Chronic Pain Whatever the cause, support for managing long term or intractable pain.


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Old 11-02-2007, 05:02 PM #31
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Originally Posted by KateLynne View Post
when you first realized that you had chronic pain and that you would have it all your life, how did you deal with it? How did you learn to accept it and go on? I am having a real hard time accepting it, and learning to go on- learning to do more in life and to not get caught up in just my pain.

I could really use your thoughts and experiences. Thanks.

-KateLynne
If you still need advice I have been in chronic pain for 32 yrs just ask.
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Old 11-04-2007, 09:06 PM #32
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Default twenty years...

After more than 20 years of severe pain, I have taken enough meds to choke a horse. While the never-ending pain drags depression around behind it, taking enough medication to knock you out makes you wonder why you were ever born!!! I just went through that. It wasn't until I got angry since I have no life (except in my dreams) that I began tossing some of the pills away...with the doc's help...keeping the most necessary ones to survive the pain. Guess I'll get back to the depression from pain when I get over being angry. It's just a merry-go-round.

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Old 11-13-2007, 07:52 PM #33
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Just saw this thread bumped up and wanted to post and thank everyone for the help and support. Over the past few months I have done well and had a positive attitude and was cheerful. But with the cold I am feeling worse and I now am depressed and the depression is just worsening.

I feel so alone and deserted. I live in my room for the most part. I have no life, I do next to nothing and I am always crying. I feel like I just lay in bed and rot. All I know is pain, I can barely walk or do anything. What is there to live for?! I mean, I am not suicidal at all, it is just the pain wearing on me. I feel lifeless.

By the way, yes- I did tell the friend what I am going through. She apologized profusely and we are even better friends at this time.

I have been crying just trying to write this, it is just so difficult to live anymore. I have been trying to go on with life and was doing fairly well with it, but it is now a different story.

Thanks for listening.
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Old 05-08-2008, 12:11 AM #34
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Default Meditation

There is a book that teaches meditative and stress management for chronic health issues called "Full Catastrophe Living" by Jon Kabat-Zin. The author uses a Buddhist type philosophy in a program that was tested in a medical facility. The Buddhists claim that it is not pain that causes suffering, but attachment to pain that causes suffering. I was reading it when I got my second whiplash, and it helped me tremendously.

I also find that creating meaning, and getting something positive out of negative situations is important. The last time I had an episode with my back, I sold my Chiropractor on a stress management class for his patients. After my first whiplash I had a seizure in my car, I found out that mobility impaired transit needed quality control, and put myself in charge of it.

May you find peace within yourself,

Janet Kaye
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Old 12-21-2008, 09:27 PM #35
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Default want my device taken out

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Originally Posted by Fancylady_2006 View Post
Could you tell us what kind of pain you are in? I have had lots of back trouble and 7 surgeries. All have been painful. I now have arthritis and here it is Spring. I think the air conditioning makes me worse. I was ok all winter & I as soon as I turned the air on, misery. I wish I knew something that would stop the pain of it. After you have tried all kinds of pain meds & most have side effects, You just live with it. Yes, it can get bad enough to see a doctor, thats how I had all the surgeries. The long rehab and having to hire help, when its hard to find, makes me not want to go that route again. I have had much trouble with pain meds. Many I have been allergic to and itch bad, then others will bind you up.

You may have to seek help. The pain doctors I have known will try to make you conforable. I had a stimulation for almost a year, had that taken out also. I am allergic to metal. I am sure there are some on this forum that can give you advice better than I could.
________
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I want my ans taken out and cannot find anyone to do it.
Can you tell me who can help.
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Old 12-21-2008, 10:38 PM #36
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Default Hi Sufie5139

Well, a Neurosurgeon put my stimulator in and my Orthosurgeon took it out, when he did my 7th back surgery. I would have went to him in the first place, if my husband had of been well, but he had brain and lung cancer. Thats why I went to a surgeon that lived closer to my home. I never wanted the Spinal stim anyway, because it contained metel wires. I was in misery from day 1 and lived with it for almost 1 year.

