Thanks! I defently will do all that. As for my tempeture thats a hard one because it gos up and down ALOT because I have RSD and it go worse and its now caused an eregular temp change. And I spoke with my dr today and he got a med orderd that im supposed to take tonight and tomorrow night to hopefully break the cycle. And after all that I need to get labs this coming week and check my levels and we will probley start vimpat.

Hi tos8,

I'm wondering if your temperature going up is maybe triggering some of your sz. I'm no Dr. but I know it can effect some people because the warmer a person gets the more the neurons in the brain fire up and in turn it can trigger a sz. If I may ask has your Dr. ever told you what has caused your epilepsy? Mine came from a scar tissue on the right temporal lobe.

I've been on vimpat for over a yr. and it has helped me a lot. I have only had about 5 complex partial sz. and I've had 30 or more less sz. this yr. than last yr. I will let you know that vimpat can cause a rapid heartbeat and sometimes dizziness for a few seconds. Once you start taking the vimpat and these side effects continue for over 2 weeks let your Dr. know right away. I don't mean to scare you at all I had these side effects but they went away. Also stay away from anything that has nutra sweet (aspartame) in it and check with your pharmacist what cold meds are safe to take. I take Aleve for cold and sinus and that doesn't mess up the vimpat or the other meds I'm on for my sz. (Diamox and Mysoline).

Also over in the United Kingdom they have come out with a cooling device that is used for people with epilepsy. It's put into the person and at the first sign of a sz. it cools the brain down stopping the sz. It probably won't be in the U.S. for another 3-5 yrs. Here's wishing you well and May God Bless You!

Sue

No they dont know why my epilepsy started, since I was 19 when i started having seizures. They started a few weeks after I had TOS surgery, so we dont know if its linked to that or not. They did an MRI with contrast 4yrs ago when i had my first seizure and it was normal. And i havent had any other testing other then 2 eegs since. And i think the temp change is defently a big reason why, along with the lack of sleep lately. He prescribed me liqued consentrated ativan to take 2 doses last week to break the cycle and it did break it. But today ive started with some of them again. So ill just wait it out again and see if they stop on there own and ill contact him next week and see what to do again.

For me back when I was about 2 is when I fell and head my head on a hard metal frame of a bed. I didn't show any seizures till I was about 10. So you you could of gotten a scar on your brain earlier in life. Keep a tract of your seizure with time and how long they last. My thoughts and prayers are with you.

Hi tos8,

If you want to be sure of what has caused your sz. ask your Dr. to do a WADA test on you this will, this test will surely show what has caused your sz. For yrs. my Dr. thought my sz. came from lack of oxygen at birth but when they did the wada test on me they found out that what caused my sz. was trauma that my mom went through when my grandfather passed away and she was 4 months pregnant for me. The trauma caused to many brain cells to go to the right temporal lobe of my brain instead of breaking up evenly this in turn cause a scar on my brain and the sz. started by the age of 10. Here's wishing you well and May God Bless You!

Sue

Well that sounds very intersting? Whats a WADA test? I find it intersting that that a test could get that detailed. I was a preamie, 28 weeks. And im a quadtruplet. So it wouldnt suprise me if somthing like that was because of that, when i had to share a space with 3 others and was born way befor our time was up! So thats probley what they blame it on, but it would be intersting to see exactly why.