[warbelsnap]

Just wondering if anybody else is having or have had shaking. Let me explain. My left arm shakes every morning for at least an hour. I also noticed that it feels like my legs are shaking on the inside. When this happens, it is very hard to walk because it feel almost like they just can't go. Just trying to find out if there is something else going on besides my Fibro.

Thanks alot.

[warbelsnap]

Question...what are spasms? I keep reading on the board where people are having them. I don't know what they are. Maybe that is what is going on with me. I do have a Drs appt today so I will check with him. Thanks all and God Bless.

[Idealist]

Spasms are when your muscles contract for no apparent reason. Like your calf might start jerking slightly, or another part of your body. In some cases they can be very violent and painful, but they are usually more of a nuisance.

And Warblesnap, first let me say hello. I've suffered with FMS for about five years now, and I do have bouts with muscle spasms from time to time. It is usually confined to one area, but once my muscles kept twitching every second or two all over my body. Since the docs could never find another reason for them, they told me it was probably the fibro. The strangest time was when I started having tiny but strong spasms in my abdomen. When I laid my hand on them, it felt for all the world like a baby's kick. I'm glad that's as far as it went! Good luck to you, and I hope you get them under control.

Idealist

[DM]

Hello Warblesnap and Welcome to NT. I have been on vacation, so it's nice to meet you. I agree w/Idealist in that the spasms could be an FM sx. I have some other neurological things going on, but have had an FM dx for quite some time. I also have Polymyalgia.

Sometimes my legs will spasm and then immediately go into a muscle cramp. It hurts like the dickens and will only go away if I massage the area right away. Heat makes my legs just give way and I'm not sure if it's the FM or another problem, but I seem to end up on the ground when I get overheated. So, be careful walking w/those muscle spasms.

Let us know how your Dr appt went and again~~ welcome.

[warbelsnap]

The Dr thinks it was spasms. Just told me it was a part of the fibro. What I am really having a hard time with is that I can't do the things I like to do or need to do. I have a hard time going to work because of the pain. Trying to clean our home feels like it is killing me. The financial problems of not being able to work on a full time basis. Thank you all for writing back with responses. I cry all the time. I am on antidepressants and they do help. However, I just feel useless. Some days I get really mad at the situation. My husband and daughter are on vacation to his parents house. They will be home in a little less than 2 weeks. I think what we need to do is sit down as a family and get a reality check. We need to accept that if we can't control the pain and stuff, then working full time is not an option. This causes less money so we will have to cut back on a lot. Plus this means I can't do all of the housework and that they are going to need to start pulling their weight. We need to start acting like a team instead of one person doing 90+%. Not going to work any more. What do you guys think? Does it sound like I'm heading in the right direction? Maybe some advice from the Fibro veterans. Thank you all again.

[Idealist]

I think you're absolutely right, and the sooner you get it worked out, the better. I lost my business of 19 years when I became ill, but I was afraid that if I gave up trying to work then I'd be giving in altogether. My wife had to get a full-time job, and that made me feel awful since she had only worked part-time before. It was a year or more before I would apply for disability insurance, because I have never taken a dollar from the government before, and I was ahamed to do it then. I was afraid people would think I was faking or something just to get the money.

You have to understand that this is hard on your family, too. But you have to take care of yourself, or things will only get worse for all of you. And don't be ashamed to ask for help when you need it. It took me years to realize that. I hope your feeling better, and wish you the very best!

[warbelsnap]

Thanks to all of the replies. I sent this link to my friend yesterday. She went through and read some of the posts. She was in awe of the number of people that are having similiar or have had similiar issues as me. She told me she wished she could take it all away. I told her I loved her for the thought. She is truly one of the best people I have ever met. She and her husband are good friends and I am so lucky to have friends and family that love and support me.

[DM]

Hi! Just checking back to see how things are going. I remember when I finallyl relented and quit work. It was like the FM won; I felt beaten down. But, now I know that it was what I had to do.
Thanks for sharing Idealist... it's helpful to know that other's DO understand.

My DH understands my limitations w/my FM, but unless you are living it, no way can anyone understand the pain and frustration attached to it. I gave him some literature a long time ago to read, but there's times that I still don't think he truly GETS it.

