Chronic Pain Whatever the cause, support for managing long term or intractable pain.


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Old 02-27-2008, 04:43 PM #1
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Default Our brains are in danger!

Hi all,

Thought you would find this article interesting...

http://www.medtrackalert.com/content...in-harms-brain

Have a great evening!
Nancy-H
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Old 03-06-2008, 02:01 AM #2
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chronic pain....or the Neurontin.....something has me in a permanent fog
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Old 03-06-2008, 09:50 AM #3
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says this: "This constant activity damages brain cells, and it may lead chronic pain patients to suffer from depression, anxiety, insomnia, and problems making simple decisions."
Yep, agree with that.
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Old 03-06-2008, 10:59 AM #4
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Looks like someone is finally listening and seeing what we've been saying for a long time....

continuous severe pain is more than just physical!!!!!!



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Old 03-07-2008, 02:35 PM #5
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That would explain my fog as well. I have suffered all my life from pain...born with spina bifida...
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Old 03-09-2008, 11:17 PM #6
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My fog too. I can be talking to someone and the phone might ring, then I have already forgotten what I was talking about.

If I am supposed to do something, I HAVE to write it down.

My wife drives me crazy by picking up my pill container and "putting it away". THEN she asks if I have taken my pills and I tell her I am not sure. At that point I look for my usual places and if they are not there I have to ask her where she is hiding my pills. It sounds dumb to most people, but I hope you understand. My wife does not seem to be able to follow.

I kept a log of all opiates for over 500 days, until I felt like I had a handle on it. Now I take all my meds and put all 7 days in at one time. I am on Avinza and Oxycodone and Lido-Derm Pain Patches.

I am 62 and have been on opiates for around 2 years. I fear early onset of Dementia. I already am disabled for inoperable lower back damage and life threatening respiratory disease. If I pass out or don't use my ventilator, I will not start breathing again. CCHS is what I have. Since birth. Of course they did not "find" CCHS until around 1962.

My Dad developed Dementia at around 80 years old. He was NEVER on opiates.

I am working to get off them completely, but I fear the stress of the pain will just come back twice as bad. Hard to know what is "right".

Good luck with your treatments.
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Old 03-10-2008, 12:08 AM #7
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Quote:
Originally Posted by dllfo View Post
My fog too. I can be talking to someone and the phone might ring, then I have already forgotten what I was talking about.

If I am supposed to do something, I HAVE to write it down.

My wife drives me crazy by picking up my pill container and "putting it away". THEN she asks if I have taken my pills and I tell her I am not sure. At that point I look for my usual places and if they are not there I have to ask her where she is hiding my pills. It sounds dumb to most people, but I hope you understand. My wife does not seem to be able to follow.

I kept a log of all opiates for over 500 days, until I felt like I had a handle on it. Now I take all my meds and put all 7 days in at one time. I am on Avinza and Oxycodone and Lido-Derm Pain Patches.

I am 62 and have been on opiates for around 2 years. I fear early onset of Dementia. I already am disabled for inoperable lower back damage and life threatening respiratory disease. If I pass out or don't use my ventilator, I will not start breathing again. CCHS is what I have. Since birth. Of course they did not "find" CCHS until around 1962.

My Dad developed Dementia at around 80 years old. He was NEVER on opiates.

I am working to get off them completely, but I fear the stress of the pain will just come back twice as bad. Hard to know what is "right".

Good luck with your treatments.
Hi dllfo. You certainly have it tough.
As regards your expressed desire to get off opiates, is that because of side effects or a fear of physical or psychological addiction?
If that is the case, have a look at this article.
http://www.thepainweb.com/doclib/topics/000006.htm

It may be that opiates are your best medication, and any fears of dependency are irrelevant, so to speak.
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Old 03-31-2008, 01:04 AM #8
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Now on cnn Friday night they discussrd how people with weight around
the belly part you will likley have ,Demethia and other brain disorders
at a much earier age. Hugs to all Sue PN
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Old 03-31-2008, 02:56 PM #9
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Thanks for posting this Nancy,

This is why my Neurologist has changed my diagnosis from small fiber PN to Central Pain Syndrome. I am glad to see this brought up here because it took forever and a day to sort through this mess. And as my NS said shortly after he saw my cervical spine..."...TOO much pain for FAR TOO LONG!" Now, I know what he meant!
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Old 04-09-2008, 08:33 PM #10
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Hmmmm. So THAT is why I keep ............

what was it I was saying?

Oh, yeah, that's why sometimes I keep forgetting to do some stuff at work. It's horrible, I make mistakes that really are embarassing and I have absolutely no excuse or reason why I did them. Perhaps now I have a reason.

No one truly understands this type of thing unless they have "been there and done that" before.
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