Hi Becky
Welcome to the forum. I am glad you found us for support.
I am sorry your daughter is going thru this.

How long has she had the VNS?
What meds is she still on?

I would like to invite you to http://www.vnsmessageboard.com

We have over 600 members and a seperate parents forum.

Hi,

I am a single parent and my daughter has intractible E as well. I would love to talk sometime.

Have you gotten FMLA? I would have lost my job a long time ago with out that protection.

You can follow the link to my daughters site, my email is to the right hand side of that page, I would love to hear from you.

Hi Becky

I'm Donna and I have a 15 year old that has had his VNS for 2 years.

We still deal with seizures, and he still is on 3 different medicines. He
has a paraprofessional at school, and we have to have someone with
him 24/7 so I can totally relate to what you are talking about.

I don't know what state your in but if you would like someone to talk to.
Email me at dmom3005@yahoo.com and I'll see if I can figure out someway
to help you. I am also a advocate in the state of Indiana, and have resources to help parents in other states if they need it. So if you are
having problems with the schools I might be able to help.

Have you looked into respite care.

Donna