My health has changed so much b/c of the FM, but as we all know, there is no magic pill.

Hang in there and we can be thankful for NeuroTalk, as we seem to all be walking in the same pair of shoes.

sending hugs.

[warbelsnap]

I have cut my hours back to 4-6 hours a day after talking to the dr. He said it was a good idea until we find the right dosage of medicine. He just started me off on cymbalta. I sure hope it helps. Thanks for all of the thoughts. As much as I hate the fact others are going through similiar pain, it is nice to know that we aren't alone and we have some place to go and share our thoughts, experiences, and questions.

[Denise R]

Originally Posted by warbelsnap

The Dr thinks it was spasms. Just told me it was a part of the fibro. What I am really having a hard time with is that I can't do the things I like to do or need to do. I have a hard time going to work because of the pain. Trying to clean our home feels like it is killing me. The financial problems of not being able to work on a full time basis. Thank you all for writing back with responses. I cry all the time. I am on antidepressants and they do help. However, I just feel useless. Some days I get really mad at the situation. My husband and daughter are on vacation to his parents house. They will be home in a little less than 2 weeks. I think what we need to do is sit down as a family and get a reality check. We need to accept that if we can't control the pain and stuff, then working full time is not an option. This causes less money so we will have to cut back on a lot. Plus this means I can't do all of the housework and that they are going to need to start pulling their weight. We need to start acting like a team instead of one person doing 90+%. Not going to work any more. What do you guys think? Does it sound like I'm heading in the right direction? Maybe some advice from the Fibro veterans. Thank you all again.

Hi,
I am so sorry you are going through this. 90% of the work is just toooooo much and not really fair.You have a condition and they need to step up to help you. You deserve it. A family meeting is really a good place to start.
I don't know your situation very well but sometimes families just don't know that what they have come to expect from us should no longer be expected.
It only makes our pain worse and gives us guilt that we can't do all the things we used to do.You could tell them that if we can work together it will lower the flares and then you can slowly go back to doing the things they expect or better yet if they are willing to accept you need help maybe the chores could be divided up from now on.I think that's best
It has taken me 6 years to realize that I need help doing the things around the house, that never were a big deal before.I took care of our 4 kids did it all you know the super mom thing.Hubby made the money I made the beds.
Now the beds are unmade most days oh well... so what no one see them but me anyway.
The floors only get done once a week when hubby does them after his 60 hour work week at City Center.( I feel guilty when he does the floors)
The only meals cooked are cooked by him. I am allergic to a lot of things like dairy,soy & wheat so its not easy finding food I can eat(I feel guilty for this as well)
My 23 year old son who lives at home has stepped up and does all the kitchen cleaning.No guilt here he needs to know how to keep a clean house.
My Hubby also does our laundry.The folding really hurts my arms if I do it.
It took me several years to realize I needed help.
It took me several years more to ask.
When I did finally break down and tell him I needed help he said he would have helped sooner if he had known how bad the pain of folding clothes, cooking and doing floors were for me..... so maybe they don't know just how bad it is for you let them see the pain you are in.I hid the extent of my pain for a long time. I don't know your situation but don't hide your pain from your family maybe they just don't know how d**n bad it hurts.
I hope and pray if they don't they will learn and understand soon.
Your health is worth it!!!!!!!!!!!!

I had to give up a high paying job because I just could not do it any longer.
Now I have a small business on ebay it does not make much money but if I don't feel like putting on my day time clothes (jeans hurt)I don't.
Maybe you could look into a way to make money on the internet?

I am an artist but haven't painted in 2 years because it hurts my arms too much, so I thought I would start scrapbooking all the photos from the last 30 years.After several months my feet started hurting so bad (I stand to scrapbook) that now I have realized that if I want to continue my hobbies of painting and scrapbooking I will have to modify the way I do them.

I think the best advice I have been given this week is to do everything in moderation no matter what it is.

My Dr said crying is a good way to release pent up emotions and holding them back is not good for anyone.So she told me to cry as much as I needed to but then try to feel the emotional release.That's what she said.
I don't know if anything I said helped but I do know how you feel
Lots of love