Hi Folks,
I have been taking mysoline 1000 mg. along with Diamox 1000 mg. a day for yrs. I have been feeling exhausted, having clusters of sz., not to mention my coordination is very bad especially when I walk into the doorway.
Last wk. I had a blood test done on the mysoline which breaks down into phenobarbital and the drug level was at 70 when it should be between 30 and 40.
My Epi called today and cut me back to 750 mg. of mysoline a day for 2 wks. and then they are going to do another blood test to check the drug level. My Epi also wants to put me on Keppra but I don't feel good about taking that AED because it can make a person moody and emotional not to mention the lawsuits going on with the drug.
What I don't understand is how can my mysoline level go up after being on the drug for over 30 yrs. but it's not toxic. If anyone with any info. I want you to know I greatly appreciate it and May God Bless All of You!

Sue