I am glad that you survived thanksgiving.
Sorry you had to experience your sisters wrath or what ever you want to call it.:(
sigh
bizi
(((((HUGS)))))
You are such a strong a woman...:)

Yesterday was just a lousy day. I paid for everything I was able to do with my nervous energy over the previous two days, so I just felt miserable.

And the run in with my sister triggered me...
When I think about my mother's battle with cancer, I tend to think about it in its late stages (she passed away when I was 17). It's been many years since I've thought about what she, or I, went through when she was first diagnosed when I was 13, or the time in between (she had several brain tumors removed after that). It was a very traumatic time for me, and the start of a lot of problems for me, and it's not something I want to look back on. Fortunately, I have somewhat of a wall up there... so hopefully I can stop thinking about this soon so it doesn't shift my mood because things like this can shift my mood.

I am so sorry you had to live through that.
love
bobby and hugs

I am sorry you were triggered.
And I am sorry for you and your mom...:(
I hope you can rest today.
Hope you can get a good nap in.
(((((HUGS and love))))))
bizi

I got in a couple of 3 hour naps on Friday and Saturday, but my naps are seldom refreshing. I usually just sleep because I have to. That was the case this weekend. I've been able to sleep in a little longer this weekend, so that has been nice. I need the sleep.

I'm thinking a little less about the things I don't want to right now, and I hope that continues.

I just checked my calendar and saw that I have 2 doctor's appointments every week for the next 3 weeks... yay.

Hoping that you are still able to sleep with out spasms.
Maybe you could take a hit before your naps?
Would that help you sleep better for your naps?
what do you think?:o
What were the temperatures this weekend?
Is it getting to be cold?
It was lovely this weekend here.
I hope you have a nice day.
((((HUGS))))
bizi

Kay,

Thinking about you as a little girl and how much you faced.

Much love to both 1) you now and the 2) you back then.


M

Thank you, Mari :hug::hug::hug:

Thinking of you today.
(((((HUGS)))))
bizi

I am worried about you Kay.:heartthrob:
(((((HUGS)))))
bizi

I hope you are okay!
love
bobby

I'm okay... I'm sorry I worried you guys :hug::hug::hug:

I usually post early in the morning, but I've been sleeping later, and I had an appointment with the physiatrist at 10am Monday, and an 8:45am appointment with the shoulder guy yesterday.

I updated the physiatrist on everything going on. He would like me to do PT in the pool again, but I won't because being in a bathing suit would leave the terrible scars on my wrists and left arm exposed (I don't mind the PT seeing them so much as the other patients in the pool). I told him that the radiologist who read the CT of my abdomen I had for my kidneys remarked on the "scattered degeneration of the visualized skeleton," and he wants me to get him a copy of the CD so he can look at my hips and back. It's a pain in the ***, but I'm working on it.

The shoulder guy diagnosed me with rotator cuff tendonitis. I have to go to PT. He had trouble turning my neck in different positions during the exam, and it caused upper shoulder/upper back pain, so he said that a lot of the pain is probably from my neck, too. He is going to send a note to the neck ortho (who I see next week) suggesting he give me another injection in the left side of my neck. I think that would be the third on that side. Maybe the second. I can't remember.

Mood-wise I'm doing fine. I'm not thinking about anything I don't want to either, which is a very good sign :)

I am exhausted, feeling weak, and am in a lot of pain tho. I'm sleeping a lot. Hopefully if I get enough rest, I'll bounce back from all the crap I did for Thanksgiving soon. Hopefully, that's all it is.

I'm going grocery shopping today. I'm leaving the laundry until Friday.

Thank you for writing kay.
Hate to hear you are in so much pain alot of the time.
(((((HUGS)))))
bizi

Thanks Bizi :hug::hug::hug:

Yesterday I realized I have a sinus infection, which is probably part of why I've been sleeping so much. I don't want to go to the doctor... so many other appointments already... so I'm sitting here fighting with myself over what I'm going to do about it.

I am sorry you are sick, me too.
(((((HUGS))))
bizi

Fortunately for me, my PCP didn't have any appointments available, so he just called in an antibiotic for me. It was/is a big relief not to have to go in. I have to pick the script up today.

IDK... maybe some of my pain now is because I've been too sedentary/sleeping too much? It's a delicate balance. I do know that doing laundry today would be too much for me. Corey had a short work week last week, so there's less laundry, so I can get away with putting it off until Monday. I will be out and about running some errands today, so maybe a little activity will help? Or make things worse? I have no f***ing idea.

I've never had to contact a PT place myself to initiate therapy. The doctors' offices have always taken care of it for me in the past. I'll call the place today and ask them what I need to do. I may have to go through my PCP first. I'll be bringing my PT script somewhere today to get things rolling.

