[ballerina]

I was looking for a pm that I sent to someone regarding the risks spinal cord stimulators pose to Complex Regional Pain Syndrome patients. When I tried to retrieve it to sent to someone else it was gone.

I am wondering if it was deleted because I unintentionally violated forum policy because I made specific mention of two SCS manufacturers, Boston Scientific and St. Jude. I referenced these two manufacturers because they are the stimulators used by my pain management physician, resulting my extensive research and correspondence with both companies.

Has anyone had a similar experience?

[Chemar]

Hi
we have no access to your PM box
and no PMs received or sent can be deleted from your PM box by anyone other than you, so you must have deleted it yourself.

We have no "forum policy" that prevents members from mentioning manufacturers in posts or PMs

[fmichael]

Hi. A similar thing happened to me in May of this year, only it concerned a thread post that a number of folks recalled quite clearly. The circumstances of which were the topic of a previous thread on this forum, Searches limited to 500 posts (by name at least) http://neurotalk.psychcentral.com/thread149888.html Ironically, that post also concerned spinal cord simulators, and was loaded with journal references.

But on the issue of PMs specifically, a funny thing happened soon after my thread went up. a well meaning mod contacted me with a suggestion, that was in fact something I had already tried. In thanking her, I mentioned that I had become aware of a particular firm - that I mentioned by name - which I understood was in business to police online discussions of its clients and their products, whose MO was to send a cease and desist letter to whoever host the site on which an offending message was placed, claiming [that's the operative word] that it was slanderous and demanding that it immediately be taken down on pain of litigation. (Not sure whether these demand letters come directly from the firm in question, or a large law firm on behalf of the client. I suspect it's the latter.) But I really knew very little about the area, have just received an online ABA-CLE announcement for a then upcoming program, Reputation Management in the Digital Age: How “Information Permanency” Affects the Way Businesses and Individuals Are Viewed by Others http://apps.americanbar.org/cle/programs/t11rmd1.html

The thing was, when I checked my PM box a few days later, both ends of the correspondence with the mod were gone. In-box and out-box.

And at that point I simply decided that discretion might be the better part of valor, and figured that there was nothing I could do about the situation. And for all I knew, even if corporate malefactors were behind it, it was entirely possible that NT was simply being hacked without it's knowledge. I mean, if you can build a super-doper WebCrawler, why not build one that could hack into password protected areas while you were at it? That said, I want to be perfectly clear that this paragraph constitutes nothing more than the rankest of conjecture.

The rest I stand by, even if I don't know what it means.

Mike

[DocJohn]

We are not "hacked" without our knowledge. It is incumbent upon every member of NT to use strong passwords and to change them regularly. We are not responsible for maintaining the integrity of every member account -- that's the member's responsibility.

We do not have access to member PMs -- either to read or to delete. If you're missing PMs in your inbox or outbox, it's because either you or someone who has access to your account has removed them.

Sometimes a person can get confused (it's happened to me) about what forum one is on when one sends a message, or mistakenly thinking it was sent as a PM when it was sent as an email or replied to as a post in the forums. I would caution and encourage people to double-check and note important PMs or messages they want to save or ensure don't get lost in the future, as we all suffer from the occasional memory glitch.

Thanks!

DocJohn