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| Caregivers Support A place for people who are a caregiver to another to find help and support. |
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02-04-2012, 07:40 PM
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Junior Member
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Hullo - I'm so very sorry you're hurting so much. I'm overwhelmed reading your post --- I can only imagine LIVING it!
Ok, for myself, when I get overwhelmed by our situation (hubby has Traumatic Brain Injury) I envision myself BENEATH the throne of Grace. I used to picture myself flat on my face before the throne of the Most Holy God - now, I crawl UNDER it and hide out (I think He knows I'm there  ). I advise you HOUND God for peace, grace, wisdom and discernment. On the tangible side, you mentioned.... my youngest is 20 and suffers from chronic daily migraines and requires frequent trips out of town for dr. apts We have friends of a teenage boy that had chronic daily or every-other-day completely disabilitating migraines for many years. For them, it took a radical change of diet for him to heal. I believe there are MANY quacks for doctors out there - they found a good one in Grand Rapids Michigan that tested him for allergies and took him off just about everything edible. Really - he was FURIOUS for the first 6 - 9 months with the diet changes. But, it began to work. He was on a severely restricted diet for about 2 1/2 years or so (no gluten, no dyes, no dairy, etc). Then they slowly began adding foods back in. Fast forward a couple more years and their son can eat pretty much everything in moderation. His dr said it allowed his immune system, etc to heal and his body to build a tolerance to the foods that previously made him so sick. Just a thought I wanted to throw out there!
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Blessings to you... AMY Wife of 54 year old hubby who sustained TBI January 2011 downhill skiing. Hubby is: Machinist, off work since injury. 70% of the time feels really, really rotten (better! Used to be 99% of the time) 30% of time he just feels bad but can push thru to do something. Current Symptoms: Light & noise sensitivity, brain fog (lessened by Zoloft), extreme fatigue, balance issues (walks with cane), cognitive problems (slowed & more difficult thinking), overwhelmed easily. Difficulty falling asleep but then could stay asleep for 12 hours or more . (Uses CPAP machine while sleeping due to apnea NOT caused by TBI) All symptoms increased by stress, fatigue & crowds. Jostling movements (walking briskly, bumpy rides) are VERY bad & cause severe set-back Seems to help: Taking 150mg Zoloft at night for symptom control, especially helps with "brain flips / swishing when walking" and brain fog (helped). 300 mg Gabapentin (100 3xdaily) for headaches (works pretty well. Minor headaches are eased by combined Acetaminophen & aspirin). Xanax for anxiety, but also seems to slow the overstimulation feeling when out-and-about. Feels best while lying down (vertical position seems to bring on symptoms) Misc: Clear EEG, clear MRI'S (2 of them). No cut, bump or bruise after accident - all damage internal . Oddly enough, he's not bothered at ALL by tv . Praise the Lord he has NO difficulty driving. |
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