I've already picked up the CD with the CAT scan images the physiatrist wants to see. So I'll drop that off at his office today. I also need to drop off the rent check and pick up some cat litter somewhere...
And play the lottery! For the first time in over a year, I missed a day because I felt too shitty to go out.

And I'm sure after all that I'll be napping.

I hope you win the lottery!
and good luck with all of your errands. Glad that he called in an RX for your sinus infection. And I hope you feel better soon!
(((((HUGS))))
bizi

Swim wear: long sleeve swimsuit - Google Search

Some people are helped with gentle floor or chair exercises:


Are you o.k. with standing (I'm not so I do not remember). Tai Chi can work.
It can probably be done in a chair like yoga can.


YOu can do these seated exercises without the hand weights.
long sleeve swimsuit - Google Search

5 minute mobility: Do These 5 Exercises Every Morning - 5 Minute Mobility & Stretch Routine - YouTube


M

Swim wear: long sleeve swimsuit - Google Search

Some people are helped with gentle floor or chair exercises:


Are you o.k. with standing (I'm not so I do not remember). Tai Chi can work.
It can probably be done in a chair like yoga can.


YOu can do these seated exercises without the hand weights.
long sleeve swimsuit - Google Search

5 minute mobility: Do These 5 Exercises Every Morning - 5 Minute Mobility & Stretch Routine - YouTube


M

Thank you, Mari! I had no idea there were so many long-sleeve bathing suits out there!

I'm in no shape to do any type of floor exercises. Every time I've done PT for my lower extremities, they've put me in the pool, at least at first. At least now I know I CAN go in the pool if I decide I want to, but right now I have to deal with my shoulder.

I called the PT place and they told me to call my PCP's office and ask for a referral. I called and left a message with all the info, also asking whether or not I needed to bring them a copy of the PT script or not, but I never got a call back. I have my first PT appointment Monday. I hope the referral went through.

I didn't drop the CD off at the physiatrist's office yesterday, but I got everything else I needed to do done. I was thinking I should hold onto it until after my neck ortho's appointment because he does backs, too. But I don't plan on doing anything about my back anytime soon...
so I will drop the CD off at the physiatrist's office on Monday.

I'm really no better or worse off from running around yesterday, but I've started taking the Diclofenac (a prescription NSAID) again, and that helps a little. I hope it doesn't start tearing up my stomach like it did before...

Mine faxed it.

That's been my past experience, too. I've never had to deal with any of this crap before. I told them where I'd be going, so I don't know why they couldn't have just faxed it over there and/or to my PCP's office... however it's supposed to work.

I have to decide on, and sign up for, an insurance plan and a new PCP by Thursday. I think I need better coverage. I have soooo many medical problems. I have to go through a lot of plans to check their benefits and whether or not I could still see all my doctors. I should do that today, but I'm dreading it. It's going to be a lot of work, and will require a lot of patience, which I don't have.

The Pats play at 1pm today. That's something to look forward to.

Good luck with PT tomorrow!
Did your stomach get torn up with the RX NSAID happen when taking it with food/a meal?
So sorry that you have to change insurance plans, but I understand about needing better coverage....I think we missed the deadline to change our plan...sigh
Am hoping that your Pats play well today!
((((((HUGS)))))
bizi

My pain is MUCH BETTER today!!! :):):)

I want to enjoy feeling well (aside from the sinus infection) for at least a day, so I'm putting the laundry off AGAIN even though I know I'm screwing myself over and there will be a TON of clothes to haul to the laundromat tomorrow.

I can take the Diclofenac with an antacid, so I take it with food and 4 Gaviscon tablets. Right now my stomach is fine, but if I take it every day, it will cut up my stomach no matter how I take it, so I'm trying to take it sparingly.

I'm dreading going to PT today... I f***ing hate it. My appointment is at 2, which just makes matters worse.

I am so happy that your pain is better today!
good luck at pt....
((((HUGS)))))
bizi
who is wishing for more better pain control days for you.:hug::hug::hug:

That's good news, Kay.

I wish for you more good times.

M

So much for feeling better... between being poked and prodded at the PT eval, and doing laundry yesterday, I'm no longer feeling well.

I told the PT upfront I'm a train wreck.
She was very nice. I'm going to have to have PT on my neck and both shoulders (the acute problems are on the left side, but I have chronic issues on the right side). She wants me to go in the pool, but I've decided I'm not going to do that unless it's for my hips and back (hopefully no time soon).

I'm completely overwhelmed by all of the appointments I've had, and am going to have in the next couple of weeks...
3 this week
4 next week if I do PT twice a week if they want me to, and
3 more the following week if I have PT twice again
Hopefully nothing else comes up!!!

