Originally Posted by mamaof6

I had not posted since april...things had been going well...i had managed to get my szs under control, and I knew I was having them in my sleep, and had a very good amount of time with an aura before I would have one when awake. Not perfect, but was learning about my body and adjusting. Then last Tuesday, I awoke, with a headache again in the middle of my forehead, just like i did in Nov 07 . I had to send my five year old in to wake up my teenager, Mommys gonna have a sz....i didnt think it was going to be that bad, maybe a complex partial or a gran mal, but it continued and I ended up life flighted to the university hospital. Since my move in january, this is a new facility for my treatment, and I had been trying to get in to a nuero, which still has not happened since my brain surgery in 06. Insurance issues and things of the like. I ended up in status, and spent four days completely out of it again in the hospital relearning how to do everything. I have quite a bit of memory of the first part of the szs, but at one point everything goes blank for three days.......apparently i almost died .....rather disconcerting. I had been without my sz meds for five days due to an insurance issue, and the nueros say that is what brought it all on....I dont know. It is almost six months to the day since my last status episode, this time i had at least ten sz i am told. last time it was 6-8. During november, the episode began a few days after the birth of my last son, this time no where near my period or any thing of the like. I have been having break through szs since november, but I always seem able to control them from becoming generalized or having more than one tc. It is all very frustrating, as I had found a job, and now am unemployed again, and all the steps I had made seem to be for naught.
MY questions to all are about your postictal states...

since I am recovering from status, that lasts for more than an hour, in fact this time the best guess is sz activity lasted almost two hours, is it abnormal to feel "out of it" for over a week? My memory has been affected for at least six days postictal, and im exhausted. My head has a swimming feeling, i am becoming nauseated, I have jerking sensations in my arms and trembling as if i have parkinsons, im not too sure ifthis is all postictal or if i may not be experiencing another kind of sz that is being held back for lack of a better explanation by the sz meds. I finally have another appt for a nuero in sept and have been seen by the nueros in the clinic at the university, so they are finally familar with my case.....Hopefully I will start getting some answers. Unfortunately, all they wanted to say this time was i had szs bc I was off my meds...and lecture me about that. Like i didnt know i needed them...My mother was actually on her way with them, as I had to borrow the money to get them filled bc my insurance coverage had lapsed.....a mess im telling you.

So now i am fighting back it seems...just like i had to in November. I had finally began to feel normal, and then this happens....very disappointing.