Fibromyalgia and Chronic Fatigue Fibromyalgia syndrome is a widespread musculoskeletal pain and fatigue disorder which generally occurs in the muscles, ligaments, and tendons – the soft fibrous tissues in the body. This forum is for fibromyalgia and Chronic Fatigue Immune Deficiency Syndrome (CFS/CFIDS).


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Old 06-16-2009, 11:03 AM #1
sbvcrn sbvcrn is offline
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Default Older onset

Hello all
I HURT...most of the time. Was in an auto accident 5 years ago. Everything downhill after that. Nothing SPECIFIC injury wise at that time. Shortly thereafter diagnosed (only definitive diagnosis) with torticollis or cervical dystonia (painful neurological condition of the neck.) Since there have developed peripheral neuropathy (had a million and one tests for this one and all negative) but find increasing achiness pretty much total body but mainly both legs. Legs ache, with occationaly shooting pains. Xrays, MRI, etc. only show some scarring at L5-S1 impinging (had surgery 20 years ago that was very successful). Worked until 5 years ago as a critical care nurse and on my feet 12-16 hours a day. Now I cant spend 10 minutes walking at Wal Mart or the mall (any place with very hard concrete surfaces). Dont have peripheral arterial disease ...been tested for that too. Particularly hurt at night with legs that just ache, etc. Also very stiff and in pain in the morning. Had a bunch of tests for arthritis, set rate, rheumatoid factor, etc. all negative. At this point doctors think I am nuts but I am in pain. I am 65 now and this was not how I had planned my retirement years. Anytime I do slightly more than my norm, I hurt for 2-3 days. I do exercise (tai chi and treadmill) but simple things like a 2-3 day auto trip leaves me in horrible shape. My husband so wants to take a cruise to Alaska in the fall (always his dream) and I dread going anywhere. Could this be fibro? It has been fleetingly mentioned but I dont particularly have the tender spots where they are supposed to be (actually any place you press hard enough I hurt). I am starting to question my own sanity. I am not, nor have I been, a complainer but anymore it certainly seems I am. I try not to say to much to hubby as I think he thinks it is psychological (and who knows maybe it is BUT I dont think so). I do exercise (as previously mentioned, eat a good diet, take some recommended supplements for the neuropathy) but am getting worse.
I know Mrs. D reads these forums. I am at the end of my rope because I hurt so and nobody really acknowleges. Doctors say well you are 65 what do you expect...not this...I was in good shape and still basically am. not heavy at all, no smoking, etc. HELP
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mistiis (06-17-2009)

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Old 06-16-2009, 04:45 PM #2
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Lightbulb

I know it is tough.

Do you know what your HbA1C is? If insulin resistance is creeping up on you, you will have fatigue!

I am 62 and feeling tired too. Even with my supplements.
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Old 06-17-2009, 08:40 PM #3
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I was diagnosed with Fibro about 20 years ago. I never could accept it, and had symptoms very similar to yours. A few months back I went to a new pain doc, and he changed my diagnoses to Myofascial pain. I especially have the pain in my legs at night. It is awful, and not much would help, and it would keep you from being able to sleep at all. It drove me nuts for years. Nothing seemed to help.

A few months back I decided to try some L-tryptophan to help me to sleep. I was shocked when it also got rid of the pain in my legs. I was able to sleep without near as much pain. I have gotten to where I don't have to take it everynight. I take it when the pain keeps me from sleeping. I am also trying some magnesium. I also found that moist heat helped me as well.

I also take Noni juice (100% natural), and it helps me as well. I have a neck fusion due to DDD, so I understand those challenges as well. Check out the Vitamins forum. There is some good information in there on the L-tryptophan and magnesium. I hope this will help you. The Noni juice, and Vitamin C help me with the chronic fatigue.
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Old 06-19-2009, 09:14 PM #4
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Quote:
Originally Posted by mrsD View Post
I know it is tough.

Do you know what your HbA1C is? If insulin resistance is creeping up on you, you will have fatigue!

I am 62 and feeling tired too. Even with my supplements.
Hello, my HbA1C is 4.9. GTT showed the highest level at one hour to be 104, this test was a 4 hour test...levels drawn every hour. My fasting level is usually about 90.
I. wish I could figure out what is wrong. I go from here to neuropathy forums as symptoms of both but no specific diagnosis. Everything and I've had lots of tests for the neuropathy too are negative including B12 (methysomething) also plus the usual. Gee I might as well try the trytophan as night time leg pain is the worst.
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Old 06-19-2009, 09:15 PM #5
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Quote:
Originally Posted by mistiis View Post
I was diagnosed with Fibro about 20 years ago. I never could accept it, and had symptoms very similar to yours. A few months back I went to a new pain doc, and he changed my diagnoses to Myofascial pain. I especially have the pain in my legs at night. It is awful, and not much would help, and it would keep you from being able to sleep at all. It drove me nuts for years. Nothing seemed to help.

A few months back I decided to try some L-tryptophan to help me to sleep. I was shocked when it also got rid of the pain in my legs. I was able to sleep without near as much pain. I have gotten to where I don't have to take it everynight. I take it when the pain keeps me from sleeping. I am also trying some magnesium. I also found that moist heat helped me as well.

I also take Noni juice (100% natural), and it helps me as well. I have a neck fusion due to DDD, so I understand those challenges as well. Check out the Vitamins forum. There is some good information in there on the L-tryptophan and magnesium. I hope this will help you. The Noni juice, and Vitamin C help me with the chronic fatigue.
Thank you for the post. I will give it a try and add it to everything else I take.
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Old 06-20-2009, 10:08 AM #6
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Good luck to you. Let us know how it goes for you.
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