Dear Bear, I am so sorry. I have often accidentally let my meds run out before refilling them, and even one day without is hideous. Over time I have found that sitting next to the pharmacy counter, raving and foaming at the mouth is highly effective. The pharmacy staff will get sick of you and start to call your doctor for the refill! Docs respond much more quickly to pharmacists pestering them than mere lowly patients.

Yes I was one of those that got low sodium from the trileptal and low wbc and rbc too, could not figure out why I could not donate blood, low rbc...anyway.
When I switched to lamictal I don't remember having to taper off the trileptal, sense I was having symptoms we jsut stopped it and started on the low dose of lamictal.
What happened to your eyes?
was this unusual? I had never heard of that as being a side effect from that.
are you feeling any better?
How is wes?
((((HUGS))))
bizi

I fell asleep last night. Got home, laid down and got up long enough to make dinner and was out cold. oops
BUT, Wes has a pdoc appointment scheduled for tonight. he-he Forgot about that one. I am rescued.

Now, for a plan to never put myself in this position again.

ahhh. Just a couple of more hours. I can do this.

The pdoc's secretary is no more. He let her go. And he is private practice, no group, just him. I can see how stuff gets away from him. It happens to me all the time.

Maybe I will offer him a Christmas present and go through his pharmacy call backs with him tonight at the appointment? Can't be too rough or much different than what I do all day?

OMG. I am not positive, but I think my body is not liking the Triliptal.

Since Monday night, I have had the most obnoxious case of Vertigo. At first I thought I might be getting ill again. With the fibro, I never know. Not until it's really bad. Even then, I am never sure.

But it's not all the time. It hits, I fall down and it's gone. Almost amuseing. And it's worse when I lay down. Ever had the spins from drinking too much? Almost like that.

Then I thought it was stress and that the episodes were panic. But I don't get the tight chest and heart pound-ies until after the dizzy spells.

So, last night I was picking up my weekly load from the pharmacy and asked the pharmacist if the spells were side effects from any of my meds. Well, heck. Yes they are.

I dropped my dose in half last night and could barely get out of bed this morning. Every thing is spinning.

So, causionary tale. If one has been off a med that has such violent side effects, one must titrate back UP on them as if starting over. Oh my. I should have known better.

The pdoc admonished me and made me promise to call his cell phone if he ever gets that behind on scripts again, btw. LOL. He wouldn't even charge us his co-pay, he felt so bad.

What a crappy time of year to be ill. Nothing is getting done. Oh well. All I can do is what I am doing. sigh. No super hero here. Just me.

This is the first time you took Triliptal? What is that drug?

How long have you been on it so far? Is it in place of another drug?

Either it is the med, or you have a bad case of Vertigo and maybe your regular PCP can help. That must be an awful feeling. I am not sure what causes Vertigo. A ear infection maybe. Did you fall recently?

I hope you get some answers tonight. Please don't drive.

Take it real easy.

Hugs, Nikko

without changing doses or anything, after a mild virus, i was getting major paresthesia after my morning dose... a lot in the face, but all the way to the arms and torso. EXTREME KNOCKOUT tho if i managed to stumble around through the haze, it would pass.

trileptal has a two stage metabolism, as the drug is absorbed it rapidly converts into its active metabolite... it takes about 3 hours for half of the dose to get converted... and then it goes more slowly (trileptal t50 = 3 hours, active metabolite t50 =~ 12 hrs).

If for any reason your body is metabolizing it more slowly than before... you can go toxic. also trileptal can cause low sodium levels and other blood anomalies. PLEASE have a blood check ASAP.

I don't like the sound of this with Trileptal mixed up in it

I really hope you are ok soon.



~ waves ~

I was trying to avoid the docs' office. mmmm...... Hoping it will pass, waiting a few more days.

I will call the pdoc. sigh

I've been on trileptal since around June or July. Had to switch off Lamictal cause it was effecting my eyes. Then went to Lithium and had to go off it cause of 15 to 20 pound weight gain and dehydration issues. That is when I went to Trileptal.

Then I ran out of refills and didn't get my meds for another week. The pharmacy fronted me a bunch, but I still ran out before the script got called in. But I was really only off it 4 days total, split here and there. Just a mess.

Why can't I be normal? lol....Wes always says that. I tell him normal is no fun. Why would we want to be like everyone else? lol

Maybe it is because you had to wait for the script to be filled, and your body went through the beginning of withdrawal. Now that you are back on schedule, hopefully the side effects will subside.

Then again don't wait too long, because it could be that, or a real bad case of Vertigo.

Good Luck.......Nikko