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View Poll Results: How do you deal with Left Temporal Lobe Epilepsy?
Dealing with Anxiety and Depression, Mood Swings 1 33.33%
Dealing with Anxiety and Depression, Mood Swings
1 33.33%
Experiences you have had 2 66.67%
Experiences you have had
2 66.67%
Voters: 3. You may not vote on this poll

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Old 05-27-2009, 05:16 PM #11
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lor lor is offline
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Luna Marie, Welcome to the group with E, there are MANY of us. I recently asked a childhood GF some questions & she got me to realize I had E since I was very young....but I wasn't diagnosed till 12-13. My one med (lamictal) controlls my tonic clonics (grand mals/GMs) that I didn't find till I was 38. I have complex partials still. I took Topomax once too but had to stop due to side effects too (diplopia, dizzy & headache). Just like someone said, I also get "funny feelings" for awhile after I have a sz. Being forgetful of little things is normal for ANYONE. Yes, we with E forget a little more of the more 'complex things' such as, 'I keep forgetting if you turn right or left, at the gas station' (not imp. but it bugs you).
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Old 05-27-2009, 10:26 PM #12
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Default the temporal lobe

Hi there,
I have the temporal lobe seizures too. At first my epileptologist thought it was just the right lobe. But then after removing the right lobe; he saw that since I was still having seizures but A LOT less. They were also coming from the left temporal lobe. I go through TOTAL confusion after the seizure. I have petit mal seizures on the left temporal lobe. after the staring spell I go into total confusion, and I some times hallucinate. I asked my epileptologist why does this happen. He said that the staring spell is the seizure. After the staring spell the electrical activity is having a hard time getting back to normal. So that's what it puts me through when it's trying to get back to normal. If you'd ever like to go to the live chat that has people with seizures, go to www.epilepsy.com
Sincerely
shawn33

Quote:
Originally Posted by Luna Marie View Post
I was recently diagnosed (after a syncope attack) that my eeg showed I had sharp wave activity with phase reversal localized to the left temporal lobe. I also was diagnosed with basilar migraines. I have no headaches, just flashing lights with my migraines. My neurologist told me I could have been born with the epilepsy or been injured someway or had a high fever at some time or another. It could have been all 3 because all 3 have happened to me.

I have been "quirky" all of my life and realize after researching this type of epilepsy I have had "spells" all of my life. I am an artist and writer, very religious (an inter-faith minister) and am a socialworker. My memory seems fine but I am forgetful of little things, like finding my keys or glasses. Lately though I have noticed when I get those strange feelings that afterward I am confused for a period of time.

This came as a shock to me and for some reason - even though I know I have had these spells all of my life, I have developed anxiety and depression. I think it was brought on because of the medication they put me on because I had thought originally "If I have had this all of my life, why should I let it bother me now?." I had to stop medication because of the adverse effects (Topamax) and still haven't pulled out of it. Because I am in mental health field and have treated others with these problems, I know I need help. I thought perhaps if I could interact with others who have dealt with this strange condition and who also, cannot tolerate medications due to chemical imbalances, perhaps it would help me cope. I am also seeking psychiatric help.

In one of my fits of deep, dark depression from the medication and maybe from a seizure, too, I cut off my long, beautiful hair. At least I didn't cut off my ear like Van Gogh, who I understand, also suffered from this malady or as some of the ancients called it "a sacred gift".

Is it a curse or is it a gift?
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Old 05-28-2009, 05:18 PM #13
Luna Marie Luna Marie is offline
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Heart Thank you

I'd like to thank all of you who have written me. You have helped me so much. My mood is better, the depression has passed and I'm back to work
with a better, more compassionate understanding of others.

It became very stressful this afternoon and I could feel that funny feeling starting in my stomach but I stopped what I was doing, took a break and went outside in the sunshine just to sit for a few moments. When my break was interrupted, I refused to let that bother me. I guess this will be my life from here on out- knowing the signs of a seizure and taking control. I've always let situations and other peoples' needs control me but I have come to realize if I don't take care of myself, I can't take care of anyone else.

I live in Florida. There is an Epilepsy Center at Sarasota Memorial Hospital which is not too far from where I live. I see my family doctor on Friday and plan to arrange for a referral to that Center and to an epileptologist.

Thank you all for your encouragement and support. I was really in a deep dark place when I signed onto this site. Love & Blessings, Luna Marie
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Old 05-28-2009, 09:17 PM #14
Tattoo2 Tattoo2 is offline
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The Cleveland Clinic also has a branch in Weston Fla. I am not if they have an Epilepsy Center there, but if they do, I would check it out too. Cleveland Clinic in Ohio has a great reputation in epilepsy care. This is the link to the Fla location and there is 800 number you can call and check to see if they have an Epilepsy Center and if the docs are bonafied Eileptologists with all the proper training an epileptologist has. http://my.clevelandclinic.org/florid...s/default.aspx

So glad we have helped you and you are feeling better. You are for sure not alone! Tattoo
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