[DocJohn]

We will gladly promote any forum where the traffic is sufficient, but I think and have heard from dozens of people over the year that a long list of hundreds of forums on a single index page is confusing and overwhelming. Our efforts here are to make such a list more usable and realistic to meet most people's needs.

I long ago gave up the illusion I can meet everybody's needs -- that's just not a realistic goal.

Best,
John

[Alffe]

Oh no.......I'm so disillusioned! *grin

[Thelma]

Oh ye of so little faith.

If that frog doesn't put his leg down once in awhile he will get blood clotting and then what will he do we don't have a bloody forum for that or do we. lol

Must go through them again. want to go for the walk with me there old girl Gee would be nice to ask some of you over for a drink of tea or something..

Lots to be said for these forums but people need so much more. But it never was fair was iT, life that is.

Remember when we were all going to try and meet somewhere and had to deal with that marvel from Australia Frosty. Wonder how she is doing. And poor Giraffe my heart goes out to her.

Trips down memory lane for those who only have keys under their fingers to remember by.

But I'll take that if it meant I would never had met you all any other way.

[Alffe]

I'll have "or something" dear lady. And no, life isn't fair...we are just practicing. We could request the good Dr. start a blood clot forum...just what he wants, another forum.

I'm rereading a good book "A Reason to Live" by Melody Beattie
and I really like what she says....

"I don't believe we were intended to slug around on the ground, carrying a heavy burden on our backs.

We're meant to claim our wings and fly. Sometimes, to get our wings strong enough to fly, we have to beat on the edges of our cocoon for a while. It hurts, too but the pain isn't the purpose; it's just sometimes part of the path."

Let's you and I just keep beating!

[Jomar]

did you notice the change that has been made -
On the General Health & Rare Disorders?
The Rare Disease Subforums is now a separate part but still in the sub category.


Health & Related Topics

General Health Conditions & Rare Disorders (3 Viewing)
Discussions about general health conditions and undiagnosed conditions, including any disorders that may not be separately listed below.


Rare Disease Subforums
This is a place to find some rare disease subforums.
Sub-Forums: Arnold Chiari Malformation & Syringomyelia, Chronic Fatigue Immune Deficiency Syndrome, Colloid Cyst, CSF Leak, Lyme Disease, Meralgia Paresthetica, Metabolic Diseases / Mitochondrial, Spinal Cord Injury & Diseases, Tarlov Cyst

http://neurotalk.psychcentral.com/index.php

We hope this change will make it easier to find and use.

Discussions are always welcome.

[loisba]

I like the new setup jo55 posted about yesterday. Looks good! And I like also that sci, which started this whole thread, has now been moved back "out" as a subforum of: Spinal Disorders
Sub-Forums: Spinal Cord Injury & Diseases
It all looks very nice, easy to find and access, and hopefully addressing everyone's concerns.

[K*L*D]

Spinal Cord Injury (SCI) does NOT belong under spinal disorders. While some people who have spinal cord injury (which involves paralysis, loss of sensation, bowel and bladder and sexual dysfunction from spinal cord damage) also have had (as part of their original injury) a spinal (bone, vetebrae) fracture or dislocation, many have not. Spinal cord injury and disease is not an orthopedic problem as are spinal disorders. Spinal cord injury is a neurologic condition, and includes mechanisms other than just trauma such as spinal cord abscess, spinal cord stroke, probable viral infections such as transverse myelitis, polio and some forms of MS as well as conditions such as synringmyelia and herditary spastic paraplegia (HSP).

To stick it under spinal disorders is sort of like putting Volkswagens as a subcatgory under Chevrolets. You might as well just delete it entirely and not claim to serve that population, since no one will every find it there.

Thanks and goodbye. I will go back to the original Braintalk which understands the difference.

[loisba]

Oh,well, (sigh), you can't please everyone. I must say again it looks easy to navigate. Just to compare, I checked in at OBT, which lists everything under the sun, and found I was scrolling forever to get down to my Myasthenia Gravis forum.
Besides which, I checked spinal disorder in the dictionary. Spinal is defined as: of, relating to, or situated near the backbone; of, relating to, or affecting the spinal cord; While disorder is defined as an abnormal physical or mental condition. So a spinal disorder would be an abnormal physical condition of the backbone or the spine. To me that would have to include spinal cord injuries. Therefore a very logical place to put sci.
Hugs,

[OneMoreTime]

Originally Posted by loisba

Oh,well, (sigh), you can't please everyone. I must say again it looks easy to navigate. Just to compare, I checked in at OBT, which lists everything under the sun, and found I was scrolling forever to get down to my Myasthenia Gravis forum.
Besides which, I checked spinal disorder in the dictionary. Spinal is defined as: of, relating to, or situated near the backbone; of, relating to, or affecting the spinal cord; While disorder is defined as an abnormal physical or mental condition. So a spinal disorder would be an abnormal physical condition of the backbone or the spine. To me that would have to include spinal cord injuries. Therefore a very logical place to put sci.
Hugs,

Loisba and others, I totally agree. I was really delighted to see this relocation of the subforum - and it IS an appropriate placement. But when someone is not yet used to subforums (they are still pretty new to me, but I love them more everyday), it may seem like someone is DISCOUNTING your illness or condition - but that is not true.

Medical schools can't have a separate textbook for every disease or syndrome -- they have to have textbooks with many Sections, Subsections and Chapters.

I went over to OBT, having decided to actually COUNT how many forums I had to scroll thru, everytime I was trying to track down an illness (you would be surprised how often I couldn't figure out how it would be described in the forum descriptor.

So how many forums were there?

Three Hundred and Five separate forums

Now no one will ever convince me that level of disorganization has any benefit, perceived or real, over organization. True, this website isn't completely finished -- and a great deal more solid thinking and decision making will make it a much better system of forum divisions in time ..... but the use of subforums is invaluable. No one can disagree with that - in my opinion, no one can sensibly, logically and coherently disagree with that.

For instance, while I still am displeased with WHERE the neurological subforums are still grouped, under "other things" rather than neurological Medical conditions .... while prostate and breast cancer are still in the neurological category....

BUT BUT BUT I DID love how this forum software enabled the SubForum section to stand out so distinctively --- at least it is impossible to miss now.

Teri

[Bobbi]

K*L*D,

I understand what you are saying, and why so. And: I would truly hate to see you leave (here)... because you do have so much experience (as a SCI nurse) and valuable insight.

Possibly? perhaps? what you are sharing, even within this thread, could be info. that people may not have known or been aware of previously.

If you have helped one person, and I think you have, maybe you might want to stick around. It's probable that you'll end up helping even more people.

Already: Dr. John or an admin. has moved the SCI forum from within the Rare Disease(s) sub-fourms. Who knows? Maybe the SCI forum will be moved again - and restored to having its own place within the forum listings so that it isn't wedged.

I'd like to see that, too.

It is by people stating their views and sharing that the admins and mods here see what people believe most beneficial.

I say: Don't go.