A few things to consider...

We'd be happy to setup a forum for this discussion here, not a problem.

But I'd also encourage folks to check out what an "e-patient" is, because it sounds similar. E-patients is a broader term that captures the idea that our health care should be an equal partnership between us and our care providers. An individual now can gain as much specialized knowledge in their disease or condition as many doctors (and even many specialists!). So there's no reason a patient can't become an active partner in their own care (instead of a passive participant).

The Society for Participatory Medicine is one advocacy non-profit I'm involved in that is helping to change the conversation and supports e-patients in all their different guises. Some like to speak on this topic, others like to delve into the research and propose & conduct their own studies, still others are just learning where they fit in in understanding and bettering their condition.

If this sounds interesting to you, check out more info on our website at http://participatorymedicine.org/

If you'd like a forum setup for this purpose here, just let me know and I'll get it done.

Best,
DocJohn