. I appreciate your friendship. Much love to you all, hope everyone sleeps well tonight. Brain
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Brain patch. . Had MVA in 2006 resulting in post concussive syndrome manifested by cognitive impairment, chronic pain/ fatigue. Chronic pain of head, neck, back, left leg. Other problems include REM sleep behavior disorder, nocturnal frontal lobe epilepsy, chronic migraines associated with nausea/vertigo, episodes of passing out, hypoglycemia, liver dysfunction (had accidental overdose of acetaminophen in 2009) had liver and kidney failure, hernia, degenerative disc disease with compression of nerve root, PTSD, and other problems associated with functioning problems from traumatic brain injury (light, sound sensitive, easily overloaded, easily distracted, cannot focus, anxiety problems etc.) |
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03-09-2013, 09:04 PM | #17 | |||
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Legendary
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03-09-2013, 09:10 PM | #18 | |||
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Member
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Mari,
Don't worry I have a steady stream of the Klonopin until Thursday when I see the doctor. I am sure he will not leave me withdrawling as I have seizures. I would call but he is not the kind of doc you can call. They say that I have to come in (they can't miss out on their $85 a visit). Don't worry I am covered until the doctor appointment. Thanks for worrying about me though. I love you guys. Brain
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Brain patch. . Had MVA in 2006 resulting in post concussive syndrome manifested by cognitive impairment, chronic pain/ fatigue. Chronic pain of head, neck, back, left leg. Other problems include REM sleep behavior disorder, nocturnal frontal lobe epilepsy, chronic migraines associated with nausea/vertigo, episodes of passing out, hypoglycemia, liver dysfunction (had accidental overdose of acetaminophen in 2009) had liver and kidney failure, hernia, degenerative disc disease with compression of nerve root, PTSD, and other problems associated with functioning problems from traumatic brain injury (light, sound sensitive, easily overloaded, easily distracted, cannot focus, anxiety problems etc.) |
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03-09-2013, 09:26 PM | #19 | |||
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Legendary
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Thank you, Brain,
I was not sure if you were convinced how important it is to keep the Klonopin stream going. I do half remember some where (and I apologize for a non-quick brain) that the generic Klonopin is not as good at seizure control compared to the brand Klonopin. In general the generic is not consistent about other things either. People who are sensitive can tell the difference. For my purpose (anxiety related to sleep problems) Klonopin works well. I hope that it continues to work for you. M |
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"Thanks for this!" says: | bizi (03-10-2013), Brain patch (03-10-2013), DiMarie (03-10-2013), Dmom3005 (03-12-2013), mymorgy (03-10-2013) |
03-10-2013, 10:06 AM | #20 | |||
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Legendary
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Dear Brain
Quote:
You could try DiMarie's suggestion since it's only been a few days that you've taken 2.0 mg... i.e. take 1.5mg in divided doses - 1.0 at night as prescribed, + .5 in the am. ~ waves ~ |
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"Thanks for this!" says: |
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