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-   -   Are we being carefull enough? (https://www.neurotalk.org/community-and-forum-feedback/5670-carefull.html)

Thelma 11-08-2006 06:20 PM

Lara

I have been trying to get the full paper on this but it is not easy to get. I have a friend who has a subscription and will contact her for it. Send as soon as I get it.

Sometimes the world amazes me of how much we care for than that is not yet here and treat the ones who have arrived so badly because they are not acceptable as is.

Will get back to you

mrsD 11-08-2006 06:27 PM

Lara...
 
I have to agree with you.

I work in a very complex busy place...many many people running about, and yes, I admit it all has to do with providing service/medications/support nutrients for nursing home patients, and assisted living.:rolleyes:

I am OLD ...OLD as dirt now. With that preface... I will share with you that 2 young employees whom I work with alot, and like/respect who do a good job, had a conversation for 10 minutes in front of me...2 nights ago...that was totally TOTALLY incomprehensible. It involved slang, intermixed with Ebonics...and references to recent entertainment issues. So I just laughed and excused myself. Don't ask me what the meaning of this exchange really was! :o
I can't go into details here..with TOS an all...just suffice it to say, times they are a changing! and RAPIDLY.:o

And regarding the Estrogens/in children article... nothing surprises me anymore. It is a well known fact that precocious puberty
will lead to increased cancer rates later. The studies on breast cancer are dunning. Girls exposed to estrogen at 8 yrs or younger,
develop breast cancer at 40 or less more frequently than other females. This paper is rather frightening.

Chemar 11-08-2006 06:58 PM

honestly...........I think that treating children with hormones to stunt their growth and so make it easier for their parents to care for them is in a word CRIMINAL!
I have become rather jaded to most stuff and kinda unshockable but that article shocked me to the core and made me very coldly angry:mad:

CoolAngel26 11-08-2006 07:16 PM

Quote:

Originally Posted by Chemar (Post 36239)
honestly...........I think that treating children with hormones to stunt their growth and so make it easier for their parents to care for them is in a word CRIMINAL!
I have become rather jaded to most stuff and kinda unshockable but that article shocked me to the core and made me very coldly angry:mad:

I agree,making kids take hormones to stunt their growth,for the parents' satisfaction,is downright criminal,and cruel.

I'm very :mad: to see that in this day and age,kids are being treated so cruelly,with no respect.It's not fair.

~scrabble 11-08-2006 08:22 PM

I couldn't figure out how to quote from the portion of the article that Lara quoted in her post. I could only quote the words written by Lara so I've 'cut and pasted' (and 'bolded') portions of her quote from:

Vol. 160 No. 10, October 2006
Attenuating Growth in Children With Profound Developmental Disability

A New Approach to an Old Dilemma

Daniel F. Gunther, MD, MA; Douglas S. Diekema, MD, MPH

Arch Pediatr Adolesc Med. 2006;160:1013-1017.


I just could not believe it when I realized this is from an article that was published this year. :mad: It sounds so archaic. :confused: Maybe when the original source is found it will show that the article was actually written 100 years ago, but even so, I find it appalling.

At the beginning the article refers to children with profound developmental disabilities and nonambulatory children with severe, combined neurologic and cognitive impairment. Then, at the end of the article, it states We suggest that after proper screening and informed consent, growth-attenuation therapy should be a therapeutic option available to these children should their parents request it. Are they implying that these children with profound developmental disabilities would be able to make informed choices for this so-called therapeutic option??

I have worked with children and adults with profound developmental disabilities and some who are totally physically dependant. My suggestion would be to assist the families who are caring for children in this situation by providing medical assistance and mechanical lifts.

It boggles my mind that they even state that they have discussed the medical and ethical considerations of such an intervention strategy. :confused: :mad:

WonderBoy 11-10-2006 02:04 AM

i wouldn't have gotten involved in this discussion because others brought up everything i wanted to say.


but this article makes me so so so ill.

it reminds me of when I called the doctor on call in the middle of the night, once again, because my child was in pain. i was on the edge of desperate, after months of undiagnosed excruciating pain. even now i have to avoid thinking of it or i am filled with such anxiety.

the doctor responded by asking me when i was going to put my child in a home.

oh --- so warehousing him where we don't have to see his pain is the answer? i wanted to scream - are you insane?

===========================

so the answer is to stunt our children's growth, rather than to buy us lifts and provide us qualified (adequately paid) support? why not stunt their intellectual development purposefully rather than giving them computers and speech devices?


i could go on. it makes me sick.


dignity. life. life to the fullest. society is behind - not our children. society is the problem - not our children.

our society's failure to accomodate our children is the problem, not their need to be accomodated.

Alffe 11-10-2006 05:47 AM

I'm outraged right along with you wonderboy. As if out of sight, out of mind was some sort of solution. Some drs. do "get it" but too many don't!! :mad:

~scrabble 11-10-2006 10:35 AM

Hear, hear Wonderboy! :)

I'm so sorry for your son's pain.

WonderBoy 11-10-2006 11:35 AM

thanks guys


but i just thought of something.

when my son was little, he was very weak for a long time. his weight gain was very difficult.

we checked, and my son's growth hormone levels were low, but not terribly so. We went to see an endocrinologist, who was very rude.

He kept talking about my son vs. "normals". Then he told me he thought it was a bad idea to make my son stronger, because then when his muscles spasm he would only be stronger and bigger spasming. As if his whole life was only that, not what other good things the strength and well being might bring him..

And did he not realize how hard it was for us at that time to give treatments for the spasms because they made the underlying weakness worse?

but it was such a shock to realize that an endocrinologist would think it better for my son to be weak and small, than strong and big.

i'm there. my child is getting big.

its taking forever to get lifts that work. i have back problems. i get sad over how hard it is to get my son out in the community with me when i don't have help.

but the problems are society's, not my child's. these things are not his fault.

what really upsets me is that some doctors allow themselves to think this way because the patients they are toying with cannot defend themselves, they are children and often non-verbal. and this, they should be confronted with.

Curious 11-10-2006 11:52 AM

ok...so now that i have stewed over this for a few days....:mad:

i don't always post much about my own physical problems.

when i had my accident at age 12 my parents were told and assured by my doctors that i would never walk again. after they were proved wrong on that one, they flat out told my parents that there was no way i could safely have children. reccomendation:complete hysterectomy.

my 4 monkeys and i thank my father daily in our prayers for not listening.

having children may be a reason why my condition is progressive. who knows. but i wouldn't trade them for 1 minute of less pain.

doctors have different knowledge than you or i. they are not all knowing. they are not god's.

keep in mind the old joke:

what do they call the medical student who graduated last in class?

doctor


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