[OhKay]

By 4:30pm yesterday I hadn't heard from the gastro's office, so I decided to call the office manager. She was very apologetic, and said that she would get to the bottom of things, and I would at least hear back from her tomorrow to let me know what the hold up was...
The NP called me last night at 6. She didn't even know I had had the test done, so it wasn't her or her medical assistant's fault I didn't get the results. She said she had a hard time finding the report because nobody scanned it into my chart...

Anyway, things are much worse than I expected. I do have a sigmoidocele (hernia or prolapse of my sigmoid colon, not sure which), a rectocele (thinning of the wall between my rectum and vagina), and rectal intussusception (my rectum is folding over itself but not protruding outside the body).
I will need these things surgically repaired, which is what I will do, but she said that the local surgeons have rejected much less complicated cases than mine, and it really is best to have the surgery done in Boston. Even tho I hate the idea of that, she is right.

But, right now I'm in no shape for surgery, and...
I also got the results of my halter monitor study yesterday, and they were "normal." So, I have no clue why I'm feeling so shitty all the time, and neither does my PCP or the NP. I told the RN I spoke to about the symptoms I'm having and she said I shouldn't be driving, and I should go to the ER. I said there was no point because I would sit there for hours, and they would just give me a bag of IV fluids and send me home. She said she would try to squeeze me in for an appointment with my PCP, but I never heard back from her...
This has been going on for WEEKS now and now I see no light at the end of the tunnel. They have to do something to try to figure this out because I just can't live like this. I will call today to get an appointment with the NP. I'll probably have to wait another week...

My anxiety is through the friggen roof. I hope that my mood doesn't start to shift. This is definitely enough to do it

[mymorgy]

harp music is soothing and healing. I am so sorry you are going through such hell. You are one tough lady. sending prayers and love
bobby

[OhKay]

The blood pooling in my legs is probably from venous insufficiency, which by itself is not a big deal, but it’s not a good thing given the fact that I probably already have 2 heart blocks.

I’ve been sitting here waiting for an hour anxiously waiting to be called in- cigarette and coffee free... NOT HAPPY, and falling asleep from the lack of caffeine and nicotine.

Yesterday I rescheduled my manicure appointment and went to the Coach Outlet to straighten out the pocketbook situation, I know I’m ridiculous, and I’m being very impulsive right now. Turns out, they don’t make the bag I bought in the size I like anymore, so I ended up buying an all cross grain aquamarine bag with lots of zipper components and silver hardware... beautiful. Everything is transferred over, and all is right with the world.

Now I’m going to get up and b- about waiting an hour...

[Dmom3005]

Good luck after b ing. I hope it works for you. I remember when I had
mine it didn't work much.

I can't remember how long I had to wait.

Hoping it goes good.

Keep us updated.

Donna

[Mari]

Enjoy your purses, Kay.



M

[Dmom3005]

Yes, I totally agree to enjoy the purses.

Donna

[OhKay]

Including the wait time, I was at the hospital for over 5 hours.

I don't think my BP or heart rate went up enough after I was injected with the medication that was supposed to simulate exercise, but that may be because I'm so out of shape? I really don't know. I was also supposed to have images taken 1/2 hour after that, but had to wait over an hour instead.

Nobody would tell me anything.

But my PCP posted some results to the patient portal this morning. At rest, my heart is doing just fine, but he didn't have the results of the "nuclear perfusion study" at that time, and that's the part of the test that shows how well blood is pumping to and through my heart when it's stressed after the injection, which is the whole point of the study, right?. I wish he would have waited to post results until he had the full report.

The expectation is that the test will turn out normal tho, and I hope that is the case. I need to catch a break.

[OhKay]

I had my nails done yesterday, and they came out perfectly... a beautiful (different) shade of red. I had a pedicure, too (it's been over 2 months), but I don't like color Judy chose for my toes this time. I can always take the polish off if it bothers me, but then my toes would be bare cuz I can't paint them myself. I feel like I've been through the ringer lately, so it felt good to do something nice for myself.

I wonder if I will hear back about the rest of the stress test results soon (like today), since my PCP posted the results of the resting portion so quickly... ? My cholesterol is excellent, so I doubt I have any blockages, and I think I probably did okay.

I was given some instructions when the stress test was scheduled that said I had to bring my inhaler. I keep it in my purse (even tho it doesn't help me), so I had it, but nobody asked me for it. I haven't been given any directions for the tilt table test, except I have to fast so I won't have anything to throw up lol.

I've never had that test, so thank you for the heads up, Donna. I don't have a fear of heights or anything, but I doubt it will be fun because I don't think it will take much of anything to make me pass out at this point.
When I was having a lot of vertigo, I did what I think is called the Omni Chair where they strap you in and roll you all around, and I tolerated it well. I ended up being diagnosed with migraine induced vertigo.

I see the cardiologist next Wednesday (the 27th), but the tilt table test is not scheduled until the following day. It's disappointing because I would rather he had as much info as possible by our first appointment.

I normally would be googling the s- out of things like the heart blocks, the stress and tilt table tests, my colorectal problems and potential surgery, and the two surgeons my gastro refers patients to because I usually do better with more information... but I can't handle any/all of it right now because it's just too much for me, and I guess I'm protecting myself.

The purse I bought at the outlet is perfect. It's beautiful, and I can finally find everything I'm looking for! I'm going to send back the bag that was too small today. I found out have to pay for return shipping, so I'm P O ed. I will never buy another handbag or wallet online again.

[Dmom3005]

Kay

I think meeting the Cardio. Might work out to be good before the
tilt test. This way you get an idea how they work too.

You can ask if there is a way to get the results as soon as possible,
or even set up a appt sooner rather than later after the appt.
So you can have some ideas. I would also let them know its really
a big thing for you to know what is going on immediately and its
much better for your health if they can call or give you information
as soon as they get it. When I saw a cardio, I found she was really
good at not only listening but getting me information so I could
rest easy.

Good luck with all your dealing with.
Donna

[Mari]

I understand, Kay, about most of the time wanting more information and
sometimes wanting none/less.

We do what works for us depending on the event and where we
are in our head/emotions.


Keep taking care of yourself.


M