| FAQ/Help |
| Calendar |
| Search |
| Today's Posts |
 |
|
Site Navigation
| Children's Health For health and neurological concerns in children. |
advertisement
| Reply |
|
|
Thread Tools | Display Modes |
|
|
| Children's Health For health and neurological concerns in children. |
| Reply |
|
|
Thread Tools | Display Modes |
09-22-2006, 09:03 PM
|
#1 | ||
|
|||
|
Junior Member
|
Oh, I've missed you all so much!!!! I've had severe withdrawal for weeks, wondering how everyone is doing! So glad to see familiar faces here!
Em is doing great! SHE CAN SEE! Many, many hours of vision therapy and we finally see improvement in her CVI. I took her to the ped. opthamologist this week and where she was originally dx'd as totally blind in her right eye and only a smidge of periperal vision in the left, she now responds to stimuli in both eyes. Doc said that she is just above legally blind now and far-sighted. He didn't give her glasses yet, but he was really excited for her. Opens up a whole new range of possibilities for her. She's gained 9 lbs in the last year (she was really underweight), grown 3 inches, and will be getting more Botox next month, new AFOs and a new wheelchair (a Zippie T/S). And hopefully, will start at the state school by November. Oh, and she turned 5 this month. How did that happen? She's had some staring spells that have been concerning, but we're not making any changes yet. We see the neuro next month. That's all about us. I'm going to go read all the other posts and see who's here. So happy to see you all again!
__________________
Paula S Mom to Dale, Emily (CP, CVI, epilepsy, reflux, g-tube, microcephaly, etc), and Mary Nell . Last edited by PaulaScott; 09-22-2006 at 10:14 PM. |
||
|
 Reply With Quote
|
|
09-22-2006, 09:32 PM
|
#2 | ||
|
|||
|
Junior Member
|
Hey Paula, great to see you found us....awesome news about Em's vision.....happy birthday hugs to her from me and Lauren....
Hugs, Debi |
||
|
|
Reply With Quote
|
|
09-23-2006, 11:33 AM
|
#3 | ||
|
|||
|
Junior Member
|
Great to see you, Paula! I am so happy that so many of our BT friends are finding their way to this temp site. I missed everyone tons!!
(((hugs)))
__________________
Wendy, mom to Langan, the love of my life, born 7/19/02. Global delays, intractable seizures, mystery girl. VNS implanted 2/10/06, now on small dose of lamictal and fighting for seizure control, and wife to Jon, the other love of my life!! |
||
|
|
Reply With Quote
|
|
09-23-2006, 12:48 PM
|
#4 | ||
|
|||
|
Junior Member
|
Hey Paula. Great to see you here!
 I tried to quote Paul's post here fo ryou but instead I ended up bumping the thread about Steve Irwin's death and quoting Paul;s post at the end of it.  I am SO losing it! anyway....Paul DID post on that thread a while back. Haven't seen him here since. I understand he's quite the busy chap nowadays.
|
||
|
|
Reply With Quote
|
|
09-23-2006, 01:33 PM
|
#5 | ||
|
|||
|
Junior Member
|
I'm sure Emily's grown even cuter since I last saw a picture too
 (Especially in her birthday outfit - wish I could sew like that!).xxx Swift |
||
|
|
Reply With Quote
|
|
09-24-2006, 05:32 PM
|
#6 | ||
|
|||
|
Junior Member
|
{{{{{Paula and Em}}}}} I'm so thrilled you found us again!!!
Sounds as though Em is doing just great!!! Love and Hugs! Robin |
||
|
|
Reply With Quote
|
|
09-24-2006, 11:16 PM
|
#7 | ||
|
|||
|
Member
|
Welcome! It's so good to see another familiar face. And did you see that old / original BrainTalk has a new message? We'll find the rest of our gang eventually.
__________________
Mom to Samantha (10), Claire (9), and Tom (7). Tom is developmentally delayed with poor vision, lousy fine motor skills and epilepsy. His seizures are pretty well controlled through diet - dairy-free, gluten-free, rice-free, and coconut-free. |
||
|
|
Reply With Quote
|
| Reply |
|
|
Here you are!
Linear Mode
