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OhKay 08-24-2018 08:01 AM

Bizi, I usually at least read on my thread before doing anything else. Initially, I didn't think that writing down when I take my meds would help, but then I thought about it, and for some good reason (that I already forgot lol) I think it's a good idea.

I have been SOOOOO F- NAUSEOUS since yesterday, I often feel like I need to throw up, and occasionally I'm letting out some really odd burps. Eating does not help, it just makes matters worse. I called the pdoc office this morning and left a message. IDK what they will do... Tell me to suck it up? Change meds?Add Zofran? I'm not taking anything else that's sedating.

And I can't take the Abilify with my daytime pills... way too sedating. I will have to take it in the afternoon like I did the first 2 days I was on it. I didn't realize how much sedated I was because I was still manic yesterday. When I went for a quick drive to buy cigarettes, and the speed limit went from 25 to 35mph (where everyone goes at least 40), I realized I shouldn't have been driving.
I'll can tell you that being manic, and that sedated, is really, really weird... no nap again :confused:

I did get my s- together enough to write out my list, and order my groceries online early enough to get the pick-up time I want for today. I actually really got into the "shopping" part of it.

I seem to have slowed down a little more this morning. It's easier to sit still and I don't feel as agitated, but I still feel sedated after just taking my am pills, minus the Abilify. Maybe the Abilify is working. We'll see how I am once the sedative effect wears off- whenever that is.

I only got about 5hrs sleep last night, but that was because my spasticity woke me up several times early in the morning, and the spasms were very painful, so it became ultimately impossible to stay in bed and try to go back to sleep...
I need CBD MJ, but all that my local dispensary has is the drops, which are called tinctures, that I've never tried before. I may go buy some today.
I'm too sedated to drive 30min each way to go get the flower (regular MJ).

I have PT this morning, then I will pick up the groceries. It's so nice not to worry about asking for help :):):)

bizi 08-24-2018 09:50 AM

I am glad that you can pick up your groceries at curb side!.
That does make it easier they can put the bottled water into your car and corey can get it out!
(((((HUGS)))))
love to you today.
I hope you are feeling better and get a good nap in today.
bizi

Dmom3005 08-24-2018 09:55 AM

Good luck with PT and pick up today.

Have a great weekend. Not sure I'll be on much for a while.

Donna :hug::grouphug:

OhKay 08-25-2018 02:14 PM

Thank you ladies :grouphug:

The spasms in my legs never stopped yesterday, and they were brutal. I pushed through PT the best I could. Thank God I arranged the curb-side grocery pick-up (which went off without a hitch) because I never would have been able to make it through the store.

The only thing that helped at all was getting down on the floor and stretching out my legs for a while, but it was hardly the relief I needed, and only short-lived. I tried to lay down for a nap, but I was in too much pain + still manic.

I bought the CBD MJ tincture yesterday. The sales guy told me it would probably take me 2 droppers to get the results I was looking for, but I wanted to start with one. I waited until it was too late to start because if you mix it with something and drink it (rather than put drops under your tongue, which the guy at the dispensary said was a no-no) it takes longer to work. An hour later, I took the 2nd dropper's worth, and waited, and still was having significant pain in my legs, so I ended up smoking some MJ until the pain got better before going to bed. I slept, and had no issues until I woke up at about 8, which is pretty late for me. My legs were better this morning, but are getting shitty again.

I will try the drops again tonight- earlier in a higher dose, and see how things go. I may have to just end up driving to get the flower next week.

I don't know what's going on with all of that. It's not new stuff, it's just ramped up, so technically I have to wait a week to see if it's a real relapse vs. a pseudo-relapse caused by some other kind of physical stress. I hope it will pass.

My pdoc called me back yesterday and said that I should take the Abilify at night vs. in the morning or afternoon. I woke up nauseous, but it went away after a couple of hours. I still feel sedated, but I have definitely slowed down. I'm still hypo, but at least things in that department are getting better. She wanted to up the dose, but not with me being so nauseous. I see her early Monday morning, so maybe she will do it then. IDK.

I'm going to lay down, and hopefully take a nap now...

bizi 08-25-2018 03:26 PM

I am so sorry that your spasms are so bad. glad that you were able to sleep lst night and maybe able to take a nap today.
((((HUGS))))
bizi

OhKay 08-26-2018 05:22 PM

I mixed 3 droppers filled of the CBD MJ tincture with Kool-aide earlier last night, and that failed to reduce the spasms and pain in my legs while I was awake, so the drops are obviously going to be of no use helping me sleep through the night.
I'm going to have to drive to the dispensary that is over 1/2hr away to buy regular CBD medical marijuana, since it hasn't been available here in months, and may not be for months more. I may be doing that tomorrow. IDK.

