On sat the Lyrica seemed to help almost like a miracle in the morning....then pain came back. still taking lyrica amitriptyline and tramadol..no more oxycondone. i only took 1 extra 2 days the dr had only given to 10 of them and I was supposed to take 1 every 12 hours...

I have a nerve block scheduled for wed but I am in tears from the pain right now.......I don't want to go to er but my docs cant see me they full up .....

i dont know what i should do.....but i cant take it

I'm sorry that you are in so much pain,if you can't get in to your dr.I would go to the emergincy room,you can't just stay in pain,I hope you find some releaf

Were you able to talk to the doctor or one of the nurses ?

Even if they couldn't fit you in, they should be the ones advising you on what they think is the best course of action for you......for example, going to the ER, upping the doses or frequency of the meds you have available in the house.

Was it the Oxycodone that you were instructed only to use every 12 hours ? That doesn't sound like a realistic pain plan for someone in constant pain.....the med only lasts 4 to 6 hours.

I hope that they are able to come up with something to help you maintain your pain at a level that you can live with. I hope they can do that QUICKLY for you. It's so difficult to find doctors who are knowledgable about working with RSD patients. I know I spent years in bed or my chair with an ice pack on continuously trying to numb the severe pain just a bit. Of course, I understand now that that probably made what was originally "just" TOS develop into RSD......I was just trying to not go insane from the pain.

I hope that you are okay.

I'm new here. I've been in chronic pain for over 4.5 years. Where and what kind of pain do you have?
D. G.

[QUOTE=Dagentil;946405]I'm new here. I've been in chronic pain for over 4.5 years. Where and what kind of pain do you have?
D. G.[/QUOT

I have CRPS in my left arm predominantly, now progressing to my right lower leg/knee and left knee/foot. I'm worse of than when I posted this but have gotten a better grip on my pain and control of my emotions!

how did the nerve block go . any relief

[quote/]
Even if they couldn't fit you in, they should be the ones advising you on what they think is the best course of action for you......for example, going to the ER, upping the doses or frequency of the meds you have available in the house.

Was it the Oxycodone that you were instructed only to use every 12 hours ? That doesn't sound like a realistic pain plan for someone in constant pain.....the med only lasts 4 to 6 hours.
I know I spent years in bed or my chair with an ice pack on continuously trying to numb the severe pain just a bit. Of course, I understand now that that probably made what was originally "just" TOS develop into RSD......I was just trying to not go insane from the pain.

I hope that you are okay.[/QUOTE]

I would advise AGAINST going to the Emergency Room unless you had a life-threatening condition. It is such a shame that you don't have a Regular Pain Management doctor that you see Every Month, without Fail.

My Primary Care Doctor and Pain Mgmt doctor actually told me that they don't like patients who go to ER's for pain because pain is not a "medical emergency" and it shows that they are abusing "medical resources" (exact quote). Then also told me that the ER docs will kind of look at with suspician a patient who more than once goes to the ER for pain because it is a "pain-drug addict" kind of thing to do, that is, to run out of pain meds too early for the month. And then the ER docs will only treat the patient for pain for one hour but not give anymore vicodins or whatever the patient wants. They will tell the patient see your regular doctor for the pain. [I'm not implying that you are a D.A., just explainining what the ER doctors tend to think and judge.] It is a tough situation if you don't learn the "pain patient rules" and mess up. One of the bigger Pain Clinics around my area will have new Pain Patients actually read/sign/take home an actual printed contract between them and the doctor. One of the rules is that you cannot go to a different doctor or Clinic besides the designated Pain Mgmt Doctor for refills or additional pain medicine. It is called "doctor shopping" and prevents the Pain Mgmt doctor from knowing your true intake number and dose of pain meds, which is not safe, because you can overdose. The pain management doctor can then kind of put the word out to other doctors/ clinics in your area that "patinet XY" is my pain patient and do not give her Pain Meds, if she shows up to your clinic asking for Pain Meds, please call me and let me know (and do not give XY Patient meds) and then you are kind of treated like a drug addict by every medical clinic in your area. This was actually all explained to me as actual practice of this big Pain Clinic. They will then also stop treating you for pain, obviously, and refer you to a drug treatment/addiction center.

However, since you don't have pain mgmt doctor that you see every month, of course you are going to run out of meds! It is an impossible situation you are in. I really hope you get the care of a regular Pain Management doctor that helps you.

I feel sad to read you are and have been experiencing intractible pain, and write even just to add in you are among my prayers for hope, healing, peace..

Mark56

I am adding my prayers. Like too many of us, I can relate to your struggle. For me, the er is not an option unless I have had a fall that warrants an xray. Best wishes.

Spine

ave pain mgmt doctor that you see every month, of course you are going to run out of meds! It is an impossible situation you are in. I really hope you get the care of a regular Pain Management doctor that helps you.[/QUOTE]

Believe me the Oxycodone didn't help much for more than 4-5 hours truly. It DID help though it just needed to be a tiny bit stronger and last longer. I would've been fine with the same strength if it had lasted a LOT longer. But that was prescribed by the doctor who finally admitted a couple weeks ago the he has "no idea how to treat me/CRPS" so after about 3 months of severe pain "gee thanks doc!"

And unfortunately I seem to have SEVERE reactions to Gabapentin, Lyrica, and Cymbalta. They are starting to run out of options for "other" medications. My new PCP id trying to co-ordinate things better. I go to see a neurologist 03-07-2012 (soonest appointment ) and is referring me to a actual "Pain Clinic doctor" as well. Hopefully I will get better results!

On the "er" reference,. If I had a better pain management team/medicine. I would not go to the ER at ALL!! But when my standard level of pain isn't being treated to a satisfactory level, and I have a "flare" as I call them.....I go to ER or spend a day or two in tears. The last doctor who saw me was along the lines of what you are talking about. He didn't prescribe me anything but DID help with the immediate pain. It has spread to my knee and feet, so at the time that was new and extreme so my fiance took me in.
I could barely walk. That has calmed down considerably. My new PCP seems to think it might have been a "flare/fluke" as he said the receptors in our brain for the leg/arms are very close. Since I was having a huge flare in my arm it might have triggered my legs for a while. And as soon as I can get better constant pain help, I am hoping I won't keep having so many flares.....ok well I am going to stop typing now...lol my arm/hand is starting to get angry!! I am also being forced to part time at work as I can't work very well anymore, as typing is like 70% of my job.....grr.


Thanks to everyone!