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Epilepsy For support and discussion about Epilepsy and Seizure Disorders. |
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#1 | ||
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Senior Member
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HEY There Southie,
It's great to see you back : ) I'm sorry you've had to go through so many surgeries and the FDA isn't letting you take seizure meds. I had a DNA test done not long ago and I found out I was drug resistant to all seizure meds out on the market so my Dr. put me on the medical marijuana (CBD oil) and I was amazed how great that has worked for me I've had the least amount of seizures in 45 yrs. and the CBD oil also kills back pain, stops cancer, along with stopping headaches. It's great to hear from you again. I wish you only the best of luck and May God Bless You! Sue |
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"Thanks for this!" says: | southie (02-12-2017) |
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#2 | |||
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Here's the bottom line: Was being on meds helping the seizures, more so - nocturnal seizures... apparently not! I haven't found any differences between being on meds or off meds... Strange but true. Like the Surgeons, Admins, Professionals, and other high end Medical - baffling, yes... but even with the EEG's flat-lining.. as one Old Professor said... "Iffin you live dis way an' yer ain't a'dead... den dats the way yer brain works!" (Love his heavy accent)... no one can argue with this old man... unfortunately, he passed away a year and half - more so longer ago!
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Sharon . " Vujà Dé - The feeling you've never been in here before!" Daily Feedbag of Zonegran, Clonazepam, and Folic Acid |
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#3 | ||
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Senior Member
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Hi Sharon,
I agree with you regarding meds I know since I cut back on my meds and went on cbd things are much better and after trying drug after drug for over 40 yrs. I said enough of that. Do me a favor and send me some warm Florida weather we are getting a wicked ice and snow storm here today through Monday. I have to work a couple more yrs. and I'm headed south I hate winter and I have seen a pattern where I have more seizures in the fall and winter compared to the spring and summer. My Epileptologist told me they are "seasonal seizures' do to lack of serotonin in the fall and winter. It's great to hear from you, Take good care of yourself and May God Bless You! Sue |
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"Thanks for this!" says: | southie (02-15-2017) |
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#4 | |||
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Here's the Florida snowman - hope it helps! ![]()
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Sharon . " Vujà Dé - The feeling you've never been in here before!" Daily Feedbag of Zonegran, Clonazepam, and Folic Acid Last edited by southie; 02-15-2017 at 04:02 AM. Reason: Image incorrect in bracket |
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"Thanks for this!" says: | Porkette (02-15-2017) |
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#5 | ||
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Senior Member
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Hi Southie,
Thanks for sending the picture to remind me of the warm weather. Yes, retirement is coming soon after working in public school for over 31 yrs. I'm coming down the home stretch and I can't wait then it will be good bye NY and hello Florida. Maybe we will see each other down there since I want to move to Zypherhills. Wishing you only the best and May God Bless You, Sue |
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