I'm still hypo, still not sleeping long or well, and still being ridiculous lol
I did a lot yesterday, but I think most of it was a lot of nothing. I got myself into a bunch of messes, and made messes that I later had to clean up :D

We did laundry today. It went pretty smoothly. We are both very tired. I couldn't settle down long enough to nap. I laid in bed for a while searching for new laundry bags on Amazon.

I have an appointment with my pdoc tomorrow morning at like 7:30am. That's when I'm usually online. I don't know what other kind of trouble I will get myself into after my appointment, so I may not be able to check in.

bizi 08-26-2018 07:08 PM

Hope that you get your cbd formula that you want/need.

Sorry your tinctures are not helping.
(((((HUGS)))))
bizi

bizi 08-27-2018 11:30 AM

how are you doing?
(((((HUGS))))
bizi

Mari 08-28-2018 12:54 AM

Quote:

Originally Posted by OhKay (Post 1266909)
I mixed 3 droppers filled of the CBD MJ tincture with Kool-aide earlier last night, and that failed to reduce the spasms and pain in my legs while I was awake, so the drops are obviously going to be of no use helping me sleep through the night.
I'm going to have to drive to the dispensary that is over 1/2hr away to buy regular CBD medical marijuana, since it hasn't been available here in months, and may not be for months more. I may be doing that tomorrow. IDK.

I'm still hypo, still not sleeping long or well, and still being ridiculous lol
I did a lot yesterday, but I think most of it was a lot of nothing. I got myself into a bunch of messes, and made messes that I later had to clean up :D

We did laundry today. It went pretty smoothly. We are both very tired. I couldn't settle down long enough to nap. I laid in bed for a while searching for new laundry bags on Amazon.

I have an appointment with my pdoc tomorrow morning at like 7:30am. That's when I'm usually online. I don't know what other kind of trouble I will get myself into after my appointment, so I may not be able to check in.

That's quite an early appt. I hope it goes well.

I wish we had easy access to reasonable priced quailty MJ. I believe
it would help me or would be worth trying.


Take care, Kay.

OhKay 08-28-2018 10:56 AM

Mari, the price of marijuana you get at the dispensaries is actually pretty cheap, especially when you consider what you are getting...
It's high quality, and is consistent (at my regular place at least), and there is a menu with information on each strain about what symptoms it treats best (but there are other sx each may treat as well), what kind of high to expect, and what it smells and tastes like. The people who work there are really helpful, and you can usually get reviews for everything on their websites.
The MJ I bought yesterday was $25 off because I was a new patient there, so I only paid $20 for 1/8 (which is incredibly inexpensive). I didn't buy anything else there because I've never tried their stuff before, and 1/8 is a lot to get stuck with if it isn't any good. I usually buy 1/16 of 2 different other kinds besides the CBD.

I had to wait for a while after my appointment and pump myself full of coffee before going, but I did make the trip to the other dispensary to pick up the CBD dominant MJ strain. I smoked a tiny bit of it on its own, and it's going to work out very well for me. I should be able to treat my pain w/o having to smoke so much I end up passing out on the couch :)
Before I went to bed, I ground it up the new stuff with a different strain I knew would knock me out tho. I have not been able to nap, and I have been staying up late. I REALLY NEED/NEEDED SLEEP. I slept for 9 hours last night, but that's not nearly enough to catch up. When this episode is over, it will probably take me a week or more to recover.

I'm taking the Abilify at night, but I'm still waking up sedated, and exhausted because of the lack of sleep. But not long after I got home from my very early appointment yesterday, I started experiencing significant psycho-motor agitation, and agitation in general, and I was slightly paranoid again, etc... There's no way I can describe to you the feeling of being this sedated, but manic. I'm all f-ed up... a total mess :( :( :(
I should just keep quiet. I'm coming off as confused because I'm so tired and out of it, and my line of thinking is rather odd and not linear, so a lot of things are coming out of left field, and sometimes I'm not making much sense especially because I'm still talking so fast, but I can't shut the f- up. I'm pretty sure the guys at the dispensary thought it was nuts.

My pdoc wants to increase the Abilify from 5 to 7.5mg. But I can only take 7.5mg on nights when I don't have to drive the next day. I took it this morning, and I woke up really sedated (and nauseous). It will last the whole day since my morning meds just perpetuate it. I have to drive to go get my Tysabri treatment tomorrow, so it's back to 5mg tonight. Then I have to drive again on Friday...
I'm in for the day today.

She was adamant that I needed to get some sleep. I told her the only way I can is if I get super-stoned. She said, "I can't authorize that," but with a smile, and said again, "YOU NEED TO GET SOME SLEEP."

I desperately needed to take mag. citrate, so I reluctantly did that last night. The results were underwhelming. I will have to try taking it again tomorrow night. I f- hate the thought of it...


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