| FAQ/Help |
| Calendar |
| Search |
| Today's Posts |
 |
|
Site Navigation
| Epilepsy For support and discussion about Epilepsy and Seizure Disorders. |
|
|
Thread Tools | Display Modes |
|
|
| Epilepsy For support and discussion about Epilepsy and Seizure Disorders. |
|
|
Thread Tools | Display Modes |
12-30-2018, 08:59 PM
|
#1 | |||
|
||||
|
Member
|
Hello all! Southie here! I haven't disappeared! But I've been playing Scrabble with Doc John!  To give everyone the update: 1) ** killed off all my AEDS! :-/ 2) It's been 10 years since I've last taken any meds. 3) So the proof goes in this manner: ON meds or OFF meds - it doesn't control the nocturnal seizures. During normal "daylight" hours, I am and had been fine all along. So it's been "life back to normalcy" as usual, once in a "Blue Moon" I might be floored by an Epileptic attack of some type to some degree. The Doctors have ruled it "isolated" because I do not typically seize when I am awake. The truth be told, our brains are very busy when we're sleeping; and Docs have all confirmed ... it's best to leave me alone and let me be. There's nothing they can do to stop the seizures in my sleep - however, I do not seize every single night - it is estimated approximately 2-3 seizures in typically late Stage 2 and Stage 3 sleep. That is the final disposition. I never did lose my driver's license; and still very strongly recommended to attain it. With over 50 years worth of historical establishment and documentation (or better yet, a Life Diary) The Epilepsy is still confirmed as a Rare type of Mitochondrial and ultra-rare type which there's only 2 people known in the entire world to possess it (to date) - they just merely gave this type a Alpha-Numeric Case File. No one would be able to search or research it. But it falls in the ever-expanding Leigh's Syndrome (aka Leigh's Disease). It is interesting to learn that Leigh's once was clumped into a cess-pile of poop; has currently been all layered out via the "poop". Notice I used the word POOP? That's cause Epilepsy is POOP! HAVE A HAPPY NEW YEAR'S AND BE SEIZURE FREE!  
__________________
Sharon . " Vujà Dé - The feeling you've never been in here before!" Daily Feedbag of Zonegran, Clonazepam, and Folic Acid Last edited by Chemar; 01-01-2019 at 11:59 AM. Reason: **Reminder of limiting direct Political comments please per guidelines |
|||
|
 Reply With Quote
|
| Thread Tools | |
| Display Modes | |
|
|
Similar Threads
|
||||
| Thread | Forum | |||
| hadn't seen this - Creatine LS-1 Study in Parkinson's Disease Stopped by NINDS | Parkinson's Disease | |||
| Alan's psoriasis has all but disappeared!! | Autoimmune Diseases | |||
| Why I disappeared for awhile.... | Reflex Sympathetic Dystrophy (RSD and CRPS) | |||
| Disappeared | The Stumble Inn | |||
Just Updating - I hadn't disappeared! :)
Threaded Mode