[Dmom3005]

Kay

I would check into state law, but I'm pretty sure that they have broke there
own lease. By not providing hot water and other things. So I would
think about getting a place sooner than later.

Donna

[OhKay]

My neurologist called me this morning to tell me I have new lesions and am having a relapse (no surprises there). We discussed going back on a medication called Tysabri, which I've taken in the past, to try to reduce future relapses. While I don't have much faith in the med, and there's no evidence it will prevent the progression of symptoms like fatigue and/or cognitive problems (which aren't always related to new lesions/relapses), I agreed to go back on it because I think it will make my husband happy.

Taking TYSABRI(R) (natalizumab)

My neuro's secretary is going to start the paperwork today. I'll probably have to go to the office sometime soon to sign ****. I don't know how long the program and insurance company approval process will be, so I don't know when I'll have my first infusion. The last time I was on Tysabri, it was relatively new, so I had to drive into Boston. Now I'll be getting my treatments 10 minutes up the road.

As this episode resolves, I HOPE I can regain SOME KIND OF CONTROL back and can stop sleeping my life away, even though I know from experience I won't be able to get back to exactly where I was before.


We got hot water back around noon yesterday, but when I showered I quickly washed all the important things very quickly just in case we lost it again lol. Unfortunately I have to do that every time I take a a shower because I lose hot water so often.

The MA law regarding tenants' rights to hot water is pretty tough, but the catch is it gives the landlord 24 hours to make repairs after the tenant gives written notice. It also requires the landlord maintain the hot water delivery system in good working order. They would say they are constantly doing repairs to keep the system working no matter how it effects their residents.

What really ****es me off is they never provide us with any kind of notice when there is a maintenance issue and the water has to be, or will be shut off, or we won't have hot water.

The purpose of the paragraph in the lease regarding utilities is really for the protection of the landlord, but vaguely mentions they will provide us with heat and hot water. There's no out there. None.

[bizi]

I am glad that you are willing to try the medication again.
(((((HUGS)))))
sorry about your stinking apartment complex....grrr!!!
bizi

[OhKay]

I did laundry this morning because 1) we had water and 2) I wasn't concerned it would turn **** brown and ruin all our clothes. Just taking 4 trips up and down the hallway and folding 2 loads of laundry is tiring.

I just don't think I'm up to grocery shopping today, but no matter what, I will still have to go out because I need coffee and will have to go to the office because according to tracking, FedEx has delivered 2 packages I need there without buzzing me (I was home) or leaving me a notice.

[bizi]

I hope you were able to get some coffee today, a gal has to prioritize!
bizi

[OhKay]

I went out yesterday with the sole purpose of buying coffee, but forgot to buy it when I was at the store, and didn't realize it until my husband mentioned it hours later when it was too late for me to go back out
Fortunately, I still had the sample pack that came with my Keurig brewer. Unfortunately, only a couple of them were actually drinkable. So, I'm down several cups and am feeling it.

These memory lapses are EXTREMELY frustrating. I make A LOT of lists, but who makes a list when they are going out to buy ONE ****ING THING? Maybe I should have tied a ribbon on my finger?

I absolutely have to go grocery shopping today. I have a list, but I'll probably forget something anyway. That's my MO lately.

[bizi]

how frustrating!
bizi

[OhKay]

I dragged my ***, but did get the grocery shopping done yesterday. If I forgot something, I'm not missing it yet.

My husband said I left a burner on the stove on last night. At least there was nothing on the stove top and we have an electric. I forget to shut the oven off a lot, but it makes noise, so I eventually catch it sometime later. My husband was very upset with me. I need to be more careful.

We bought an air purifier several months ago to help with the cigarette smoke. It's not taking in air anymore. It's not an issue with the filters because they've been replaced. I have a warranty on it, but God only knows what I'll have to go through to get any satisfaction from that. We paid a couple hundred dollars for it, so I'm not willing to just let it go tho.

[bizi]

I am sorry about the burner. I always check all of the burners after cooking before we sit down to dinner because we sometimes leave the burner on, both of us do this sometimes so I have just made a habit of checking all of the burners before we eat. always.
It just takes getting into the habit.
I hope you are able to relax this weekend.
any ball games on?
bizi

[Mari]

Yikes about the burner but I can see how that would happen.

I hope you have decent luck with the air purifier.



M