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Caregivers Support A place for people who are a caregiver to another to find help and support. |
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12-11-2010, 06:45 PM | #1 | ||
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New Member
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My name is David and am caregiver for my 81 yr old mother, 24/7, for about 8 months now starting to feel the burn, no where to go no escape in sight. In March of this year she was diagnosed with Bulbar ALS. Presently she can barely walk with my help, no talking only on whiteboard, and all nutrition thru peg tube. I quit my job and moved in with her to avoid her being in a nursing home.
One alcoholic sister who has minimal involvement but is mom,s favorite,and can do no wrong. Talk about sharing the disease with Mom, at least emotionally.Heavy feeling of isolation and helplessness. Tired and worn out |
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"Thanks for this!" says: | tamiloo (12-14-2010) |
12-14-2010, 05:35 PM | #2 | |||
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Grand Magnate
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David, First I wanted to you to Neuro Talk. Also it would be a great way to introduce yourself in the New Member Introductions Forum.
http://neurotalk.psychcentral.com/forum88.html Being a caregiver is sometimes on of those thankless jobs. I met my husband about ten years ago and was his caregiver before we said "I do". He was diagnosed with Multiple Sclerosis 25 years ago. My Mom who is 87 moved in with us in 2007 so I do understand your isolation and sometimes helplessness. People always tell me that I need to take care of myself...however by the time I get everyone up and happy I'm too burned out to do anything for myself. My heart goes out to you David and all you do. Sometimes I will go outside and just scream....! I do keep a Caregiver Journal just in my Microsoft word program and password protect it so no one can read what I write. I write about all the medical stuff so I can refer back to what and when things happen and also any prescription changes. I do vent also!! Nothing wrong with venting...anytime you want to come online to vent feel free. Hey I'm online everyday so just vent away! I put some forums that might help below...you can drop in anywhere...lots of great folks. This first link is for Social Chat...they talk about almost anything. http://neurotalk.psychcentral.com/forum35.html This Forum is a Sanctuary for Spiritual Support...great folks ready to listen. http://neurotalk.psychcentral.com/forum27.html Oh, and I over looked this forum...for ALS... http://neurotalk.psychcentral.com/forum6.html Hope you can find some peace in the love and service you give to your Mom...
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My best friends live in my computer.... . Suffered with back problems since birth...7 back surgeries to date, the last one being on 5/13/2015. Fibromyalgia, PTSD, Chronic Pain “Being my sweethearts full-time care partner, I have to remind myself, when some well-meaning friend or relative questions my methods or motives, that I know more than they do because I Live this life 24/7, and they only come for short visits.” Tamiloo . Gotta love my Olhipie! Dx'd RRMS 1986, SPMS 2004 . Watch my Olhipie Skiing.... . |
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"Thanks for this!" says: | Abbie (12-15-2010), Twinkletoes (12-14-2010) |
12-14-2010, 06:59 PM | #3 | |||
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Grand Magnate
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Quote:
Your local hospital will be able to give you a phone number for Hospice services. Your dear mother is blessed to have you for a son. Hugs to both of you.
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Rochelle . . I've lost my mind ... and I don't miss it! LIFE HAS NO REMOTE -- GET UP AND CHANGE IT YOURSELF! |
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12-15-2010, 10:24 PM | #4 | |||
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Elder
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Hello David and WELCOME to Neurotalk!! Tamiloo has giving you some great links to get you started!!! Please do come to the New Members Introduction Forum and introduce yourself!! We love new members!! Roam around all of the forums!!! Join in anywhere!!! Please feel free to help others where you can and ask questions when you need!! You have found a wonderful place full of very kind and caring people!! I look forward to seeing you around the boards! Abbie
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My avatar pic is my beautiful niece Ashley! . Rest in Peace 3/8/90 ~~ 4/2/12
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"Thanks for this!" says: | tamiloo (12-16-2010) |
12-20-2010, 11:20 PM | #5 | |||
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Member
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i can only offer camaderie. i care for my sprite and intelligent 90 yr old dad, but recently with my cancer surgery we both care for each other. i feel for you and admire your style.
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"Thanks for this!" says: | tamiloo (12-21-2010) |
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