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Epilepsy For support and discussion about Epilepsy and Seizure Disorders. |
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#1 | ||
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Junior Member
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Thanks for the replies Porkette & Shawn.
Shawn...I don't really know what is going on. I'm trying to find the cause of the sensation that my brain is shaking inside my head. It also feels like my brain is rebooting at the same time or shortly after the shaking sensation. My dad witnessed one of my episodes and he said that I was talking and clearing the table and then all of a sudden my movements slowed down and I stopped talking and my eyelids fluttered. It only lasted maybe 10 seconds though. I have recently be dx with a sensory motor polyneuropathy that we are still investigating. I don't know if these brain quaking episodes are related or what they are. Or if the two are part of a bigger picture. I should also mention I have a very long history of classic migraines. Maybe that is why I had the driving response to the photic stimulation. Does anyone know what the average background volts range should be? Thank you for sharing and for the link.
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Charcot-Marie-Tooth Disease Type 1A Fibromyalgia |
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#2 | ||
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Junior Member
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Having a normal EEG can be maddening when it does not really explain what is going on! My son's EEG can be normal between seizures for the most part even with the long video eegs. (we have had 7 video eegs now) He DID have some abnormalities in 5 of the 7< but they managed to try to talk themselves out of them except the last that were spikey ENOUGH (i kept saying LOOK it is the same locations EACH time down to the electrodes!! Left frontal, left temporal t7,t9, F7, F9, NOT a coincidence! anyway....
People with partial epilepsy can have normal EEGs interictally (between seizures) up to 50% of the time! Normal driving response and within normal limits...(doctor speak, don't you love it)......sigh. I am not sure what that range is. Hang in there! Ginny |
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#3 | ||
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Junior Member
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Quote:
You seem to know quite alot about the EEG's...so i pose you some questions since my dr's wont answer mine ...sighs.....i have had three now...two of which i was completely unconscious for...but all have come back normal, two were right after status events were stabilized, the last one was an inpatient video eeg....he said " we are going to establish a base line and monitor you for up to four days." i had two seizures, he releases me...and says Not only am i epileptic but im also having non epileptic seizures, mind u this dr never witnessed an epileptic seziure on the eeg...just NES...according to him. im so lost, i have three brain lesions and now they say i had to have been abused as a child and something traumatic to be having these that wont respond to the ONE med they have tried.:S Are EEG's the END ALL BE ALL of diagnosis for epileptic seizures?? do they ALWAYS detect epileptic activity? and...are they always interpeted correctly or is there room for interpetation depending on the doctor?
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. If I had to have a tumor this one is the best kind!!! . |
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#4 | |||
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Member
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You can have both Epilepsy and Non Epileptic Seizures, and
like Ginny had posted, it can be maddening! I have to imply with this fact here - consider this from the other side of the fence, I've had abnormalities, sub-clinicals, clinicals, epileptiforms, normal, yadda, yadda, yaddas ... on EEG's ... and my Scans from all sorts are all abnormal; and I'm Dx'd as "Epilepsy, intractable" - with a long list of specific types of epilepsies... NOW - try to get a Doctor to treat me is, well, you might as well go and bang your head on the wall; because that is about just as far as I've gone! MADDENING!
Do you feel alone? You shouldn't! There are tons of people out there ranging from hairs standing on the end of their skin to their faces turning beat red in anger out of dire frustration! And meanwhile ... they seize! There's a huge STIGMA in this area, and it's sad as well as scary, that one must fight to be treated or one must go great distances, just to find a Neurologist or Epileptologist to be treated properly. So the question is ... "While yes it is possible for one to have both Epilepsy and Non-Epileptic Seizures, but due to the response and attitude per se of the posting I question the overall Doctor's report ..." I strongly recommend for a 2nd Opinion or for another Neurologist or Epileptologist, it may be time for a change!
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Sharon . " Vujà Dé - The feeling you've never been in here before!" Daily Feedbag of Zonegran, Clonazepam, and Folic Acid |
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