Thank you Robin I am using it sparingly. Its 3 days I am on this diet and my stomach feels so much better , I have been having stomach problems for the past few months and this is the first diet to help it. Secondly I have an under active thyroid and have not been able able to lose weight and I started to lose to weight on this diet I am so happy.

I am weaning off my meds and taking homeopathy meds once a month and this diet kinda balances me out . I truly feel great .

Thank you so much for your advice DR John its truly appreciated.


Will keep you updated on my progress.

Riva

I am so glad to hear it Riva.
It is also a diet that is being used for Autism as many of them tend to have intestinal issues. There must be a connection. I sure wish those with the funds would move in this direction of research rather than ever so many new drugs. People tend to "give up" after one attempt, and yet what I am gathering is that success comes from coming at this from many directions nutritionally.

Dear Dr. J and other readers,

My son has suffered from epilepsy since he was 8. He has gone off of meds twice, but would eventually have another seizure that required him to be put back on. He is currently 16 and of course, driving. He started having seizures again in the fall.....we put him back on meds and he has been seizure free until last week. He has been great taking his "pills" because he is scared to death to have a seizure. Luckily, they only happen at night so far.

I have been scouring the internet for some other alternative to medicines and have totally decided that all I have read about going without the big "4", gluten, dairy, soy and corn is probably the answer. We have been doing the diet for 2 days, but it is soooooooooooo hard to find stuff that my son likes.
Thank God for the potato! I'm so worried he's not getting enough protein.

Oh, and let me tell you, I am convinced that these seizures started back this summer because I have been pumping him full of fluids (ya know, I wanted to make sure that dehydration wasn't the cause of another seizure). Guess what fluids I've been giving him? .........1/2 strength CRYSTAL LIGHT, ya know the artificial sweetener poison stuff ?! UGH!!!

He is a great athlete...he's #3 in the state for cross country running and he's an all-state lacrosse player. I can't keep him still!

Could someone help me as to what to feed a teenage boy that basically ate just milk products and bread products?

I have been looking for recipes and we've gotten through 2 days so far. My husband and I are also doing the diet. I'm so worried I can't keep him nourished enough or full enough.

Sorry for ranting......Does anyone out there have some good choices of foods to eat....I know all the veggies and fruit. I've been giving him smoothies and we've used gluten free, casein free bread for toast.

Talk to you soon. I can't wait to keep in touch and give everyone the good news!

Hi Folks,
I've never been on the GFCF diet for epilepsy but I have been on the ketogenic diet for epilepsy and take my word that diet has done wonders for me. The diet has been out since 1927 but a lot of the drs. stopped the diet after all the AED's came out. The diet is high in fat, low in carbs and protein it's similar to the atkins diet but you have to weigh all your food on gram scale. For adults and older teens the average is 4 grams of fat to every 1 gram of protein a day. The diet builds up keytones in a persons body and the keytones stop or reduce sz. Also when your on the diet you burn off the fat for energy instead of carbs. I lost 75 lbs. on the diet in 4 months and my cholesterol level is much better than before I was on the diet. If any of you are interested in the diet you can speak to your local dietician and you can also buy the book titled: "The Epilepsy Diet Treatment" By Dr. John Freeman from Hopkins University. Here's wishing all of you well and May God Bless You!

Sue

Porkette, What are some of the things you do & don't eat?

I was diagnosed with epilespy 4 years ago after being diagnosed basically as a hypercondriac for many years before. I just now have stumbled upon the correlation of diet and epilepsy and have been dairy, gluten and wheat free going on a month now. This thread is the first that I have seen talking about soy and corn free as well. How does soy and corn fit in to the equation? Selfishly - chips and salsa have gotten me through the days where I was feeling sorry for myself I couldn't eat a Domino's Pizza, but will certainly make the adjustments as needed to be as healthy as I can. What are the thoughts out there an corn and soy?

Thanks!

Hello and welcome to NeuroTalk. Great to see you have come to be with us. Just let us know if we can be of any help. We are all here to assist each other as possible. You will find a lot of ones here in this tread to help you with many questions.

Again welcome, looking forward to seeing you around.

Darlene

DoctorJ,

Thank you for bringing up diet.

I was born with a rare brain disorder "heterotopia". The medical name is much longer, but we'll start there. 24 years ago I began experiencing seizures, 5 types of seizures numbering 100 a month. After many types of meds, the doctors now have me on 3 seizure meds. No one ever mentioned a diet. I learned of gluten intolerance last year after experiencing IBS for about 5 years( no meds taken for this). At about the same time I heard red meats were hard on the digestive system. That being said, today I am red meat free, wheat free, dairy free, refined sugar free,and corn free. I'm focused on reaching optimal health and am still experiencing about 20 simple partial and complex partial seizures a month. My body developed degenerative disk disease leaving me unable to exercise(aerobics to burn fat) without pain. I have a desire and goal to shed 40 pounds healthfully and need help. Anyone reading able to offer advice?

Thank you for your replies

Hi, dogtor j. I googled celiac disease and seizures and I came across your website. I am glad I came across your website. Because I have been having complex partical seizures for 20 years now and my doctors has not said anything about my diet I have had 2 brain surgerys and a vns aed and none have worked I am going to bring all this infomation I have gotten off the web to my doctor. But could you please let me know what I should bring with me or what I should print off the web to take with me when I go? And I think it has been a god send that I ran across your website and all the possitive testimonls I have been reading makes me feel excited about starting this diet. God Bless You Dee-Dee

Hi. I have been searching forever to find if anyone has had any success with the gfcf diet. I saw a lot of info on it helping autism and thought that if they had that much success, than it probably would help with seizures. My 8 yr old son was diagnosed with a seizure disorder almost two years ago. He mainly suffers from absence seizures but has had a few real big seizures as well. We have been on 6 different meds with a ton of awful side effects and his seizures are still not under control. There has to be another answer! I have taken him off of dairy already with some positive results but hesitated on gluten because he is soooo skinny. The meds make him not want to eat and he hasn't gained weight in two years. I worried about taking away another food source, but it seems like it may be the answer. If there is any advise you have, tips, links, whatever, I would sure appreciate the help.

Thank you for posting about this.