Not only do I have a $30 copay for all of these appointments, but they leave me no time to rest, since I still have to squeeze in cleaning, laundry and grocery shopping. I don't think I can keep up with everything... I will just drive myself into the ground.

I think I'm going to tell them that for at least the next 2 weeks, I'm only going to be able to do PT once a week.

I have to leave to go get my Tysabri infusion now :(
I hope I'm not there all day...

I hope that PT will eventually help you.
(((((HUGS)))))
bizi

Kay

Yes, I would definitely tell them for the next few weeks. You can't handle
more than once a week. I think I"d do it till at least the 8th of January.
After the holidays so you can not only rest but enjoy the holidays.

Donna :hug::grouphug:

I think twice a week is reasonable.
(((((HUGS)))))
bizi
You have so many things/responsibilities, what do you do just for you?
I hope you do more than just your nails once a week.
Do you ever get messages? Could you lay on the tables? ever feel comfortable doing that?
worry about you.
bizi

Thank you ladies :hug::hug::hug:

Bizi, I'm only going to do PT once a week for now. I will do my exercises at home tho so I don't fall behind.
I only get my nails done every other week. My manicure would hold up longer than that, but I like to switch colors.
Money is too tight to go for massages.
I got my haircut on Saturday, and colored my hair myself Monday (?).

I got up at 6am this morning, but was able to go back to bed until about 9. This is a new thing. I was never able to sleep in or fall back to sleep before I started smoking pot before bed. I need the rest, so it's a good thing, but I also feel a little lazy because of it. I haven't had any problems waking up to an alarm when I have early appointments tho. And it's still controlling my spasticity, so I'm still sleeping through the night (most nights) :)

It's lottery day, and I have to go grocery shopping. There are other things I could do, but I know I'm just not going to get to them.

I spent a lot of time researching all the ins and outs of many health plans yesterday. I ended up sticking with the same plan, even though the premium is going up along with the copays for just about everything. The clincher was the coverage for chemotherapy (Tysabri is considered chemotherapy). Paying more for that every month would definitely not lower my health care costs. In the end, I just didn't see anything better out there. I hope I made the right choice. I can't see into the future tho.

It sounds like you made the right decision.
I know that was a pita.
(((((HUGS)))))
bizi
thank you for your support.:hug:

Another appointment this morning... this time with the neck ortho.

I'm exhausted. And in a lot of pain again, of course.

I went grocery shopping yesterday and the girl at the register had no bagger, so she expected me to put the bags in the cart, which was in front of me. I was too embarrassed/too stubborn/too IDK what to tell her I am handicapped and couldn't/shouldn't do that, and ended up pulling something in my back and f***ing up my left shoulder worse trying to get the cat litter into the cart :(

I have to call the PT place today to tell them I need to cancel those 2 appointments so I don't get charged for the Monday appointment.

I need to do some cleaning this weekend... I am way behind.

:(:(:(
she should have seen you were handicapped and helped you:mad:
(((((hugs))))
gentle ones
bizi

Call the store to let them know what happened and to ask
them what they expect you to do in the future.


=-=-=-
I would have spoken up.
I've done this for other things (not groceries) when my brain is so spacey --- Something like: I am sorry but I need help. Can someone else do this for me please?

This is not acceptable. Its one thing if you offer to do it.
But she should have gotten it done for you, did it herself,
or even called management to help.

Donna :hug::grouphug:

Yesterday, I saw the neck ortho's PA, who was very nice. Since my neck is very, very tight and I have limited ROM, he thinks I will benefit from the PT I will be getting. So, I will see him again at the end of January, and hopefully I will be in less pain, and I won't need any more injections in my neck.

I've been very disorganized lately, which is very unlike me. Yesterday I finally got around to putting all my appointments into my iCal.
Right now, it looks like my appointments start to spread out A LOT after the 20th.

So I just have to get through two more weeks of this ****...

In the future, I'm going to have to do a much better job of making sure I don't schedule myself for more than one appointment a week.

Good luck in all that you are doing kay.
I want better pain free days for you.
I am hoping PT helps you.
have a good weekend!
love bizi

We got our first snow of the year... it snowed all day yesterday into this morning. It's beautiful, but the cleanup is always ugly.

I was planning on vacuuming the bedrooms and cleaning the hard floors, but now I don't know if that will happen today. I don't have any appointments tomorrow, but had/have plans to run errands rather than clean, and I doubt I'll have the energy to do everything.

I guess I need to make a to do list for errands and household chores, and find a way to squeeze everything in in between appointments.

good luck with all that you have to do today.
(((((HUGS)))))
bizi