The only advice I can give, is you will just have to find a surgeon that is willing to take it out in the first place. The one that took mine out, was already my regular surgeon. It wasn't so simple tho. He ordered a Discogram that just put me in misery showing him I already needed another surgery. I was determined to get up the same day of surgery and do my best the fight this pain. It has worked pretty good for me this way. I do have to keep a positive attiude. I'm not saying this would work for everybody, but it has worked good for me. I hope the best of luck for you!
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Old 12-24-2008, 01:31 PM #37
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I have been in monster pain for 2 years---Seen tons of docs--specialist surgeons etc-----This one thought I could have this surgery on my back to relieve some of the pain I get in my lower back and legs---Appointment today and total disappointment------He says my spine is healthier than his-----He could make it worse that's about it-------------They started with Autoimmune with me---MS------maybe Lupus---Etc----Now the first explanation that comes outta the surgeons mouth looking at my records was MS--------I am so worried that they are just going to let me suffer------I can not even walk the pain is so great--

I just can't see living like this forever-----To some docs----The Pain meds are the worst---Because of addiction----My take is---Hey I was a Cop--In great shape played sports---Ran for miles--Lifted weights etc-----Get me outta pain--or lessen it and the we should worry about addiction------People who don't feel the pain-----And fell what works and doesn't don't care------------Sorry for the long pity poem------To the person in pain for 32 years may God Bless you---I could not do that------

Bless all who posted here..
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Old 12-25-2008, 06:34 PM #38
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Thumbs up Hi PJAMES~

I just want to say, I understand what you are saying. Have you ever went to a pain doctor? A good one might help you. There Is a medical name for them and I can't spell it. Help me out here gals! May God Bless You, and know others believe what you are saying.
Fancy
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Old 12-26-2008, 09:34 PM #39
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Originally Posted by electrocuted View Post
The intense pain in the soles of both of my feet (neuropathy) has caused me to think about ending my life when the pain causes me to not be able to think clearly
This my first post to this site, my shrink said speaking to others in chronic pain might help me vent. Right now it just makes me sad and sitting here is killing me. Been very physical all my life until my work injury, never really had depression, panick attacks the last year + has truly been hell, a very lonely place to be. I dont have the luxury of pain killers due to IBS they dont help the pain and make me horribly ill. My hand surgeon is trying sleeping pills to see if I can just get a few hours of restful sleep. When you start feeling like ending your life you need to speak with a professional...right more doctors. Try paraffin baths for your feet, it is relaxing... might help. I was a lady trucker, got a really bad truck... caused t7-t11 bulging disc 3/4, 4/5 5/s1 herniations with tare... bilateral carpel tunnel with triggering middle and long fingers. The fifth surger stopped the triggering but really ****** off the nerve now i scream just brushing up against it. My body is now rejecting all forms of treatment, (having reactions to the injections and soft tissue infections) We are starting the holistic care now, the accupuncture helps but not for long, inversion chair helps but cant do it for long before my eyeballs hurt. Trying since september to get therapy approved for aquatic core strengthening and massage. The doc said retraining but I cant sit and cant grip dont know what to retrain for. Any ideas let me know!
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Old 12-26-2008, 11:59 PM #40
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HUGSSSSSSSSSSSS to you great BIGGG HUGSSSSSSSS

I live with pain often, I work full time at fast paced on my feet job, I suffer with memory recall issues, balance issues, and stiffness, pain, and more pain. I am undxed!!

I guess positive attitude when you can, let the tears out when you feel them, and making sure you are taking good care of YOU! Treating yourself, if stuck in bed, get some great books to read!! think of the things you still CAN do...less about what you cant.

either way I understand the hard parts..and wanted mainly to give you HUGSSSSSSSSS,sarah
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